Person-Centred Healthcare Research

Brendan McCormack is Professor and Head of the Division of Nursing; Associate Director of the Centre for Person-Centred Practice Research at the School of Health Sciences, Queen Margaret University, Edinburgh, Scotland, UK; and Professor II, University College of Southeast Norway, Drammen, Norway. Sandra van Dulmen is Programme Coordinator of Communication in Healthcare at NIVEL (Netherlands Institute for Health Services Research), Utrecht, the Netherlands; Professor of Communication in Healthcare at Radboud University Medical Center, Nijmegen, the Netherlands; and Professor II, Faculty of Health and Social Sciences, University College of Southeast Norway, Drammen, Norway. Hilde Eide is Professor in Communication and Health Counselling; Research Director at the Science Centre Health and Technology, Faculty of Health and Social Sciences, University College of Southeast Norway, Drammen, Norway. Kirsti Skovdahl is Programme Director of the PhD programme in Person-Centred Healthcare, and Professor at the Faculty of Health and Social Sciences, University College of Southeast Norway, Drammen, Norway. Tom Eide is Professor of Leadership, Ethics and Literature, and affiliated with the Science Centre Health and Technology, Faculty of Health and Social Sciences, University College of Southeast Norway, Drammen, Norway.

Contributors vii Introduction xi Foreword xiii Section 1: Person-Centredness and Foundations of Person-Centred Research 1 1 Person-Centredness in Healthcare Policy, Practice and Research 3 Brendan McCormack, Sandra van Dulmen, Hilde Eide, Kirsti Skovdahl and Tom Eide 2 Philosophical Perspectives on Person-Centredness for Healthcare Research 19 Jan Dewing, Tom Eide and Brendan McCormack 3 The Knowing and Being of Person-Centred Research Practice Across Worldviews: An Epistemological and Ontological Framework 31 Angie Titchen, Shaun Cardiff and Stian Biong 4 Being a Person-Centred Researcher: Principles and Methods for Doing Research in a Person-Centred Way 51 Gaby Jacobs, Famke van Lieshout, Marit Borg and Ottar Ness 5 Research into Person-Centred Healthcare Technology: A Plea for Considering Humanisation Dimensions 61 Gaby Jacobs, Teatske van der Zijpp, Famke van Lieshout and Sandra van Dulmen 6 A Participatory Approach to Person-Centred Research: Maximising Opportunities for Recovery 69 Larry Davidson, Chyrell Bellamy, Elizabeth Flanagan, Kimberly Guy and Maria O'Connell 7 Co-Creating Flourishing Research Practices Through Person-Centred Research: A Focus on Persons Living with Dementia 85 Kirsti Skovdahl and Jan Dewing 8 Leadership Research: A Person-Centred Agenda 95 Tom Eide and Shaun Cardiff Section 2: Doing Person-Centred Research: Methods in Action 117 9 Staffing Structures for Effectiveness in Person-Centred Care:The RAFAELA (R) System 119 Lisbeth Fagerstroem 10 Giving Voice to 'Hard To Reach Groups' in Healthcare Research: A Narrative Approach 131 Catherine Buckley 11 Promoting Health Across the Lifespan: A Systems Approach 141 Elisabeth Fosse, Steffen Torp and Ingun Stang 12 How Knowledge Developed Through Ethnography May Inform Person-Centred Healthcare Practices 149 Kristin Briseid, Astrid Skatvedt and Brendan McCormack 13 Person-Centred Technology-Supported Interventions 159 Sandra van Dulmen, Espen Brembo, Janne Dugstad and Hilde Eide 14 Learning to be an Effective Person-Centred Practitioner 169 Caroline Williams and Brendan McCormack 15 Doing Eye and Vision Research in a Person-Centred Way 181 Rigmor C. Baraas, Lene A. Hagen, Hilde R. Pedersen and Jon V.B. Gjelle 16 Person-Centred Communication Research: Systematic Observation of Real Life Practice 191 Hilde Eide, Linda Hafskjold, Vibeke Sundling and Sandra van Dulmen 17 Introducing Sex and Gender-Sensitive Person-Centred Research 201 Stina OEresland and Sylvia Maatta 18 Future Directions for Person-Centred Healthcare Research 209 Sandra van Dulmen, Brendan McCormack, Tom Eide, Kirsti Skovdahl and Hilde Eide Index 219