Health and Aging in the Margins – serie

HIV Endurance: Women’s Journeys from Diagnosis to Aging offers an autoethnographic analysis of the lived experience of disclosing HIV to others, incorporating HIV into one’s identity, challenging HIV stigma, and aging with HIV. Charlene F. D’Amore combines her autoethnographic writing with the voices of seventeen other HIV positive women. The women offer advice to others on disclosing HIV, coping with HIV, challenging HIV stigma through education and advocacy, and aging with HIV using spirituality and a renewed life purpose to find meaning. HIV Endurance offers a model of the HIV disclosure continuum, strategies to challenge HIV stigma, guidance to incorporate HIV into one’s identity, and ways that organizations can prepare for the growing number of people who are aging with HIV.

Womanist AIDS Activism in the United States: “It’s Who We Are” is an in-depth exploration of AIDS advocacy work among Black women. Based on interviews gathered from thirty-six Black women AIDS activists from across the nation, Angelique Harris and Omar Mushtaq examine the ways in which race, gender, sexuality, and spirituality influence the motivations and approaches behind the efforts of the women in the study. The authors use womanism—an epistemological framework that centers the world views of women of color—to better situate this activism within a larger sociocultural and historical context. They find that identity, spirituality, emotions, and experiences with AIDS knowledge all influence the ways in which these activists approached their community activism work. The authors analyze womanism in detail and propose ways in which this framework can be applied more broadly in examinations of community engagement among women of color, and specifically Black women.

Womanist AIDS Activism in the United States: “It’s Who We Are” is an in-depth exploration of AIDS advocacy work among Black women. Based on interviews gathered from thirty-six Black women AIDS activists from across the nation, Angelique Harris and Omar Mushtaq examine the ways in which race, gender, sexuality, and spirituality influence the motivations and approaches behind the efforts of the women in the study. The authors use womanism—an epistemological framework that centers the world views of women of color—to better situate this activism within a larger sociocultural and historical context. They find that identity, spirituality, emotions, and experiences with AIDS knowledge all influence the ways in which these activists approached their community activism work. The authors analyze womanism in detail and propose ways in which this framework can be applied more broadly in examinations of community engagement among women of color, and specifically Black women.

Using an autoethnographic approach, as well as multiple first-person accounts from disabled writers, artists, and scholars, Jan Doolittle Wilson describes how becoming disabled is to forge a new consciousness and a radically new way of viewing the world. In Becoming Disabled, Wilson examines disability in ways that challenge dominant discourses and systems that shape and reproduce disability stigma and discrimination. It is to create alternative meanings that understand disability as a valuable human variation, that embrace human interdependency, and that recognize the necessity of social supports for individual flourishing and happiness. From her own disability view of the world, Wilson critiques the disabling impact of language, media, medical practices, educational systems, neoliberalism, mothering ideals, and other systemic barriers. And she offers a powerful vision of a society in which all forms of human diversity are included and celebrated and one in which we are better able to care for ourselves and each other.