Vaccine Safety Research, Data Access, and Public Trust (häftad)
Format
Häftad (Paperback / softback)
Språk
Engelska
Antal sidor
152
Utgivningsdatum
2005-04-01
Förlag
National Academies Press
Medarbetare
National Academy of Sciences (creator)
Dimensioner
230 x 155 x 10 mm
Vikt
263 g
Antal komponenter
1
ISBN
9780309095914

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Vaccine Safety Research, Data Access, and Public Trust (häftad)

Vaccine Safety Research, Data Access, and Public Trust

Häftad Engelska, 2005-04-01
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The Vaccine Safety Datalink (VSD) is a large, linked database of patient information that was developed jointly by CDC and several private managed care organizations in 1991. It includes data on vaccination histories, health outcomes, and characteristics of more than 7 million patients of eight participating health organizations. Researchers from CDC and the managed care groups have used VSD information to study whether health problems are associated with vaccinations. The subsequent VSD data sharing program was launched in 2002 to allow independent, external researchers access to information in the database. In this report, the committee that was asked to review aspects of this program recommends that two new oversight groups are needed to ensure that the policies and procedures of the VSD and its data sharing program are implemented as fairly and openly as possible.
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Övrig information

Committee on the Review of the National Immunization Program's Research Procedures and Data Sharing Program

Innehållsförteckning

1 Front Matter; 2 Executive Summary; 3 1 Study Background and Contextual Issues; 4 2 Description of the Vaccine Safety Datalink; 5 3 The Vaccine Safety Datalink Data Sharing Program; 6 4 The Vaccine Safety Datalink Research Process and the Release of Preliminary Findings; 7 5 Independent Review of Vaccine Safety Datalink Activities; 8 Concluding Remarks; 9 References; 10 Appendix A Committee Biographies; 11 Appendix B Glossary; 12 Appendix C Acronyms; 13 Appendix D Meeting One-Agenda; 14 Appendix E Meeting Two-Agenda; 15 Appendix F Summary of Public Submissions; 16 Appendix G Notice and Request for Comment on Procedures and Costs for Use of the Research Data Center