Erica Borgstrom - Böcker

This book examines research on death, dying and bereavement, and how our approaches, perceptions and expectations shapes what we can know about the end of life. The contributions include personal and professional reflections, and practical suggestions for conducting research in this field. The volume stems from the resurgence of the international and interdisciplinary study of death in the last 20 years. Within this, empirical research is often viewed as sensitive, but little has been written about the experience of conducting research in this area. There has thus been little reflection on the opportunities and challenges faced in undertaking research as the field of death studies grows, including the accommodation and recognition of cultural differences. This volume seeks to in part address this gap. The chapters in this book were originally published in the Mortality journal and the Death Studies journal.

The term ‘sensitive research’ is applied to a wide range of issues and settings. It is used to denote projects that may involve risk to people, stigmatising topics, and/or require a degree of sensitivity on behalf of the researcher. Rather than take the notion of ‘sensitive research’ for granted, this collection unpacks and challenges what the term means. This book is a collective endeavour to reflect on research practices around ‘sensitive research’, providing in-depth explorations about what this label means to different researchers, how it is done – including the need to be sensitive as a researcher – and what impacts this has on methods and knowledge creation. The book includes chapters from researchers who have explored a diverse range of research topics, including sex and sexuality, death, abortion, and learning disabilities, from several disciplinary perspectives, including sociology, anthropology, health services research and interdisciplinary work. The researchers included here collectively argue that current approaches fail to adequately account for the complex mix of emotions, experiences, and ethical dilemmas at the heart of many ‘sensitive’ research encounters. Overall, this book moves the field of ‘sensitive research’ beyond the genericity of this label, showing ways in which researchers have in practice addressed the methodological threats that are triggered when we uncritically embark on ‘sensitive research'. The chapters in this book were originally published in the International Journal of Social Research Methodology and the journal Mortality.

The term ‘sensitive research’ is applied to a wide range of issues and settings. It is used to denote projects that may involve risk to people, stigmatising topics, and/or require a degree of sensitivity on behalf of the researcher. Rather than take the notion of ‘sensitive research’ for granted, this collection unpacks and challenges what the term means. This book is a collective endeavour to reflect on research practices around ‘sensitive research’, providing in-depth explorations about what this label means to different researchers, how it is done – including the need to be sensitive as a researcher – and what impacts this has on methods and knowledge creation. The book includes chapters from researchers who have explored a diverse range of research topics, including sex and sexuality, death, abortion, and learning disabilities, from several disciplinary perspectives, including sociology, anthropology, health services research and interdisciplinary work. The researchers included here collectively argue that current approaches fail to adequately account for the complex mix of emotions, experiences, and ethical dilemmas at the heart of many ‘sensitive’ research encounters. Overall, this book moves the field of ‘sensitive research’ beyond the genericity of this label, showing ways in which researchers have in practice addressed the methodological threats that are triggered when we uncritically embark on ‘sensitive research'. The chapters in this book were originally published in the International Journal of Social Research Methodology and the journal Mortality.

This book is the first of its kind to examine key topics in death, dying, and bereavement through a critical lens, highlighting how the understanding and experience of death can vary considerably, based on social, cultural, historical, political, and medical contexts. It looks at the complex ways in which death and dying are managed, from the political level down to end- of- life care, and the inequalities that surround and impact experiences of death, dying, and bereavement.Readers are introduced to key theories, such as the medicalisation of dying, as well as contemporary issues, such as social movements, pandemics, and assisted dying. The book stresses how death is not only a biological process or event but rather shaped by a range of intersecting factors. Issues of inequalities in health, inequities in support, and intersectional analyses are brought to the fore, and each chapter is dedicated to an issue that has interdisciplinary resonance, thus showcasing the wider sociocultural and political factors that impact this time of life.This book is valuable reading for scholars in thanatology and death studies, and for those in related fields such as sociology of health, medical and social anthropology, and interdisciplinary social science courses.

This book is the first of its kind to examine key topics in death, dying, and bereavement through a critical lens, highlighting how the understanding and experience of death can vary considerably, based on social, cultural, historical, political, and medical contexts. It looks at the complex ways in which death and dying are managed, from the political level down to end- of- life care, and the inequalities that surround and impact experiences of death, dying, and bereavement.Readers are introduced to key theories, such as the medicalisation of dying, as well as contemporary issues, such as social movements, pandemics, and assisted dying. The book stresses how death is not only a biological process or event but rather shaped by a range of intersecting factors. Issues of inequalities in health, inequities in support, and intersectional analyses are brought to the fore, and each chapter is dedicated to an issue that has interdisciplinary resonance, thus showcasing the wider sociocultural and political factors that impact this time of life.This book is valuable reading for scholars in thanatology and death studies, and for those in related fields such as sociology of health, medical and social anthropology, and interdisciplinary social science courses.

This book offers a comprehensive collection of seminal research into palliative care and hospice, providing an invaluable resource for anyone seeking to deepen their understanding of end-of-life care, hospice practices, and the care of the dying. Drawing on articles published in Mortality, an academic journal dedicated to the study of death, dying, grief, bereavement, and memorialization, the chapters span a wide range of international and institutional contexts. Together, they demonstrate the breadth and depth of research into end-of-life care practices, experiences, and settings, offering insights into the evolving field of palliative care.The volume opens with a preface that contextualizes the significant role Mortality has played in advancing research and understanding of palliative care both in the UK and internationally. From foundational works such as reflections on hospice care and the origins of St Christopher’s Hospice to contemporary studies on cultural humility in perinatal palliative care, the book explores critical themes including the evolution of palliative care, health-promoting social models, bi-cultural research approaches, and the challenges of providing care in diverse settings such as correctional facilities and low-income contexts.This book is essential reading for scholars, practitioners, and students in fields such as palliative care, hospice care, social work, nursing, public health, and medical humanities. It also appeals to those interested in the broader subjects of death studies, grief, and bereavement.

This book examines the profound impacts of the COVID-19 pandemic on how people experienced dying, death and bereavement from early 2020 onwards. This interdisciplinary collection draws together international examples rooted in empirical research from death studies scholars to make sense of these impacts. The collection includes a wide range of insights from how personal and societal responses to the pandemic shaped the ways people talked and thought about death, to the provision of palliative and intensive care, and changes in funerary practices. The book demonstrates how social responses to the pandemic shaped death in this historical moment and explores potential lasting legacies, such as altered rituals. Curated from articles originally published in the journal Mortality with a new preface by the editors, this collection showcases why death studies is crucial for understanding not only the COVID-19 pandemic but also future pandemics and mass death events.This volume will be essential reading for students, scholars, healthcare professionals, public health researchers and grief counsellors in medical anthropology, medical humanities, thanatology, sociology, bereavement studies and palliative care.The chapters in this book were originally published in Mortality.

This book brings together illuminating interviews with the most influential scholars who have shaped the interdisciplinary field of death studies. From sociological explorations to psychological frameworks, cultural analyses to digital age considerations, these conversations reveal the rich tapestry of approaches that have advanced our understanding of mortality, bereavement, and end-of-life experiences. Readers will discover how seminal works in death studies emerged, the critical role of academic and community networks, and the transformative power of examining death through diverse disciplinary lenses. The collection highlights both theoretical developments and practical applications, showcasing how scholars have navigated personal and professional boundaries while contributing to this sensitive yet vital area of study.This volume spans sociology, anthropology, psychology, cultural studies, digital humanities, and public engagement, making it an invaluable resource for academics, researchers, graduate students, and practitioners in death studies, palliative care, counseling, funeral services, and related fields.The chapters in this volume were originally published in Mortality.