Living with HHT (häftad)
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Format
Häftad (Paperback / softback)
Språk
Engelska
Antal sidor
160
Utgivningsdatum
2018-01-26
Förlag
Johns Hopkins University Press
Illustratör/Fotograf
black and white 9 Illustrations
Illustrationer
9 Illustrations, black and white
Dimensioner
226 x 150 x 10 mm
Vikt
272 g
Antal komponenter
1
ISBN
9781421423906

Living with HHT

Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia

av Sara Palmer
Häftad,  Engelska, 2018-01-26
416
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Hereditary Hemorrhagic Telangiectasia (HHT) is a rare genetic disorder that causes blood vessel abnormalities in the nose, skin, gastrointestinal tract, lungs, brain, and liver. Nosebleeds are the most common symptom of HHT, but abnormal vessels in other organs, if they are not diagnosed and treated, can lead to serious medical complications, including stroke, hemorrhage, anemia, and brain abscess. Psychologist Sara Palmer, who has HHT herself and is an expert in helping people cope with health conditions, draws on current research as she thoroughly describes the symptoms of HHT, explains how the diagnosis is made (and often missed), and details treatment options. While addressing the medical aspects of HHT, Palmer also reveals how people affected by the disorder can maintain their emotional health, take care of family members, and live life as fully as possible. Enriched with illustrations, personal stories of people living with HHT, a glossary, and contact information for the HHT Centers of Excellence (which provide coordinated medical treatment for people with the disorder), Living with HHT is a complete resource for individuals with HHT and their families. This guide is also essential for health professionals seeking more information about this underdiagnosed disease.
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Recensioner i media

This book is an excellent basic overview of HHT. It describes the condition, the difficulties often found in diagnosis, current and potential future treatments, as well as emotional and social effects for both patients and their families along with coping strategies. Throughout, the ability to live well with knowledge and appropriate care is emphasized. Jeffrey Pollak, MD, Katharine Henderson, MS, Department of Radiology and Biomedical Imaging, Yale School of Medicine, New Haven, CT, Journal of Radiology Nursing

Övrig information

Sara Palmer, PhD, is a psychologist and an assistant professor in the Department of Physical Medicine and Rehabilitation at Johns Hopkins University School of Medicine. She is the coauthor of Spinal Cord Injury: A Guide for Living; When Your Spouse Has a Stroke: Caring for Your Partner, Yourself, and Your Relationship; and Just One of the Kids: Raising a Resilient Family When One of Your Children Has a Physical Disability.

Innehållsförteckning

Acknowledgments Introduction Part I 1. Diagnosis 2. The Trouble with Telangiectasias 3. HHT's Hidden Dangers Part II 4. Taking Care of Yourself 5. Taking Care of Your Family 6. Beyond the Family Part III 7. Frontiers in HHT Research Notes Glossary Resources Index

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