Carol Levine - Böcker

A growing number of adolescents do not have a supportive and trusting relationship with an adult in a birth, foster, adoptive, or chosen family. Through a variety of circumstances, they are literally or functionally 'alone'. Yet like all adolescents they need routine and sometimes specialized health care. This book is a collection of essays, case studies, and guidelines that describe the demography, philosophical, medical, legal, and developmental framework in which these youth and health care staff confront medical decision making. The authors address questions of consent, confidentiality, access to care, and the right to refuse or demand care. Throughout the emphasis is on the real-world experience of adolescents as they struggle to overcome the challenges of being alone. Professionals who work with these adolescents cannot replace their absent or disinterested families but can fulfill the critical role of trusted adult advisor.

With a Foreword by Desmond Tutu, Generation at Risk brings insightful perspectives from experienced practitioners and researchers on how a better future can be secured for the millions of children who are being orphaned or made vulnerable by HIV/AIDS. The current situation of these children is grim, and while there has been significant action by governments, international organizations, religious bodies, and non-governmental organizations, the vast majority of children made vulnerable by AIDS have not benefited from any assistance beyond their own extended family and community. A Generation at Risk explains in straightforward terms what is required to fill this gap. The book addresses what needs to be done in the areas of education, community mobilization and capacity building, economic strengthening at household and community levels, psychosocial support, and the protection of children and the fulfilment of their rights.

A growing number of adolescents do not have a supportive and trusting relationship with an adult in a birth, foster, adoptive, or chosen family. Through a variety of circumstances, they are literally or functionally 'alone'. Yet like all adolescents they need routine and sometimes specialized health care. This book is a collection of essays, case studies, and guidelines that describe the demography, philosophical, medical, legal, and developmental framework in which these youth and health care staff confront medical decision making. The authors address questions of consent, confidentiality, access to care, and the right to refuse or demand care. Throughout the emphasis is on the real-world experience of adolescents as they struggle to overcome the challenges of being alone. Professionals who work with these adolescents cannot replace their absent or disinterested families but can fulfill the critical role of trusted adult advisor.

With a Foreword by Desmond Tutu, Generation at Risk brings insightful perspectives from experienced practitioners and researchers on how a better future can be secured for the millions of children who are being orphaned or made vulnerable by HIV/AIDS. The current situation of these children is grim, and while there has been significant action by governments, international organizations, religious bodies, and non-governmental organizations, the vast majority of children made vulnerable by AIDS have not benefited from any assistance beyond their own extended family and community. A Generation at Risk explains in straightforward terms what is required to fill this gap. The book addresses what needs to be done in the areas of education, community mobilization and capacity building, economic strengthening at household and community levels, psychosocial support, and the protection of children and the fulfilment of their rights.

As the population ages and the health care system focuses on cost-containment, family caregivers have become the frontline providers of most long-term and chronic care. Patient care at home falls mainly on untrained and unprepared family members, who struggle to adjust to the new roles, responsibilities, and expenses. Because the culture of family caregivers-their values, priorities, and relationships to the patient-often differs markedly from that of professionals, the result can be conflict and misunderstanding. In The Cultures of Caregiving, Carol Levine and Thomas Murray bring together accomplished physicians, nurses, social workers, and policy experts to examine the differences and conflicts (and sometimes common ground) between family caregivers and health care professionals-and to suggest ways to improve the situation. Topics addressed include family caregivers and the health care system; cultural diversity and family caregiving; the changing relationship between nurses, home care aides, and families; long-term health care policy; images of family caregivers in film; and the ethical dimensions of professional and family responsibilities.The Cultures of Caregiving provides needed answers in the contemporary crisis of family caregiving for a readership of professionals and students in medical ethics, health policy, and such fields as primary care, geriatrics, oncology, nursing, and social work. Contributors: Donna Jean Appell, R.N., Project DOCC: Delivery of Chronic Care; Jeffrey Blustein, Ph.D., Albert Einstein College of Medicine and Barnard College; Judith Feder, Ph.D., Georgetown University; Gladys Gonzalaz-Ramos, M.S.W., Ph.D., New York University School of Social Work and NYU Medical School; David A. Gould, Ph.D., United Hospital Fund in New York City; Eileen Hanley, R.N., M.B.A., St. Vincent's Hospital Manhattan / Saint Vincent Catholic Medical Centers, New York City; Maggie Hoffman, Project DOCC: Delivery of Chronic Care; Alexis Kuerbis, C.S.W., Mount Sinai Medical Center; Carol Levine, M.A., United Hospital Fund, in New York City; Jerome K. Lowenstein, M.D., New York University Medical Center; Mathy Mezey, R.N., Ed.D., New York University; Thomas H. Murray, Ph.D., The Hastings Center, Garrison, New York; Judah L. Ronch, Ph.D., LifeSpan DevelopMental Systems; Sheila M. Rothman, Ph.D.,Columbia University Mailman School of Public Health; Rick Surpin, Independence Care System.

