Critical Interventions in the Medical and Health Humanities – serie

Medical humanities and disability studies are disciplines at the cutting edge of innovative critical work in the study of health and disability, but to date there has been no book-length examination of the relationship between the two. Although each has emerged from different heritages, they share many features, from discussing the complexities of embodiment, identifying processes of exclusion and championing user participation, to a commitment to new forms of critical writing.In/Disciplines explores the connections between the two disciplines in detail. It presents a series of provocations about how they interact, the forms their practice take, and their strengths and weaknesses as working methods. With a focus on life stories that give accounts of health and disability experiences, it mixes creative and critical writing in an accessible manner aimed at a wide audience in both Medical Humanities and Disability Studies, and across new humanities more widely. The book asserts that both disciplines need to evaluate and challenge core assumptions if they are to remain critically relevant in the evolving study of social and cultural understanding of health and disability.

Medical humanities and disability studies are disciplines at the cutting edge of innovative critical work in the study of health and disability, but to date there has been no book-length examination of the relationship between the two. Although each has emerged from different heritages, they share many features, from discussing the complexities of embodiment, identifying processes of exclusion and championing user participation, to a commitment to new forms of critical writing.In/Disciplines explores the connections between the two disciplines in detail. It presents a series of provocations about how they interact, the forms their practice take, and their strengths and weaknesses as working methods. With a focus on life stories that give accounts of health and disability experiences, it mixes creative and critical writing in an accessible manner aimed at a wide audience in both Medical Humanities and Disability Studies, and across new humanities more widely. The book asserts that both disciplines need to evaluate and challenge core assumptions if they are to remain critically relevant in the evolving study of social and cultural understanding of health and disability.

Writing against the prevailing narrativization of suicide in terms of why it happened, Whitehead turns instead to the questions of when, how, and where, calling attention to suicide’s materiality as well as its materialization. By turns provocative and deeply affecting, this book brings suicide into conversation with the critical medical humanities, extending beyond individual pathology and the medical institution to think about subjective and social perspectives, and to open up the various sites, scenes and interactions with which suicide is associated.Suicide is related forward from the point of death, rather than taking a retrospective view. Combining critical and textual analysis with personal reflection based on her own experience of her sister’s suicide, Whitehead examines the days, months, and years following a death by suicide. This pivoting of attention to what happens in the wake of suicide brings to light the often-surprising ways in which suicide is woven into the everyday places that we inhabit, and in which it is related to all of us, albeit with varying degrees of proximity and kinship.

Writing against the prevailing narrativization of suicide in terms of why it happened, Whitehead turns instead to the questions of when, how, and where, calling attention to suicide’s materiality as well as its materialization. By turns provocative and deeply affecting, this book brings suicide into conversation with the critical medical humanities, extending beyond individual pathology and the medical institution to think about subjective and social perspectives, and to open up the various sites, scenes and interactions with which suicide is associated.Suicide is related forward from the point of death, rather than taking a retrospective view. Combining critical and textual analysis with personal reflection based on her own experience of her sister’s suicide, Whitehead examines the days, months, and years following a death by suicide. This pivoting of attention to what happens in the wake of suicide brings to light the often-surprising ways in which suicide is woven into the everyday places that we inhabit, and in which it is related to all of us, albeit with varying degrees of proximity and kinship.

Focusing on texts from the late 1970s to the 1990s which document both changing attitudes to terminations of pregnancy and dramatic environmental, medical, and socio-political developments during southern Africa’s liberation struggles, this book examines how four writers from Botswana, South Africa, and Zimbabwe address the ethics of abortion and reproductive choice.Viewing recent fiction through the lens of new materialist theory – which challenges conventional, individual-based notions of human rights by asserting that all matter holds agency – this book argues that southern African women writers anticipate and exceed current feminist revivals of materialist thought. Not only do the authors question contemporary discourse framing abortion as either a confirmation of a woman’s ‘right to choose’ or an unethical termination of human life, but they challenge conventional understandings of development, growth, and time. Through close readings of both literal gestation in the selected texts and the metaphorical reproduction of the post/colonial nation, this study advances the concept of reproductive agency, creating a range of queer ecocritical alternatives to tropes such as those of ‘the Mother Country’, ‘Mother Africa’, or ‘the birth of a nation’. This study situates abortion narratives by Wilma Stockenström (translated by J. M. Coetzee), Zoë Wicomb, Yvonne Vera, and Bessie Head alongside contemporary postcolonial feminist theories, melding traditional beliefs with materialist views to reconsider the future of reproductive health matters in southern Africa. Merging queer ecocritical perspectives from materialism and postcolonialism, this study will appeal to students and researchers in the medical humanities, new materialisms, and postcolonial studies.

