Ethical Issues in Community-based Research with Children and Youth

Efforts to apply ethical guidelines and regulations to vulnerable populations are often problematic. Consequently, health and social scientists sometimes shy away from the challenges of research, particularly when it means addressing value-laden social problems such as sexuality, drugs, and racism. Ethical Issues in Community-Based Research with Children and Youth is a collection of essays that describe the uniqueness of community-based research, outlining several of the ethical concerns that it engenders. The contributors examine such issues as the scope of informed consent to multiple stakeholders, determining competence to give consent in marginalized populations, and managing dual roles as participant researchers. The collection suggests that a more collaborative, ongoing, and discursive approach is needed by researchers and by ethical review boards to ensure that research on sensitive social problems with high risk populations is supported and also conducted with a clear understanding of the highest ethical standards possible.

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Elizabeth Bannister is a professor in the School of Nursing at the University of Victoria. Cecilia Benoit is a professor in the Department of Sociology at the University of Victoria. Bonnie J. Leadbeater is a professor in the Department of Psychology at the University of Victoria. Mikael Jansson is a professor in the Department of Sociology at the University of Victoria. E. Anne Marshall is a professor in the Department of Educational Psychology and Leadership Studies at the University of Victoria. Ted Riecken is a professor in the Department of Curriculum of Instruction at the University of Victoria.

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PrefaceAcknowledgmentsContributorsPart I: The Ecology of Informed Consent in Vulnerable Child and Youth Populations and First Nations Community-Based Research with Vulnerable Populations: Challenges for Ethics and Research Guidelines BONNIE LEADBEATER, TED RIECKEN, CECILIA BENOIT, ELIZABETH BANISTER, CONRAD BRUNK, and KATHLEEN GLASS Through the Community Looking Glass: Participant Consultation for Adolescent Risk Research 22 CELIA FISHER and JESSICA MASTY At the Edge of Consent: Participatory Research with Student Filmmakers TED RIECKEN and TERESA STRONG-WILSONPart II: Longitudinal Samples: Protecting Privacy and Maintaining Consent A Youth Population Health Survey MIKAEL JANSSON, WAYNE MITIC, TRACEY HULTEN, and MANDEEP DHAMI The Ethics of Peeking behind the Fence: Issues Related to Studying Children's Aggression and Victimization AMY YUILE, DEBRA PEPLER, WENDY CRAIG, and JENNIFER CONNOLLYPart III: Weighing Benefits and Preventing Harms The Ecstasy and the Agony of Collecting Sociometric Data in Public School Classrooms: Challenges, Community Concerns, and Pragmatic Solutions MARION K. UNDERWOOD, LARA MAYEUX, SCOTT RISSER, and BRIDGETTE HARPER Ivory Tower Ethics: Potential Conflict between Community Organizations and Agents of the Tri-council LORRIE SIPPOLAPart IV: The Special Case of Research with Groups Youth on the Margins: Qualitative Research with Adolescent Groups ANNE MARSHALL and BLYTHE SHEPARD Walking a Fine Line: Negotiating Dual Roles in a Study with Adolescent Girls ELIZABETH BANISTER and KIM DALYPart V: Child Protection Issues in Research with Vulnerable Children and Youth Respect and Protect? Conducting Community--Academic Research with Street-Involved Youth MIKAEL JANSSON and CECILIA BENOIT Conducting Research in Child Maltreatment: Problems and Prospects CHRISTINE WALSH and HARRIET MACMILLAN The Study of Suicidality among Children and Youth: Preliminary Recommendations and Best Practices TRACY VAILLANCOURT and VIOLETTA IGNESKIPart VI: Summary and Recommendations for Ethical Guidelines, Research, and Training Unique Roles, Unique Challenges: Graduate Students' Involvement in Community--Academic Research JOSH SLATKOFF, RACHEL PHILLIPS, SARAH CORRIN, TAMARA ROZECK-ALLEN, and TERESA STRONG-WILSON Stepping into Community-Based Research: Preparing Students to Meet New Ethics and Professional Challenges MARLENE MORETTI, BONNIE LEADBEATER, and ANNE MARSHALL Including Vulnerable Populations in Community-Based Research: New Directions for Ethics Guidelines and Ethics Research BONNIE LEADBEATER and KATHLEEN GLASS

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