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Format: Inbunden (Hardback)
Språk: Engelska
Antal sidor: 144
Utgivningsdatum: 2003-06-01
Förlag: Berghahn Books, Incorporated
Medarbetare: etc.
Illustrationer: bibliography, index
Dimensioner: 216 x 140 x 11 mm
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Antal komponenter: 1
ISBN: 9781571816009

Ethics and Genetics

Name: Ethics and Genetics
Price: 1989.00 SEK
Availability: InStock
Author: Guido De Wert, Ruud H J Ter Meulen, Roberto Mordacci, Mariachiara Tallacchini
ISBN: 9781571816009

A Workbook for Practitioners and Students

av Guido De Wert, Ruud H J Ter Meulen, Roberto Mordacci, Mariachiara Tallacchini

Inbunden, Engelska, 2003-06-01

1989

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Genetic information plays an increasingly important role in ourlives. As a result of the Human Genome Project, knowledge ofthe genetic basis of various diseases is growing, withimportant consequences for the role of genetics in clinicalpractice, health care systems and for society at large. In theclinical setting genetic testing may result in a better insightinto susceptibility for inheritable diseases, not only before orafter birth, but also at later stages in life. Besides prenataltesting and pre-conceptional testing, predictive testing hasresulted in new possibilities for the early detection, treatmentand prevention of inheritable diseases. However, not all inheritable diseases that can be predicted onthe basis of genetic information can be treated or cured.Should we offer genetic tests to people for untreatablediseases? Should we test every individual who wants to knowhis or her genetic status? Should we inform family membersabout the results of genetic tests of individuals, even whenthere are no possibilities for treatment? What, in such cases,is the role of the "right-not-to-know"? Should we informfamily members when there is only an increased risk of adisease? This book deals with the ethical issues of clinicalgenetics, as well as ethical issues that arise in geneticscreening, the research of populations, and the use of geneticinformation for access to insurance and the workplace.

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Guido de Wert is Senior Research Fellow at the Institute for Bioethics at the University of Maastricht and a Crown-appointed member of the Health Council of the Netherlands.

Acknowledgements Chapter 1. Prenatal Testing Chapter 2. Right to Know Chapter 3. Counseling Chapter 4. Predictive Testing: Health/Disease Chapter 5. What is Healthy? Chapter 6. Access to Genetic Services Chapter 7. Control of Genome Chapter 8. Ownership ofGenetic Information Chapter 9. Power and Pressure Chapter 10. Confidentiality Chapter 11. Identity and Disability Rights Chapter 12. Ethical Theories Bibliography Index