Peter S. Jensen – författare
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Studies involving children with mental, emotional, or behavioral problems--or their families--have to meet certain standards of research ethics. This book contains chapters on the kinds of ethical dilemmas that typically occur in different types of studies of children, and then presents 65 real-world cases from experts who study children''s mental health. These experts offer practical suggestions for how to handle these dilemmas. Chapters on the perspectives of parents, regulators, and bioethicists provide additional points of view on these issues. Written in down-to-earth language, this book will be useful for professionals who study children, for those who train students in research methods, and for parents who are thinking about participating in research studies. In attempting to bridge the apparent gap between ethics and science, the editors close this volume on a note commonly sounded by researchers: more research is needed. Yet in this area, a new kind of research is required. The science of scientific ethics must be developed and expanded, and better understanding of the determinants and circumstances under which children can comprehend and evaluate risks and benefits is needed. Likewise, fuller knowledge of the contextual factors affecting children''s and families'' consent to participate in research is essential. In particular, development of scales to assess children''s ability to comprehend risk-benefit issues, studies of families'' reactions to research procedures, and empirical data on the impact of various forms of participant reimbursement will advance both science and ethics. This volume should spur further research, serving as a guide for current investigators, participating families, institutional review boards, and policymakers who shape the research enterprise.
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Studies involving children with mental, emotional, or behavioral problems--or their families--have to meet certain standards of research ethics. This book contains chapters on the kinds of ethical dilemmas that typically occur in different types of studies of children, and then presents 65 real-world cases from experts who study children''s mental health. These experts offer practical suggestions for how to handle these dilemmas. Chapters on the perspectives of parents, regulators, and bioethicists provide additional points of view on these issues. Written in down-to-earth language, this book will be useful for professionals who study children, for those who train students in research methods, and for parents who are thinking about participating in research studies. In attempting to bridge the apparent gap between ethics and science, the editors close this volume on a note commonly sounded by researchers: more research is needed. Yet in this area, a new kind of research is required. The science of scientific ethics must be developed and expanded, and better understanding of the determinants and circumstances under which children can comprehend and evaluate risks and benefits is needed. Likewise, fuller knowledge of the contextual factors affecting children''s and families'' consent to participate in research is essential. In particular, development of scales to assess children''s ability to comprehend risk-benefit issues, studies of families'' reactions to research procedures, and empirical data on the impact of various forms of participant reimbursement will advance both science and ethics. This volume should spur further research, serving as a guide for current investigators, participating families, institutional review boards, and policymakers who shape the research enterprise.
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There’s lots of help out there for kids with ADHD, but getting it isn’t always easy. Where can you turn when you’ve mastered the basics and “doing everything right” isn’t enough--the insurer denies your claims, parent-teacher meetings get tense, or those motivating star charts no longer encourage good behavior?
Dr. Peter Jensen has spent years generating ways to make the healthcare and education systems work--as the father of a son with ADHD and as a scientific expert and dedicated parent advocate. No one knows more about managing the complexities of the disorder and the daily hurdles it raises. Now Dr. Jensen pools his own experiences with those of over 80 other parents to help you troubleshoot the system without reinventing the wheel. From breaking through bureaucratic bottlenecks at school to advocating for your child’s healthcare needs, this straightforward, compassionate guide is exactly the resource you’ve been looking for.
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