Social Policy First Hand

Peter is Professor of Citizen Participation at the University of Essex and Co-Chair of Shaping Our Lives, the user led organisation and network. He has authored and edited more than 20 books and many journal articles as well as writing regular columns for the Guardian and the professional press. He has a longstanding track record of work in the field of participation and citizen involvement as academic, service user, researcher, educator and activist.Sarah is Associate Professor of Mental Health Research at Middlesex University and Vice-chair of the National Survivor User Network. She holds Honorary Social Policy and Social Care posts at the universities of Birmingham and York, and is a Fellow of the Royal Society of Arts. Sarah has written on her own experiences a long-term user of mental health services as well as general mental health and social care practice and policy.

“For the first time, this text explores the problems, practicalities and enormous possibilities of participatory social policy at a global level. Essential Reading!” Jon Glasby, Head of the School of Social Policy, University of Birmingham

• Foreword ~ Baroness Ruth ListerIntroduction ~ Peter Beresford and Sarah CarrPart I: Service users and social policy: an introductionChallenging Injustice: the importance of collective ownership of social policy ~ Danny DorlingParticipation and solidarity in a changing welfare state ~ Peter Taylor-GoobySocial policy in developing countries: A post-colonial critique and participatory inquiry ~ Sweta Rajan-RankinAdvancing sustainability: developing participatory social policy in the context of environmental disasters ~ Margaret AlstonSocial policy and disability ~ Colin CameronA case study of children’s participation in health policy and practice ~ Louca-Mai Brady, Felicity Hathway and Emily RobertsWho owns co-production? ~ Sarah CarrPart II: Critiquing and reconceiving Beveridge’s ‘five giant evils’: Key areas of British post-war social policy from a lived experience perspective Rethinking disabled people’s rights to work and contribute ~ Jane YoungTalking policy as a patient ~ Anya de Iongh‘We don’t deal with people we deal with bricks and mortar’: a lived experience perspective on UK health and housing policy ~ Alison CameronEducation (ignorance) addressing inclusive education: the issues and its importance from a participatory perspective ~ Tara Flood and Navin Kikabhai‘For work, we came here to find work’: migrant Roma employment and the labour of language ~ Colin ClarkPart III: The contribution of service user knowledges Disability policy and lived experience: reflections from regional Australia ~ Kathy Boxall, Adam Johnson, Lawrence Mitting, Suzanne Simpson, Stefan Zwickl, Judith Zwickl, Shae Kermit, Luke and CarolineRenewing epistemologies: service user knowledge ~ Diana RosePornography, feminist epistemology and changing public policy ~ Ruth BeresfordMaking social policy internationally: a participatory research perspective ~ Nicola Yeates and Ana B. AmayaPart IV: An inclusive life course and developmental approach to social policy Disabled children’s lives: an inclusive life course and developmental approach to social policy ~ Mary WickendenTroubled Youth and Troubling Social Policy: Mental Health From a Mad Studies Perspective ~ Lucy CostaDisability: an inclusive life course and developmental approach to social policy ~ Emmeline BurdettIndependent living from a Black Disabled Woman’s perspective ~ Michelle DaleyFood poverty and the policy context in Ireland ~ Deirdre O’ConnorImplementing race equality policies in British health and social care: a perspective from experience ~ Hári SewellParticipatory approaches to social policy in relation to ageing ~ Sarah LonbayDeath, dying and digital stories ~ Lisa Williams, Merryn Gott, Tess Moeke-Maxwell, Stella Black, Shuchi Kothari, Sarina Pearson, Peter James Simpson, Tessa Morgan, Marianne Grbin, Matua Rawiri Wharemate and Whaea Whio Hansen Part V: Transforming social policy People acting collectively can be powerful ~ Jennie FlemingTheir participation and ours: competing visions of empowerment ~ Iain FergusonA participatory approach to professional practice ~ Suzy CroftDreams of justice ~ Tina MinkowitzSustainable-participatory social policy ~ Marilyn PalmerParticipatory social policy in a large EU research project ~ Joe Greener and Michael Lavalette, with Rose Devereaux and members of SUGAHPart VI: Campaigning and changeSection One: Approaches to activism'What Is strong, now what is wrong' An interview with Clenton Farquharson MBEParticipatory social policy and social change: exploring the role of social entrepreneurship linked to forms of social and micro enterprises in the field of social care ~ Barbara FawcettPublic duty, whistleblowing and scandal: influences on public policy ~ Kay SheldonVisual: Making the case for single sex mental health wards ~ Kay Sheldon'Informed gender practice in acute mental health': when policy makes sense ~ Nicky Lambert#JusticeforLB: in search of truth, accountability and justice ~ George Julian and Sara RyanSection Two: The role of online platforms and social mediaGuerilla policy: new platforms for making policy from below ~ Michael HarrisA Magna Carta for learning disabled people ~ Kaliya Franklin and Gary BourletPat’s Petition: The emerging role of social media and the internet ~ Pat Onions and othersPart VII: Breaking down barriersSection One: Inclusion and difference in the formulation and operation of social policy"LGBT History Month is a thing!" The story of an equal rights campaign ~ Sue SandersSection Two: user-led approaches to social policyTransforming professional training and education - a gap mending approach: The PowerUs European partnership ~ Helen CaseyGrassroots tackling policy: the making of the 'Spartacus Report' ~ Sam Barnett-CormackInvolvement for influence: developing the 4Pi Involvement Standards ~ Sarah Yiannoullou and Alison FaulknerPart VIII: Participatory research and evaluationFrom expert to service user: challenging how lived experience is demeaned ~ Michele MooreParticipatory methodologies involving marginalised perspectives ~ Charlotte WilliamsDeveloping the evidence to challenge ‘welfare reform’: the road to ‘Cash Not Care’ ~ Mo StewartService user-controlled research for evidence-based policy making ~ Alison FaulknerParticipatory citizenship, gender and human trafficking in Nepal ~ Diane Richardson, Nina Laurie, Meena Poudel, Shakti Samuha and Janet TownsendExperiential knowledge in mental health policy and legislation: can we ever change the agenda? ~ Jasna RussoConclusion ~ Peter Beresford and Sarah Carr