Health Society and Policy – serie

Takes us from the most private aspects of sexuality into the arena of public policy and state regulation

Douglas Biklen closely examines the experiences of six families in which children with disabilities are full participants in family life in order to understand how people who have been labeled disabled might become full participants in the other areas of society as well. He focuses on the contradictions between what some families have achieved, what they want for their children, and what society and its social policies allow. He demonstrates how the principles of inclusion that govern the lives of these families can be extended to education, community life, and other social institutions. The parents who tell their stories here have actively sought inclusion of their children in regular schools and community settings; several have children with severe or multiple disabilities. In discussing issues such as normalization, acceptance, complete schooling, circles of friends, and community integration, these parents describe the challenge and necessity of their children's "leading regular lives." In the series Health, Society, and Policy, edited by Sheryl Ruzek and Irving Kenneth Zola.

Over 200 in-depth interviews with heavy users document the dangers of cocaine, but the authors contend that the national hysteria over it is largely unfounded

During the Rubella Syndrome epidemic of the 1960s, many children were born deaf, blind, and mentally disabled. David Goode has devoted his life and career to understanding such people's world, a world without words, but not, the author confirms, one without communication. This book is the result of his studies of two children with congenital deaf-blindness and mental retardation.Goode spent countless hours observing, teaching, and playing with Christina, who had been institutionalized since age six, and Bianca, who remained in the care of her parents. He also observed the girls' parents, school, and medical environments, exploring the unique communication practices—sometimes so subtle they are imperceptible to outsiders—that family and health care workers create to facilitate innumerable every day situations. A World Without Words presents moving and convincing evidence that human beings both with and without formal language can understand and communicate with each other in many ways.Through various experiments in such unconventional forms of communication as playing guitar, mimicking, and body movements like jumping, swinging, and rocking, Goode established an understanding of these children on their own terms. He discovered a spectrum of non-formal language through which these children create their own set of symbols within their own reality, and accommodate and maximize the sensory resources they do have. Ultimately, he suggests, it is impractical to attempt to interpret these children's behaviors using ideas about normal behavior of the hearing and seeing world.