Karen R. Fisher – författare

Without access to a public social welfare system in parts of China, some families face invidious decisions about the lives of their children with disabilities. In other places, children with disabilities can now expect to participate in their families and communities with the same aspirations as other children. Understanding how Chinese policy has changed in the places that have addressed these stark situations is vital for the rights of the children and their families who still struggle to find the support they need. This book examines family experiences of child disability policy in China, and is the first to compile research on this area. It applies a child disability rights framework in four domains – care and protection, economic security, development and participation – to investigate families’ experiences of the effectiveness of support to fulfil their children’s rights. Questioning how families experience the interrelationships between these rights, it also considers what the further implications of the policy are. It includes vivid case studies of families’ experiences, and combines these with national data to draw out the likely future policy directions to which the Chinese government has said it is committed.Bringing together a wealth of statistical and qualitative data on children with disabilities, this book will be of great interest to students and scholars of Chinese social welfare, social policy, society and children's studies, as well as policy-makers and NGOs alike.

International media regularly features horrific stories about Chinese orphanages, especially when debating international adoption and human rights. Much of the popular information is dated and ill-informed about the experiences of most orphans in China today, Chinese government policy, and improvements evident in parts of China. Informal kinship care is the most common support for the orphaned children. The state supports orphans and abandoned children whose parents and relatives cannot be found or contacted.The book explores concrete examples about the changing experiences and future directions of Chinese child welfare policy. It is about the support to disadvantaged children, including abandoned children in the care of the state, most of whom have disabilities; HIV affected children; and orphans in kinship care. It identifies how many orphans are in China, how they are supported, the extent to which their rights are met, and what efforts are made to improve their rights and welfare provision. When our research about Chinese orphans started in 2001, these children were almost entirely voiceless. Since then, the Chinese government has committed to improving child welfare. We argue that a mixed welfare system, in which state provision supplements family and community care, is an effective direction to improve support for orphaned children. Government needs to take responsibility to guarantee orphans’ rights as children, and support family networks to provide care so that children can grow up in their own communities. The book contributes to academic and policy understanding of the steps that have been taken and are still required to achieve the goal of a child welfare system in China that meets the rights of orphans to live and thrive with other children in a family.

Without access to a public social welfare system in parts of China, some families face invidious decisions about the lives of their children with disabilities. In other places, children with disabilities can now expect to participate in their families and communities with the same aspirations as other children. Understanding how Chinese policy has changed in the places that have addressed these stark situations is vital for the rights of the children and their families who still struggle to find the support they need. This book examines family experiences of child disability policy in China, and is the first to compile research on this area. It applies a child disability rights framework in four domains – care and protection, economic security, development and participation – to investigate families’ experiences of the effectiveness of support to fulfil their children’s rights. Questioning how families experience the interrelationships between these rights, it also considers what the further implications of the policy are. It includes vivid case studies of families’ experiences, and combines these with national data to draw out the likely future policy directions to which the Chinese government has said it is committed.Bringing together a wealth of statistical and qualitative data on children with disabilities, this book will be of great interest to students and scholars of Chinese social welfare, social policy, society and children's studies, as well as policy-makers and NGOs alike.

In the last 20 years, state care in China has shifted away from institutional care, towards alternative care that recognises children’s rights to an inclusive childhood and adulthood. This book reviews changes in policy and practices that affected the generation of young people who grew up in state care in China during this time.The young people themselves give their perspectives on their childhood, their current experiences and their future plans for independence. These insights, combined with analysis of national state care datasets and policy documents, provide answers to questions about the impact of different types of alternative care on young people’s experiences, the impact on their identity and their capacity to live independently, finding a job, a home and relationships. All countries continue to struggle with how to improve the quality child protection practices and alternatives to group care. The results here provide evidence to researchers, governments and professionals to help to improve social inclusion by changing institutionalisation practices.

International media regularly features horrific stories about Chinese orphanages, especially when debating international adoption and human rights. Much of the popular information is dated and ill-informed about the experiences of most orphans in China today, Chinese government policy, and improvements evident in parts of China. Informal kinship care is the most common support for the orphaned children. The state supports orphans and abandoned children whose parents and relatives cannot be found or contacted.The book explores concrete examples about the changing experiences and future directions of Chinese child welfare policy. It is about the support to disadvantaged children, including abandoned children in the care of the state, most of whom have disabilities; HIV affected children; and orphans in kinship care. It identifies how many orphans are in China, how they are supported, the extent to which their rights are met, and what efforts are made to improve their rights and welfare provision. When our research about Chinese orphans started in 2001, these children were almost entirely voiceless. Since then, the Chinese government has committed to improving child welfare. We argue that a mixed welfare system, in which state provision supplements family and community care, is an effective direction to improve support for orphaned children. Government needs to take responsibility to guarantee orphans’ rights as children, and support family networks to provide care so that children can grow up in their own communities. The book contributes to academic and policy understanding of the steps that have been taken and are still required to achieve the goal of a child welfare system in China that meets the rights of orphans to live and thrive with other children in a family.

Examining how policy affects the human rights of people with disabilities, this topical Handbook presents diverse empirical experiences of disability policy and identifies the changes that are necessary to achieve social justice. Expansive in scope, the Handbook illustrates how language, law and concepts about human rights impact the way that disability policy is framed and implemented. Chapters use the lenses of human rights, welfare, health and economic inclusion to address contemporary policy questions such as globalization and technology. Grounded in lived experiences, the Handbook interweaves personal narratives from people with disabilities which provide important insights into how policy impacts opportunity and point to future possibilities for the influence of human rights on policy change. As narrative author Karla Garcia Luiz reflects, ‘We often share situations that make us feel lonely, exhausted, insecure, questioning ourselves.... When we share, we realize that these feelings are collective and, [in]naming them we re-signify them and, thus, we strengthen ourselves for political action’.Informed by international, comparative experiences, this Handbook will be an engaging and perceptive resource for students and scholars of sociology and social policy, health and welfare studies and disability policy. With diverse examples from across the Global North and South, it will also appeal to people working in social policy who are looking to develop and reform policies to be more inclusive, accessible and progressive towards people with disabilities.

This book investigates how NGOs in authoritarian states, such as China, craft accountability and legitimacy to ensure their survival. Essential reading for researchers and policy makers interested in development, NGO, social policy, political science, and child welfare studies.