Allies and Obstacles

Allison C. Carey is a Professor in the Department of Sociology and Anthropology at Shippensburg University. She is the author of On the Margins of Citizenship: Intellectual Disability and Civil Rights in Twentieth-Century America (Temple) and co-editor of Disability Incarcerated: Disability and Imprisonment in the United States and Canada and of Disability and Community.Pamela Block is a Professor of Anthropology at Western University. She is co-editor of Occupying Disability: Critical Approaches to Community, Justice, and Decolonizing Disability.Richard K. Scotch is Professor of Sociology and Public Policy at the University of Texas, Dallas. He is the author of From Good Will to Civil Rights: Transforming Federal Disability Policy (Temple), co-author of Disability Protests: Contentious Politics, 1970–1999, and co-editor of Disability and Community.

• TABLE OF CONTENTSAcknowledgements 1Chapter 1 Introduction 4Part I: Disability Activist Communities 42Chapter 2 Intellectual Disability and Parent Activism 43Chapter 3 Psychiatric Diagnosis, Disability, and Parent Activism                                                                                     82Chapter 4 Autistic Identity and Parent Activism 114Chapter 5 Physical Disability and Parent Activism 147Part II: Cross-Disability Analysis 179Chapter 6 Timing: Factors Affecting the Emergence of Parent Led Organizations 180Chapter 7 Frames and Positions within the Field of Disability Activism  203Chapter 8 Social Movement Strategies and Public Policy 248Chapter 9 Narratives of Rights 270Chapter 10 Parents, Children, and Advocacy across Life Transitions                                                                                     316Chapter 11 Conclusion 340Appendix A: A Note on Methods 358Endnotes 360Bibliography 386