Person-Centred Healthcare Research

Brendan McCormack is Professor and Head of the Division of Nursing; Associate Director of the Centre for Person-Centred Practice Research at the School of Health Sciences, Queen Margaret University, Edinburgh, Scotland, UK; and Professor II, University College of Southeast Norway, Drammen, Norway. Sandra van Dulmen is Programme Coordinator of Communication in Healthcare at NIVEL (Netherlands Institute for Health Services Research), Utrecht, the Netherlands; Professor of Communication in Healthcare at Radboud University Medical Center, Nijmegen, the Netherlands; and Professor II, Faculty of Health and Social Sciences, University College of Southeast Norway, Drammen, Norway. Hilde Eide is Professor in Communication and Health Counselling; Research Director at the Science Centre Health and Technology, Faculty of Health and Social Sciences, University College of Southeast Norway, Drammen, Norway. Kirsti Skovdahl is Programme Director of the PhD programme in Person-Centred Healthcare, and Professor at the Faculty of Health and Social Sciences, University College of Southeast Norway, Drammen, Norway. Tom Eide is Professor of Leadership, Ethics and Literature, and affiliated with the Science Centre Health and Technology, Faculty of Health and Social Sciences, University College of Southeast Norway, Drammen, Norway.

Contributors vii Introduction xi Foreword xiii Section 1: Person-Centredness and Foundations of Person-Centred Research 1 1 PersonCentredness in Healthcare Policy, Practice and Research 3 Brendan McCormack, Sandra van Dulmen, Hilde Eide, Kirsti Skovdahl and Tom Eide 2 Philosophical Perspectives on PersonCentredness for Healthcare Research 19 Jan Dewing, Tom Eide and Brendan McCormack 3 The Knowing and Being of PersonCentred Research Practice Across Worldviews: An Epistemological and Ontological Framework 31 Angie Titchen, Shaun Cardiff and Stian Biong 4 Being a PersonCentred Researcher: Principles and Methods for Doing Research in a PersonCentred Way 51 Gaby Jacobs, Famke van Lieshout, Marit Borg and Ottar Ness 5 Research into PersonCentred Healthcare Technology: A Plea for Considering Humanisation Dimensions 61 Gaby Jacobs, Teatske van der Zijpp, Famke van Lieshout and Sandra van Dulmen 6 A Participatory Approach to PersonCentred Research: Maximising Opportunities for Recovery 69 Larry Davidson, Chyrell Bellamy, Elizabeth Flanagan, Kimberly Guy and Maria OConnell 7 CoCreating Flourishing Research Practices Through PersonCentred Research: A Focus on Persons Living with Dementia 85 Kirsti Skovdahl and Jan Dewing 8 Leadership Research: A PersonCentred Agenda 95 Tom Eide and Shaun Cardiff Section 2: Doing Person-Centred Research: Methods in Action 117 9 Staffing Structures for Effectiveness in PersonCentred Care:The RAFAELA System 119 Lisbeth Fagerstrm 10 Giving Voice to Hard To Reach Groups in Healthcare Research: A Narrative Approach 131 Catherine Buckley 11 Promoting Health Across the Lifespan: A Systems Approach 141 Elisabeth Fosse, Steffen Torp and Ingun Stang 12 How Knowledge Developed Through Ethnography May Inform PersonCentred Healthcare Practices 149 Kristin Briseid, Astrid Skatvedt and Brendan McCormack 13 PersonCentred TechnologySupported Interventions 159 Sandra van Dulmen, Espen Brembo, Janne Dugstad and Hilde Eide 14 Learning to be an Effective PersonCentred Practitioner 169 Caroline Williams and Brendan McCormack 15 Doing Eye and Vision Research in a PersonCentred Way 181 Rigmor C. Baraas, Lene A. Hagen, Hilde R. Pedersen and Jon V.B. Gjelle 16 PersonCentred Communication Research: Systematic Observation of Real Life Practice 191 Hilde Eide, Linda Hafskjold, Vibeke Sundling and Sandra van Dulmen 17 Introducing Sex and GenderSensitive PersonCentred Research 201 Stina resland and Sylvia Mtt 18 Future Directions for PersonCentred Healthcare Research 209 Sandra van Dulmen, Brendan McCormack, Tom Eide, Kirsti Skovdahl and Hilde Eide Index 219