Julie Park – författare

Haemophilia in Aotearoa New Zealand provides a richly detailed analysis of the experience of the bleeding disorder of haemophilia based on longterm ethnographic research. The chapters consider experiences of diagnosis; how parents, children, and adults care and integrate medical routines into family life; the creation of a gendered haemophilia; the use and ethical dilemmas of new technologies for treatment, testing and reproduction; and how individuals and the haemophilia community experienced the infected blood tragedy and its aftermath, which included extended and ultimately successful political struggles with the neoliberalising state. The authors reveal a complex interplay of cultural values and present a close-up view of the effects of health system reforms on lives and communities. While the book focuses on the local biology of haemophilia in Aotearoa New Zealand, the analysis allows for comparison with haemophilia elsewhere and with other chronic and genetic conditions.

Haemophilia in Aotearoa New Zealand provides a richly detailed analysis of the experience of the bleeding disorder of haemophilia based on longterm ethnographic research. The chapters consider experiences of diagnosis; how parents, children, and adults care and integrate medical routines into family life; the creation of a gendered haemophilia; the use and ethical dilemmas of new technologies for treatment, testing and reproduction; and how individuals and the haemophilia community experienced the infected blood tragedy and its aftermath, which included extended and ultimately successful political struggles with the neoliberalising state. The authors reveal a complex interplay of cultural values and present a close-up view of the effects of health system reforms on lives and communities. While the book focuses on the local biology of haemophilia in Aotearoa New Zealand, the analysis allows for comparison with haemophilia elsewhere and with other chronic and genetic conditions.

From the hair of a famous dead poet to botanical ornaments and meat pies, the subjects of this book are dynamic, organic artifacts. A cross-disciplinary collection of essays, Organic Supplements examines the interlaced relationships between natural things and human beings in early modern and eighteenth-century Europe. The material qualities of things as living organisms—and things that originate from living organisms— enabled a range of critical actions and experiences to take place for the people who wore, used, consumed, or perceived them.

What does disgust have to do with citizenship? How might pain and pleasure, movement, taste, sound and smell be configured as aspects of national belonging? Senses and Citizenships: Embodying Political Life examines the intersections between sensory phenomena and national and supra-national forms of belonging, introducing the new concept of sensory citizenship. Expanding upon contemporary understandings of the rights and duties of citizens, the volume presents anthropological investigations of the sensory aspects of participation in collectivities such as face-to-face communities, ethnic groups, nations and transnational entities. Rethinking relationships between ideology, aesthetics, affect and bodily experience, the authors reveal the multiple political effects of the senses. The book demonstrates how various elements of political life, including some of the most fundamental aspects of citizenship, rest not only upon our senses, but on their perceived naturalization. Vivid ethnographic examples of sensory citizenship in Europe, the United States, the Pacific, Asia and the Middle East explore themes such as sight in political constructions; smell and ethnic conflict; pain in the constitution of communities; national soundscapes; taste in national identities; movement, memory and emplacement.

What does disgust have to do with citizenship? How might pain and pleasure, movement, taste, sound and smell be configured as aspects of national belonging? Senses and Citizenships: Embodying Political Life examines the intersections between sensory phenomena and national and supra-national forms of belonging, introducing the new concept of sensory citizenship. Expanding upon contemporary understandings of the rights and duties of citizens, the volume presents anthropological investigations of the sensory aspects of participation in collectivities such as face-to-face communities, ethnic groups, nations and transnational entities. Rethinking relationships between ideology, aesthetics, affect and bodily experience, the authors reveal the multiple political effects of the senses. The book demonstrates how various elements of political life, including some of the most fundamental aspects of citizenship, rest not only upon our senses, but on their perceived naturalization. Vivid ethnographic examples of sensory citizenship in Europe, the United States, the Pacific, Asia and the Middle East explore themes such as sight in political constructions; smell and ethnic conflict; pain in the constitution of communities; national soundscapes; taste in national identities; movement, memory and emplacement.