Allison C. Carey - Böcker

This volume of "Research in Social Science and Disability" brings together interdisciplinary scholarship to examine a wide array of issues related to disability and community, a topic of critical importance academically and politically. The evolving and politically contested notions of community sit at the centre of much of the recent research on disability and, as researchers both create and reflect various ideas of membership when defining "disability" and aggregating individuals, their methodological decisions have significant implications for how we come to understand disability and community. This volume also examines a wide range of social institutions and practices such as education, employment, and cultural venues and the extent to which and how they include people with disabilities in the workings of these institutions. It includes research framed by a variety of theoretical perspectives and research methodologies and offers innovative ways to envision inclusive communities and, therefore, enables us to consider how to move forward to create them.

Disability and the Sociological Imagination provides an expertly developed and accessible overview of the relatively new and growing area of sociology of disability. Written by one of the field’s leading researchers, it discusses the major theorists, research methods, and bodies of knowledge that represents sociology’s key contributions to our understanding of disability. Unlike other available texts, it examines the ways in which major social structures contribute to the production and reproduction of disability, and examines how race, class, gender, and sexual orientation shape the disability experience

Parents of children with disabilities often situate their activism as a means of improving the world for their child. However, some disabled activists perceive parental activism as working against the independence and dignity of people with disabilities. This thorny relationship is at the heart of the groundbreaking Allies and Obstacles.The authors chronicle parents’ path-breaking advocacy in arenas such as the right to education and to liberty via deinstitutionalization as well as how they engaged in legal and political advocacy. Allies and Obstacles provides a macro analysis of parent activism using a social movement perspective to reveal and analyze the complex-and often tense-relationship of parents to disability rights organizations and activism. The authors look at organizational and individual narratives using four case studies that focus on intellectual disability, psychiatric diagnoses, autism, and a broad range of physical disabilities including cerebral palsy and muscular dystrophy. These cases explore the specific ways in which activism developed among parents and people with disabilities, as well as the points of alliance and the key points of contestation. Ultimately, Allies and Obstacles develops new insights into disability activism, policy, and the family.

Parents of children with disabilities often situate their activism as a means of improving the world for their child. However, some disabled activists perceive parental activism as working against the independence and dignity of people with disabilities. This thorny relationship is at the heart of the groundbreaking Allies and Obstacles.The authors chronicle parents’ path-breaking advocacy in arenas such as the right to education and to liberty via deinstitutionalization as well as how they engaged in legal and political advocacy. Allies and Obstacles provides a macro analysis of parent activism using a social movement perspective to reveal and analyze the complex-and often tense-relationship of parents to disability rights organizations and activism. The authors look at organizational and individual narratives using four case studies that focus on intellectual disability, psychiatric diagnoses, autism, and a broad range of physical disabilities including cerebral palsy and muscular dystrophy. These cases explore the specific ways in which activism developed among parents and people with disabilities, as well as the points of alliance and the key points of contestation. Ultimately, Allies and Obstacles develops new insights into disability activism, policy, and the family.

In 2020, Pamela Block, Allison C. Carey, and Richard K. Scotch published Allies and Obstacles, which examined the tensions and connections between disability activism and parents of children with disabilities. In Family and Disability Activism, they continue to examine these issues with a focus on the path-breaking advocacy by marginalized activists with intersectional lived experiences.Family and Disability Activism reveals how families and disabled people who identify as BIPOC and/or LGBTQIA2S understand issues of rights versus justice. Contributions by Deaf and disabled activists emphasize the frequent need for either care or independence. Other chapters show how members of the disabled community and their families must navigate systemic issues of segregation, institutionalization, and access to special education services differently depending on their ethnic and racial identities.Expanding the conversation about disability, kinship, biological and chosen families, and activism, this volume amplifies important voices in the fight for disability rights.Contributors: Erin Compton, Diane Compton, Jaclyn Ellis, Laura LeBrun Hatcher, Elena Hung, Bridget Liang, Jenelle Rouse, Cheryl Najarian Souza, Jeneva Stone, Roger A. Stone, Lisette E. Torres, Grace Tsao, and the editors

The history of civil rights for people with intellectual disabilities in 20th century America

The history of civil rights for people with intellectual disabilities in 20th century America

COVID-19 has once again illuminated the ways in which health risks and negative health outcomes are tied to economic and social inequalities. Disabled people rank among those most disadvantaged in terms of education, income, and social inclusion and this exacerbated their risk of negative pandemic-related outcomes. From the start, it was clear that disabled people would be disproportionately affected by the pandemic and this solidified as the pandemic unfolded.Disability in the Time of Pandemic is a timely exploration of emerging research into the implications of the COVID-19 pandemic for people with disabilities in their varied communities and across their complex identities. Using the insights, perspectives, and methods of a variety of disciplines including Anthropology, Disability Studies, Education, Physical and Rehabilitation Therapies, Public Health, Psychology, Sociology, and Women’s and Gender Studies, authors explore the initial and ongoing effects of the global pandemic on people with disabilities in Canada, India, Poland, and the United States.The Research in Social Science and Disability series is essential reading for researchers and students across the social sciences interested in disability, social movements, activism, and identity.