Genomics and Society (inbunden)
Fler böcker inom
Format
Inbunden (Hardback)
Språk
Engelska
Antal sidor
438
Utgivningsdatum
2015-11-17
Förlag
Academic Press
Medarbetare
Chadwick, Ruth
Illustrationer
50
Dimensioner
239 x 193 x 25 mm
Vikt
1090 g
Antal komponenter
1
ISBN
9780124201958

Genomics and Society

Ethical, Legal, Cultural and Socioeconomic Implications

Inbunden,  Engelska, 2015-11-17
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Genomics and Society; Ethical, Legal-Cultural, and Socioeconomic Implications is the first book to address the vast and thorny web of ELSI topics identified as core priorities of the NHGRI in 2011.

The work addresses fundamental issues of biosociety and bioeconomy as the revolution in biology moves from research lab to healthcare system.

Of particular interest to healthcare practitioners, bioethicists, and health economists, and of tangential interest to the gamut of applied social scientists investigating the societal impact of new medical paradigms, the work describes a myriad of issues around consent, confidentiality, rights, patenting, regulation, and legality in the new era of genomic medicine.
  • Addresses the vast and thorny web of ELSI topics identified as core priorities of the NHGRI in 2011
  • Presents the core fundamental issues of biosociety and bioeconomy as the revolution in biology moves from research lab to healthcare system
  • Describes a myriad of issues around consent, including confidentiality, rights, patenting, regulation, and more
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Fler böcker av Dhavendra Kumar

Recensioner i media

"...provides a remarkably broad overview of its [genomics'] implications in various sectors of the society, ranging from questions on how clinical genetics services may contribute to the empowerment of patients to questions about economic assessment of these genetic services and biotechnological applications." --European Journal of Human Genetics



Övrig information

Professor Kumar has considerable previous experience in writing and editing books and journals related to genetics and genomics. His books include Genomics and Clinical Medicine and Genomics and Health in the Developing World. He founded and leads the new open access journal Applied and Translational Genomics, published by Elsevier. He has published 40 articles in the journals literature.

Professor Dhavendra Kumar is a Visiting Professor, Genomic Policy Unit, Faculty of Life Sciences and Education, The University of South Wales and Consultant in Clinical Genetics at the University Hospital of Wales, Institute of Medical Genetics, Cardiff University, Cardiff, United Kingdom. He is one of the Consultants for the All Wales Medical Genetics Service and the lead Clinician for Clinical Cardiovascular Genetics. After qualifying in Medicine from the King George's Medical College, University of Lucknow, India, he completed postgraduate training in Pediatrics with an MD. Since 1980 he has pursued a career in Medical Genetics in the UK. In 1990 he became a Diplomate of the American Board of Medical Genetics. He is a Fellow of the American College of Medical Genetics (FACMG) and as well as Royal Colleges of Physicians (FRCP-London and FRCP-Ireland) and Pediatrics and Child Health (FRCPCH-UK).

In 2015, he was conferred with the higher degree of DSc by his Alma Mater, King George's Medical University, Lucknow (UP, India) based on his life-time contributions and achievements to genetic and genomic applications in medicine and health.

Ruth Chadwick is Distinguished Research Professor and Director of the ESRC (Economic and Social Sciences Research Council) Centre for Economic and Social Aspects of Genomics (Cesagen), at Cardiff University, UK and Link Chair between Cardiff Law School and the School of English, Communication and Philosophy (ENCAP). Professor Chadwick has coordinated a number of projects funded by the European Commission, including the EUROSCREEN projects and co-edits the journal Bioethics and the online journal Genomics, Society and Policy. She is Chair of the Human Genome Organisation Committee on Ethics, Law and Society, and has served as a member of several policy-making and advisory bodies, including the Panel of Eminent Ethical Experts of the Food and Agriculture Organisation of the United Nations (FAO), and the UK Advisory Committee on Novel Foods and Processes (ACNFP). She was editor-in-chief of the first edition of the award winning Encyclopedia of Applied Ethics. She is an Academician of the Academy of Social Sciences and a Fellow of the Hastings Center, New York; of the Royal Society of Arts; and of the Royal Society of Medicine. In 2005 she was the winner of the World Technology Network Award for Ethics for her work on the relationship between scientific developments and ethical frameworks. She graduated with first class Honours Literae Humaniores (Philosophy and Greek and Latin Literature) from the University of Oxford, ...

Innehållsförteckning

1. Preface: Genomics and Society - A Visionary Approach
2. Personal Genomics and its Sociotechnical Transformations
3. Genetics, Genomics and Society: Challenges and Choices
4. Genomics and patient empowerment
5. Ethical issues in Health and Social Genomics
6. Health economic perspectives of genomics
7. Legal aspects of health applications of genomics
8. Genomics, Patents and Human Rights
9. Teaching genetics and genomics for social and lay professionals
10. Engaging and empowering public and professionals in genomics
11. The 'life costs' of living with rare genetic diseases
12. The bioeconomy, genomics and Society
13. Socio-economic outcomes of genomics in the developing world
14. Roles of genomics in addressing global food security
15. The integration of genomics in the traditional Indian medical practice of Ayurveda
17. Genomics and Traditional Chinese Medicine
18. Human genetics and genomics and the socio-cultural beliefs and practices in South Africa
19. Genomics and Spirituality
20. The socio-demographic and economic correlates of consanguineous marriages in highly consanguineous populations
21. The international law and regulation of medical genetics and genomics