Ethical Issues in Community-Based Research with Children and Youth

Elizabeth Bannister is a professor in the School of Nursing at the University of Victoria. Cecilia Benoit is a professor in the Department of Sociology at the University of Victoria. Bonnie J. Leadbeater is a professor in the Department of Psychology at the University of Victoria. Mikael Jansson is a professor in the Department of Sociology at the University of Victoria. E. Anne Marshall is a professor in the Department of Educational Psychology and Leadership Studies at the University of Victoria. Ted Riecken is a professor in the Department of Curriculum of Instruction at the University of Victoria.

Preface Acknowledgments Contributors Part I: The Ecology of Informed Consent in Vulnerable Child and Youth Populations and First Nations Community-Based Research with Vulnerable Populations: Challenges for Ethics and Research Guidelines BONNIE LEADBEATER, TED RIECKEN, CECILIA BENOIT, ELIZABETH BANISTER, CONRAD BRUNK, and KATHLEEN GLASS Through the Community Looking Glass: Participant Consultation for Adolescent Risk Research 22 CELIA FISHER and JESSICA MASTY At the Edge of Consent: Participatory Research with Student Filmmakers TED RIECKEN and TERESA STRONG-WILSON Part II: Longitudinal Samples: Protecting Privacy and Maintaining Consent A Youth Population Health Survey MIKAEL JANSSON, WAYNE MITIC, TRACEY HULTEN, and MANDEEP DHAMI The Ethics of Peeking behind the Fence: Issues Related to Studying Childrens Aggression and Victimization AMY YUILE, DEBRA PEPLER, WENDY CRAIG, and JENNIFER CONNOLLY Part III: Weighing Benefits and Preventing Harms The Ecstasy and the Agony of Collecting Sociometric Data in Public School Classrooms: Challenges, Community Concerns, and Pragmatic Solutions MARION K. UNDERWOOD, LARA MAYEUX, SCOTT RISSER, and BRIDGETTE HARPER Ivory Tower Ethics: Potential Conflict between Community Organizations and Agents of the Tri-council LORRIE SIPPOLA Part IV: The Special Case of Research with Groups Youth on the Margins: Qualitative Research with Adolescent Groups ANNE MARSHALL and BLYTHE SHEPARD Walking a Fine Line: Negotiating Dual Roles in a Study with Adolescent Girls ELIZABETH BANISTER and KIM DALY Part V: Child Protection Issues in Research with Vulnerable Children and Youth Respect and Protect? Conducting CommunityAcademic Research with Street-Involved Youth MIKAEL JANSSON and CECILIA BENOIT Conducting Research in Child Maltreatment: Problems and Prospects CHRISTINE WALSH and HARRIET MACMILLAN The Study of Suicidality among Children and Youth: Preliminary Recommendations and Best Practices TRACY VAILLANCOURT and VIOLETTA IGNESKI Part VI: Summary and Recommendations for Ethical Guidelines, Research, and Training Unique Roles, Unique Challenges: Graduate Students Involvement in CommunityAcademic Research JOSH SLATKOFF, RACHEL PHILLIPS, SARAH CORRIN, TAMARA ROZECK-ALLEN, and TERESA STRONG-WILSON Stepping into Community-Based Research: Preparing Students to Meet New Ethics and Professional Challenges MARLENE MORETTI, BONNIE LEADBEATER, and ANNE MARSHALL Including Vulnerable Populations in Community-Based Research: New Directions for Ethics Guidelines and Ethics Research BONNIE LEADBEATER and KATHLEEN GLASS