As the population ages and the health care system focuses on cost-containment, family caregivers have become the frontline providers of most long-term and chronic care. Patient care at home falls mainly on untrained and unprepared family members, who struggle to adjust to the new roles, responsibilities, and expenses. Because the culture of family caregivers-their values, priorities, and relationships to the patient-often differs markedly from that of professionals, the result can be conflict and misunderstanding. In The Cultures of Caregiving, Carol Levine and Thomas Murray bring together accomplished physicians, nurses, social workers, and policy experts to examine the differences and conflicts (and sometimes common ground) between family caregivers and health care professionals-and to suggest ways to improve the situation. Topics addressed include family caregivers and the health care system; cultural diversity and family caregiving; the changing relationship between nurses, home care aides, and families; long-term health care policy; images of family caregivers in film; and the ethical dimensions of professional and family responsibilities.The Cultures of Caregiving provides needed answers in the contemporary crisis of family caregiving for a readership of professionals and students in medical ethics, health policy, and such fields as primary care, geriatrics, oncology, nursing, and social work. Contributors: Donna Jean Appell, R.N., Project DOCC: Delivery of Chronic Care; Jeffrey Blustein, Ph.D., Albert Einstein College of Medicine and Barnard College; Judith Feder, Ph.D., Georgetown University; Gladys Gonzalaz-Ramos, M.S.W., Ph.D., New York University School of Social Work and NYU Medical School; David A. Gould, Ph.D., United Hospital Fund in New York City; Eileen Hanley, R.N., M.B.A., St. Vincent's Hospital Manhattan / Saint Vincent Catholic Medical Centers, New York City; Maggie Hoffman, Project DOCC: Delivery of Chronic Care; Alexis Kuerbis, C.S.W., Mount Sinai Medical Center; Carol Levine, M.A., United Hospital Fund, in New York City; Jerome K. Lowenstein, M.D., New York University Medical Center; Mathy Mezey, R.N., Ed.D., New York University; Thomas H. Murray, Ph.D., The Hastings Center, Garrison, New York; Judah L. Ronch, Ph.D., LifeSpan DevelopMental Systems; Sheila M. Rothman, Ph.D.,Columbia University Mailman School of Public Health; Rick Surpin, Independence Care System.

Combining powerful personal stories with astute analysis and recommendations, ""Always on Call"" reveals the hidden struggles of the more than 25 million family caregivers in the United States.

Combining powerful personal stories with astute analysis and recommendations, ""Always on Call"" reveals the hidden struggles of the more than 25 million family caregivers in the United States.

Living in the Land of Limbo is the first anthology of short stories and poems about family caregivers. These men and women find themselves in ""limbo,"" as they struggle to take care of a family member or friend in the uncertain world of chronic illness. The authors explore caregivers' experiences as they deal with family conflicts, the complexities of the health care system and the impact of their choices on their lives and the lives of others. The book includes selections devoted to caregivers of ageing parents; husbands and wives; ill children; and relatives, lovers and friends. A final section is devoted to paid caregivers and their clients. Among the conditions that form the background of the selections are dementia, HIV/AIDS, mental illness, multiple sclerosis and paediatric cancer.Many of the authors are well-known poets and writers, but others have not been published in mainstream media. They represent a range of cultural backgrounds. Although their works approach caregiving in very different ways, the authors share a commitment to emotional truth, unvarnished by societal ideals of what caregivers should feel and do. These stories and poems paint profoundly moving and revealing portraits of family caregivers.

Living in the Land of Limbo is the first anthology of short stories and poems about family caregivers. These men and women find themselves in ""limbo,"" as they struggle to take care of a family member or friend in the uncertain world of chronic illness. The authors explore caregivers' experiences as they deal with family conflicts, the complexities of the health care system and the impact of their choices on their lives and the lives of others. The book includes selections devoted to caregivers of ageing parents; husbands and wives; ill children; and relatives, lovers and friends. A final section is devoted to paid caregivers and their clients. Among the conditions that form the background of the selections are dementia, HIV/AIDS, mental illness, multiple sclerosis and paediatric cancer.Many of the authors are well-known poets and writers, but others have not been published in mainstream media. They represent a range of cultural backgrounds. Although their works approach caregiving in very different ways, the authors share a commitment to emotional truth, unvarnished by societal ideals of what caregivers should feel and do. These stories and poems paint profoundly moving and revealing portraits of family caregivers.

By the year 2000, as many as 125,000 children under the age of 18 in the U.S. will have been orphaned by AIDS. Social services in major urban centers such as New York, Miami, Los Angeles, and Washington will be further overwhelmed by these new clients and their unique problems. In this book, experts on AIDS, bereavement, and children draw together and analyze research and practice models that may be vital to individual and public policy solutions.The first chapter sets the stage by examining how Western culture approaches death. Issues of spirituality and children are discussed next, and the following chapters deal with childhood bereavement among latency-age children and adolescents. The role of culture and ethnicity are examined in the Latino and Black communities. Also, the conflicts and problems that new guardians face as they attempt to build new and secure relationships with grieving youngsters are addressed. The book ends with an examination of four projects that are reaching children and families and gives recommendations to practitioners. This book is an invaluable examination of a problem of growing social concern for social, medical, and mental health professionals, public policy analysts, and the general public.