The Experiences of Children, Families and Care Staff
This very readable book focuses on the real life experiences of children with complex and continuing health needs and their families... I found all the chapter relevant to my everyday working life as part of multidisciplinary team in a Child Development Centre...It is very easy to dip into with clear, accurate chapter headings and a useful glossary. -- Speech & Language Therapy in Practice Advances in medicine have resulted in saving children's lives, but also increasing their psycho-social needs. The volume discusses the role of family members and caretakers in the long term management of a variety of conditions, prematurity, CP,etc. For pediatricians social workers and children's caretakers. -- Pediatric Endocrinology Reviews This book is moving and offers readers an insight into the difficult challenges families and care staff face when developing and supporting this group of children. I would recommend this book to parents, care staff and students that have limited knowledge and experience in this specialised area of support. A compelling read. -- PMLD-Link Journal
Jaqui Hewitt-Taylor is Practice Development Fellow for children with complex and continuing health needs at Bournemouth University. She initially specialised in paediatric intensive care nursing, then moved to working and engaging in research and practice development with children with complex and continuing health needs, their families, and the staff who provide support for them.
Preface. Children, Young People and their Families. 1. Children with Complex and Continuing Needs. 2. Being a Child or Young Person with Complex Needs. 3. Being the Parent of a Child who has Complex Needs. 4. Premature Babies. 5. Families whose Children have Complex Needs. 6. Diagnosis. 7. Support. 8. Healthcare. 9. Education. 10. Society. 11. Working with Children and their Families. 12. Conclusion. Glossary. Useful Websites. References. Index.