Focusing on texts from the late 1970s to the 1990s which document both changing attitudes to terminations of pregnancy and dramatic environmental, medical, and socio-political developments during southern Africa’s liberation struggles, this book examines how four writers from Botswana, South Africa, and Zimbabwe address the ethics of abortion and reproductive choice.Viewing recent fiction through the lens of new materialist theory – which challenges conventional, individual-based notions of human rights by asserting that all matter holds agency – this book argues that southern African women writers anticipate and exceed current feminist revivals of materialist thought. Not only do the authors question contemporary discourse framing abortion as either a confirmation of a woman’s ‘right to choose’ or an unethical termination of human life, but they challenge conventional understandings of development, growth, and time. Through close readings of both literal gestation in the selected texts and the metaphorical reproduction of the post/colonial nation, this study advances the concept of reproductive agency, creating a range of queer ecocritical alternatives to tropes such as those of ‘the Mother Country’, ‘Mother Africa’, or ‘the birth of a nation’. This study situates abortion narratives by Wilma Stockenström (translated by J. M. Coetzee), Zoë Wicomb, Yvonne Vera, and Bessie Head alongside contemporary postcolonial feminist theories, melding traditional beliefs with materialist views to reconsider the future of reproductive health matters in southern Africa. Merging queer ecocritical perspectives from materialism and postcolonialism, this study will appeal to students and researchers in the medical humanities, new materialisms, and postcolonial studies.

This open access book examines the various ways that shame, shaming and stigma became an integral part of the United Kingdom’s public health response to COVID-19 during 2020. As the Covid-19 pandemic unfolded in 2020, it quickly became clear that experiences of shame, shaming and stigma dominated personal and public life. From healthcare workers insulted in the streets to anti-Asian racism, the online shaming of “Covidiots” to the identification of the “lepers of Leicester”, public animus about the pandemic found scapegoats for its frustrations. Interventions by the UK government maximised rather than minimized these phenomena. Instead of developing robust strategies to address shame, the government’s healthcare policies and rhetoric seemed to exacerbate experiences of shame, shaming and stigma, relying on a language and logic that intensified oppositional, antagonistic thinking, while dissimulating about its own responsibilities.Through a series of six case studies taken from the events of 2020, this thought-provoking book identifies a systemic failure to manage shame-producing circumstances in the UK. Ultimately, it addresses the experience of shame as a crucial, if often overlooked, consequence of pandemic politics, and advocates for a "shame sensitive" approach to public health responses. The open access edition of this book is available under a CC BY 4.0 licence on www.bloomsburycollections.com Open access was funded by The Wellcome Trust.

This open access book examines the various ways that shame, shaming and stigma became an integral part of the United Kingdom’s public health response to COVID-19 during 2020. As the Covid-19 pandemic unfolded in 2020, it quickly became clear that experiences of shame, shaming and stigma dominated personal and public life. From healthcare workers insulted in the streets to anti-Asian racism, the online shaming of “Covidiots” to the identification of the “lepers of Leicester”, public animus about the pandemic found scapegoats for its frustrations. Interventions by the UK government maximised rather than minimized these phenomena. Instead of developing robust strategies to address shame, the government’s healthcare policies and rhetoric seemed to exacerbate experiences of shame, shaming and stigma, relying on a language and logic that intensified oppositional, antagonistic thinking, while dissimulating about its own responsibilities.Through a series of six case studies taken from the events of 2020, this thought-provoking book identifies a systemic failure to manage shame-producing circumstances in the UK. Ultimately, it addresses the experience of shame as a crucial, if often overlooked, consequence of pandemic politics, and advocates for a "shame sensitive" approach to public health responses. The open access edition of this book is available under a CC BY 4.0 licence on www.bloomsburycollections.com Open access was funded by The Wellcome Trust.

