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- John Wiley & Sons Inc
- 254 x 177 x 12 mm
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- 521 g
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Communication and Culture in Childhood Cancer Treatment
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"...opens up broader margins of reflection about how medical diagnoses, and in general medical communication, are delivered and negotiated and provides the reader with extensive references with which the theoretical discussion is constantly confronted and challenged...Clemente is surely paving the way toward a more fertile and effective collaboration between medical and linguistic anthropology..." - Letizia Bonanno, AAA Book Forum, 2016
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Ignasi Clemente is Assistant Professor in the Department of Anthropology at Hunter College, CUNY, USA. His research interests include sociocultural and communicative aspects of pain and suffering, childhood studies, and embodied communication. His research on chronically ill children has been published in journals including Social Science and Medicine, Sociology of Health and Illness, and Communication and Medicine. Among others, he has contributed to the Oxford Textbook of Paediatric Pain (2013), the Handbook of Conversation Analysis (Wiley-Blackwell, 2013), Healthcare Settings: Policy, Participation and New Technologies (Wiley-Blackwell, 2010), and the Blackwell Guide to Research Methods in Bilingualism (Blackwell, 2008).
Series Preface ix Acknowledgments xii Preface xiv 1. Children: Contributions to Communication and Illness 1 Alternatives to Speaking 5 Disclosure as a Dynamic and Heterogeneous Process 7 Disclosure to Children with Cancer 10 Problematizing Participation 13 Uncertainty and the Practice of Optimism 21 Multiple Uncertainties 21 Hierarchically Organized Uncertainties 23 Variable Uncertainties 23 Practicing Hope and Optimism 25 Ethnography and Conversation Analysis 26 Plan of the Book 31 2. A Linguistic Anthropologist in a Pediatric Cancer Unit 33 Culture and Disclosure Practices in Catalonia 34 Fieldwork with Children 38 Contexts of Children's Questions 42 Investigating Avoidance 44 Multiple Ways of Talking about Cancer 47 3. Living and Dealing with Cancer 49 Focusing on Treatment 51 Guessing 55 Estar baixet (Having Low Blood Cell Counts) 56 Les llagues (Mouth Sores) 57 La febre (Fever and Infections) 58 Being Together 60 Acompanyar (Being at the Patient's Side) 61 Menjar (Eating) 63 Fer una visita (Visiting) 64 Talking Privately 67 Uncertainties of Treatment 71 4. Co ]constructing Uncertainty 74 Questions and Answers 76 Uncertainty and the Topic of Questions 79 Contingent Answers 80 Contingent Questions 86 Uncertainty and the Action of Questions 88 Answers that Lead to Subsequent Actions 90 Avoiding Answers and Avoiding Silence 93 Stepping into the Uncertain Future One Turn at a Time 100 5. Engaging in Communication at Catalonia Hospital 102 Learning the Diagnosis 103 L'entrevista (The Treatment Interview) 109 "And When Will I Be Completely Cured?" 111 Six Communication Strategies 127 6. Patient Pressure and Medical Authority 129 Everyday Life in Treatment 130 "How Many Chemos Do I Have Left?" 133 Seeking Answers Without Challenging Medical Authority 151 7. The Limits of Optimism at the End of Treatment 153 Remission 154 Relapse 159 Negotiating Death 161 "Is the Day of the Autotransplant Going to Be Delayed?" 168 Optimistic Collusion 178 8. Conclusion 180 Appendix A: Profiles of Patients 189 Children (ages 3-6) 189 Young people (ages 11-18) 190 Appendix B: Transcription Conventions 193 References 197 Index 214