Chris Feudtner – författare

One of medicine’s most remarkable therapeutic triumphs was the discovery of insulin in 1921. The drug produced astonishing results, rescuing children and adults from the deadly grip of diabetes. But as Chris Feudtner demonstrates, the subsequent transformation of the disease from a fatal condition into a chronic illness is a story of success tinged with irony, a revealing saga that illuminates the complex human consequences of medical intervention.Bittersweet chronicles this history of diabetes through the compelling perspectives of people who lived with this disease. Drawing on a remarkable body of letters exchanged between patients or their parents and Dr. Elliot P. Joslin and the staff of physicians at his famed Boston clinic, Feudtner examines the experience of living with diabetes across the twentieth century, highlighting changes in treatment and their profound effects on patients'' lives. Although focused on juvenile-onset, or Type 1, diabetes, the themes explored in Bittersweet have implications for our understanding of adult-onset, or Type 2, diabetes, as well as a host of other diseases that, thanks to drugs or medical advances, are being transformed from acute to chronic conditions. Indeed, the tale of diabetes in the post-insulin era provides an ideal opportunity for exploring the larger questions of how medicine changes our lives.

Newly-minted doctor-intern Rob McNeal cares for pediatric patients ranging from newborns to young adults. Some will live minutes, others decades—the outcome isn''t always obvious. Rob''s task is to push for more life in their days and, sometimes, to accept fewer days. Rob''s emotional and professional journey is interwoven with the lives of his patients, their families, and the hospital staff. His growing responsibilities impose a heavy emotional toll as he struggles to complete his internship.Nine-month-old Vergil is fed through a tube threaded into one of his veins—a procedure that keeps him alive but damages his liver, makes his skin greenish-yellow, and poses the constant risk of potentially deadly infection. Fourteen-year-old Clara has a disease in which damaged flesh becomes bone, meaning she cannot walk and can barely breathe. Ella''s eighteenth birthday is coming up, but her body has rejected her new heart after a transplant.With each person he works with, Rob begins to understand it''s not about the condition, but about the patient. Every day is a new struggle, which pushes him to expand his capacity to care.The only relief for Rob is the hospital''s crisis debriefing counselor and head chaplain, who winds up helping him reflect on the lessons of his internship. "Light and Shadow" dives deep into the daily soul-wrenching challenges of tending to the severely ill, often terminal, patients. During Rob''s time as an intern, he must emerge as a capable physician with an expanded conception of what a doctor can—and should—be.

One of medicine's most remarkable therapeutic triumphs was the discovery of insulin in 1921. The drug produced astonishing results, rescuing children and adults from the deadly grip of diabetes. But as Chris Feudtner demonstrates, the subsequent transformation of the disease from a fatal condition into a chronic illness is a story of success tinged with irony, a revealing saga that illuminates the complex human consequences of medical intervention. Bittersweet chronicles this history of diabetes through the compelling perspectives of people who lived with this disease. Drawing on a remarkable body of letters exchanged between patients or their parents and Dr. Elliot P. Joslin and the staff of physicians at his famed Boston clinic, Feudtner examines the experience of living with diabetes across the twentieth century, highlighting changes in treatment and their profound effects on patients' lives. Although focused on juvenile-onset, or Type 1, diabetes, the themes explored in Bittersweet have implications for our understanding of adult-onset, or Type 2, diabetes, as well as a host of other diseases that, thanks to drugs or medical advances, are being transformed from acute to chronic conditions. Indeed, the tale of diabetes in the post-insulin era provides an ideal opportunity for exploring the larger questions of how medicine changes our lives.