Threading an enquiry through debates in neurodiversity scholarship and disability studies as well as film theory, this open access book challenges the widespread idea that autism is an epidemic characterised predominantly by a deficit of empathy, arguing that the reverse is true: we are living through an empathy epidemic in which autism is the outcast. In 1908, the British psychologist, Edward Titchener, translated the German term Einfühlung into the English language as ‘empathy’, around the same time that Eugen Bleuler coined the term ‘autism’ for a group of symptoms subset to an emerging classification of schizophrenia. Empathy became a useful tool to describe relations between people in a clinical context, but in the process of its incorporation into psychology, it shed its rich sensory meaning from Einfühlung as ‘feeling-into’ weather systems, architectural forms, and artworks. A remarkable reversal takes place in the first part of the twentieth century whereby empathy becomes an intra-human ethical act, and autism emerges as its inverse. Digging up and examining the buried relation between autism with an earlier form of ‘empathy’, this book argues that autism, like cinema, models an ethical apprehension of the more-than-human world.The eBook editions of this book are available open access under a CC BY-NC-ND 4.0 licence on bloomsburycollections.com. Open access was funded by The Wellcome Trust.

Threading an enquiry through debates in neurodiversity scholarship and disability studies as well as film theory, this open access book challenges the widespread idea that autism is an epidemic characterised predominantly by a deficit of empathy, arguing that the reverse is true: we are living through an empathy epidemic in which autism is the outcast. In 1908, the British psychologist, Edward Titchener, translated the German term Einfühlung into the English language as ‘empathy’, around the same time that Eugen Bleuler coined the term ‘autism’ for a group of symptoms subset to an emerging classification of schizophrenia. Empathy became a useful tool to describe relations between people in a clinical context, but in the process of its incorporation into psychology, it shed its rich sensory meaning from Einfühlung as ‘feeling-into’ weather systems, architectural forms, and artworks. A remarkable reversal takes place in the first part of the twentieth century whereby empathy becomes an intra-human ethical act, and autism emerges as its inverse. Digging up and examining the buried relation between autism with an earlier form of ‘empathy’, this book argues that autism, like cinema, models an ethical apprehension of the more-than-human world.The eBook editions of this book are available open access under a CC BY-NC-ND 4.0 licence on bloomsburycollections.com. Open access was funded by The Wellcome Trust.

Exploring 18th-century medicine’s construction of individuals with non-standard sexual anatomy as “hermaphrodites”, this book focuses on the genre of the case history from three different languages and national contexts—British, French, and German. Medicalizing Difference examines case studies written about Anne Grandjean, Michel Anne Drouart, Maria Dorothea Derrier, and an unnamed “Angolan hermaphrodite.” Multiple case studies were published about each of these individuals and are discussed throughout the book's four chapters, each of which focuses on one momentous epistemological shift in the eighteenth-century: an increasing focus on empiricism and the related professionalization of medicine, the expanding market for popular scientific literature, changing notions about generation and reproduction, and the exploration of foreign territories.This book reads these case histories against the grain and historicizes 18th-century medicine’s construction of the category of the “hermaphrodite”, demonstrating that, rather than describing a fact, these histories created their subject of study

Exploring 18th-century medicine’s construction of individuals with non-standard sexual anatomy as “hermaphrodites”, this book focuses on the genre of the case history from three different languages and national contexts—British, French, and German. Medicalizing Difference examines case studies written about Anne Grandjean, Michel Anne Drouart, Maria Dorothea Derrier, and an unnamed “Angolan hermaphrodite.” Multiple case studies were published about each of these individuals and are discussed throughout the book's four chapters, each of which focuses on one momentous epistemological shift in the eighteenth-century: an increasing focus on empiricism and the related professionalization of medicine, the expanding market for popular scientific literature, changing notions about generation and reproduction, and the exploration of foreign territories.This book reads these case histories against the grain and historicizes 18th-century medicine’s construction of the category of the “hermaphrodite”, demonstrating that, rather than describing a fact, these histories created their subject of study

