A journey through the nightmare of a glioblastoma multiforme brain tumour
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“thank you for sharing Jack’s Story. I’m deeply sorry to hear about your son’s journey with cancer. As you know glioblastoma cancer has touched my life and those that I love dearly. I can only imagine how difficult this process is for you and your family. It sounds like Jack was surrounded with support and indeed possessed courage at its best. I know that the grieving process never quite ends, but in due time, the thought of your son will bring a smile to your lips sooner than a tear to your eye. Our sons gave us so much more than they knew, so much for us to cherish. Our memories of them will always be with us. Please know that Jill and I will keep you in our thoughts and prayers. We’re in this with you. God Bless you.” Joseph R. Biden. Jr.
“i would like to give my condolences to your family as no family should have to go through what your family endured. taking the pain from your son’s story and turning it into a moving and beautifully honest book takes a lot of courage. i appreciate the bravery it took to write this book about what it is really like inside a life with glioblastoma multiforme.” Senator John McCain
“Jack’s Story is a beautiful, powerful story. The book tells of a family’s love for their son and the importance both of research and of celebrating each life while we have our loved ones with us.” Greg Hunt, Federal Minister for Health, Australia
“Jack’s Story is gripping and confronting. Well done for having the courage to write it and get it out there in the public space. I'm sure many other families and health professionals will benefit from reading this book. It was a real tribute to Jack...and also demonstrated you're didn't leave a stone unturned in trying to find a solution to this aggressive cancer.” Dr Nick Cooling
“i read jack’s story in one night …couldn’t put it down … and despite knowing how it all ended, i was willing there to be a twist and turn on each page that would see a miracle happen. what a truly incredible story of hope, love, courage and ultimate tragedy.” Katie Murray
“we read your book today (up until 1am) as we couldn't put it down. we feel we have ridden the emotional roller coaster with you, albeit removed from our reality. it moved us both to tears throughout and we have such admiration for your courage and dogged determination to explore and uncover every possible option. thanks for sharing and i hope in doing so paves the way for advancements in science to address this terrible disease.” Alex Rooke
Ken Fleming was born in Sydney and came of age in the '60s with the Beatles, Searchers, Kinks and Easybeats. He was a late bloomer and went to University in the mid '70s, studying economics and finance. His first son, Stefan, was born in 1985 and Adrian followed in 1990. He remarried in 1996 to Dianne. Jack was born in November of that year followed by Matthew in 1998. Ken and Dianne moved with Jack and Matthew to Hobart in 2000, the same year their twins, Chris and Hugh, were born. Ken is a director of several companies and an investor in several Tasmanian food, alcohol and telecommunications companies.
Ken Fleming always thought that there would come a time when he would retire and write a book - one with a happy ending. Jack's Story doesn't have a happy ending, but Ken told Jack he would save his life and write a book and the book is the only promise that survived. After he died, Ken sat in Jack's room with the door shut, a bottle of whisky and a box of tissues, and his fingers started to tap the keys - tap, tap, tap tapppppppppppp!!! Over three days of very painful reminisces and emotional depths only parents that have lost children can understand, a draft manuscript evolved. Ken's singular purpose and misplaced ideology was to create something that in some miraculous way could save a life and correct an imbalance in the universe created by Jack's death. He knew it was nutty as he is not driven by religious or spiritual ideologies, but a loss that is unrequited and that can only be made good if another death could be avoided. How that happens he had no idea but, after a box of tissues and a bottle of whisky, it seemed to make sense. Ken's wife, Dianne, hasn't read the book and probably never will. She has said she lived through it and can't live through it again.
foreword
introduction
the beginning
in the middle of the beginning
jack
the end of the beginning
2016:the start
calendar 2017
calendar 2018
funeral
the end
dedications and acknowledgements
senator john mccain
adam lallana
looking for you
snapshots