Cancer Informatics

From the reviews: "People running cancer trials should read this book. It is about the US National Cancer Institutes plans to liberate cancer trials from paper. The chapters were written by leading US experts. The content is detailed, technical, and surprisingly well-written. They give a clear vision of how cancer trials are likely to develop over the next 20 years. This book is informative, interesting, and enjoyable." (M Stockler, Cancer Forum, Vol. 27 (3), 2003)

Section 1 The Vision.- Envisioning a National Cancer Information and Knowledge Environment.- 1 Translating Cancer Research into Cancer Care: Final Report of the Long Range Planning Committee.- 2 Visions of the Future.- 3 Clinical Trials in Practice.- Section 2 The Infrastructure.- Developing and Improving the Informatics Infrastructure to Support Clinical Research.- 4 Cancer Informatics: Lessons from the World of e-Business.- 5 Security and Privacy.- 6 Digital Libraries and Scholarly Communication.- Section 3 Standards and Vocabulary.- The Spectrum of Existing and Emerging Health Data Standards: Their Relevance and Application to Cancer Information.- 7 Cancer Data, Information Standards, and Convergent Efforts.- 8 Toward Terminology as Infrastructure.- 9 Clinical Terminologies for Data Analysis and Structured Data Entry.- 10 Information Standards Within the National Cancer Institute.- 11 CDE Development Model for Chest CT Screening for Lung Cancer.- 12 Pathology Standards in Cancer Informatics.- 13 Clinical Information Interchange with Health Level Seven.- 14 The Health Level Seven Reference Information Model.- 15 HIPAA Administrative Simplification Standards: Provisions of the Final Privacy Rule Related to Clinical Trials.- 16 Toward a Shared Representation of Clinical Trial Protocols: Application of the GLIF Guideline Modeling Framework.- 17 Informatics for Cancer Prevention and Control.- Section 4 Theory Into Practice.- Moving Toward the Vision: Putting Applications in Place.- 18 Selection of Oncology Information Systems.- 19 Clinical State Diagrams and Informatics Tools for Clinical Trial Protocols.- 20 Support for the Cancer Patient: An Internet Model.- 21 Increasing Clinical Trial Awareness and Accrual Via the Web.- 22 ClinicalTrials.gov: Linking Patients to Medical Research.- 23 The National Cancer Institutes net-Trials.- 24 iN: A Community-Based Cancer Informatics and Clinical Trials Network.- 25 Consumer Health Informatics.- 26 An Internet-Based Data System for Outcomes Research.