The first significant study of cocaine in the literary and cultural imagination of the late 19th and early 20th centuries, this open access book offers an important exploration of the drug's symbolic and metaphorical associations in the decades prior to its criminalization. Examining the paradoxical position of cocaine in this period by looking at its role as an icon of technology, modernity and idealised medical identity, alongside developing notions of habituation and dependence, this book reads texts such as the Sherlock Holmes stories, by Arthur Conan Doyle, as well as work by Arthur Machen, W.C Morrow and Aleister Crowley.The ebook editions of this book are available open access under a CC BY 4.0 licence on bloomsburycollections.com. Open access was funded by The Wellcome Trust.

The first significant study of cocaine in the literary and cultural imagination of the late 19th and early 20th centuries, this open access book offers an important exploration of the drug's symbolic and metaphorical associations in the decades prior to its criminalization. Examining the paradoxical position of cocaine in this period by looking at its role as an icon of technology, modernity and idealised medical identity, alongside developing notions of habituation and dependence, this book reads texts such as the Sherlock Holmes stories, by Arthur Conan Doyle, as well as work by Arthur Machen, W.C Morrow and Aleister Crowley.The ebook editions of this book are available open access under a CC BY 4.0 licence on bloomsburycollections.com. Open access was funded by The Wellcome Trust.

This landmark volume for neurodiversity studies introduces a new, more inclusive field of scholarship for literary and cultural studies. Bringing together scholars and writers from across Europe, it explores the revolutionary potential of neurodivergent scholarly practice and demonstrates that there is no such thing as a 'normal' response to cultural production.Drawing on critical disability studies to highlight the ideology behind dominant notions of ability, it moves beyond representations of neurodivergent characters and highlights the entanglement of sensory and cognitive difference with both cultural practices and social status.Combining the recent turn towards psychiatric depathologisation with insights from feminist, queer, intersectional and critical race theory, this volume aims to amplify the epistemic authority of those who have been subject to marginalisation because of the ways we are taught to read, and value literary culture. In essence, this volume reveals what it means to read, write and love literature and the arts as a neurodivergent person.

This landmark volume for neurodiversity studies introduces a new, more inclusive field of scholarship for literary and cultural studies. Bringing together scholars and writers from across Europe, it explores the revolutionary potential of neurodivergent scholarly practice and demonstrates that there is no such thing as a 'normal' response to cultural production.Drawing on critical disability studies to highlight the ideology behind dominant notions of ability, it moves beyond representations of neurodivergent characters and highlights the entanglement of sensory and cognitive difference with both cultural practices and social status.Combining the recent turn towards psychiatric depathologisation with insights from feminist, queer, intersectional and critical race theory, this volume aims to amplify the epistemic authority of those who have been subject to marginalisation because of the ways we are taught to read, and value literary culture. In essence, this volume reveals what it means to read, write and love literature and the arts as a neurodivergent person.

Looking at experimental disability poetry, this book shows how poets from the 1960s to the present develop disability-informed poetics and use the space of literature to launch alternative theories of psychiatric and physical disabilities.Revising two key binaries that continue to shape accounts of disability writing – experimentation versus identity, and difficulty versus accessibility – this book develops the concept “radical accessibility” to show how the perception of an oppositional relationship between experimental poetics and expressions of disability is a product of ableist concepts of self-reliance and aesthetic production. Using an approach that centers on writers with disabilities, Gould argues that formal experimentation makes poetry more accessible to writers living with disabilities and illnesses by providing the space to create alternative poetic forms for thinking the world and self.Integrating the insights of poetics, health humanities, and disability studies, the book reveals how Amber DiPietra, Larry Eigner, Bhanu Kapil, Denise Leto, Claudia Rankine, Eleni Stecopoulos, Brian Teare, Hannah Weiner, and David Wolach’s experimental poetic forms complicate the medical model of disability and mediate their embodied experiences, material conditions, encounters with Western medicine, and artistic communities.

This agenda-setting edited volume, published open access, makes a forceful case for the contribution that art – its practices and its histories – can make to debates and developments in critical medical humanities today.Whilst medical humanities previously emphasised an instrumental attitude towards art and art-making, recent work has opened up a dynamic space in which art can critically and imaginatively operate. With urgent attention paid to constructions of race, gender, class, sexuality and disability, the artists, art historians, and scholars in related fields represented within this volume address new and pressing questions about structures and experiences of health, medical knowledge, care, therapy, and clinical research and education.With more than 40 contributors from a range of countries including the UK, Canada, the United States, Australia, Norway, Spain, and Germany, this landmark and multi-format collection addresses artworks from the sixteenth century to the present day, serving as a key reference point for researchers, practitioners, and educators working in medical humanities and art-aligned fields alike.The ebook editions of this book are available open access under a CC BY-NC-ND 4.0 licence on bloomsburycollections.com. Open access was funded by the Social Sciences and Humanities Research Council of Canada and the Wellcome Trust.

The first interdisciplinary history of vertigo, this book covers medical accounts from antiquity to the present, testimonies of lived experience, and literary and cultural representations of vertigo.Balanced. Stable. Grounded. Levelheaded. Even-keeled. There is a long list of words that demonstrate how we attach extraordinary value to a metaphorical sense of balance. From Alfred Hitchcock’s cinema, to Salvador Dalí’s art, to the writings of Virginia Woolf and Elizabeth Bishop – authors and artists have repeatedly used their work to invoke vertigo, or the loss of balance, as a metaphor for trauma, disorientation, even existential crisis. But what about those of us who have to live with a vertigo that is all-too real? Based on more than thirty in-depth interviews with people who live with balance disorders, this book explores the connections between vertigo-as-metaphor and vertigo-as-lived experience.

This open access book investigates waiting as one of healthcare’s core experiences. Waiting is there in the time it takes to access services; the uncertain temporalities of diagnosis and treatment; and in the elongated time-frames of recovery, relapse, remission, and dying. Yet it can be felt to be intolerable when we are in need of care and when we want to offer timely care. This book investigates both the difficulties and vital significance of waiting in and for practices of care.Waiting times in many health services across the Global North have been at historic levels since the Covid-19 pandemic. Although this crisis of waiting is culturally and historically specific, Covid-19 made visible broader questions about the relationship between waiting, time, and care, and the fate of welfare infrastructures. Who waits for (and on) whom? If all care entails forms of elongated time, what waiting do we want to eliminate, and what waiting needs to be noticed, supported, and preserved as an offer and practice of care? This book takes the UK National Health Service (NHS) as a particular site of collective waiting and caring. The authors argue that care is not straightforwardly aligned with the time of production, progress, or growth, but is bound instead to the chronicity of practices that sustain interdependence: pausing to assess what is needed, staying alongside suffering, and returning to sites of vulnerability. Cutting across the marketization, provision rationalization, ideas of crisis, and the linear models of time that can dominate health and welfare policies, this book reckons with care’s essential ‘untimeliness’. By moving away from the idea that waiting is merely a form of service failure or abandonment, the authors trace out a more complex understanding of how ‘timely’ care might be offered, made, and sustained. The ebook editions of this book are available open access under a CC BY-NC-ND 4.0 licence on bloomsburycollections.com. Open access was funded by The Wellcome Trust.

This open access book investigates waiting as one of healthcare’s core experiences. Waiting is there in the time it takes to access services; the uncertain temporalities of diagnosis and treatment; and in the elongated time-frames of recovery, relapse, remission, and dying. Yet it can be felt to be intolerable when we are in need of care and when we want to offer timely care. This book investigates both the difficulties and vital significance of waiting in and for practices of care.Waiting times in many health services across the Global North have been at historic levels since the Covid-19 pandemic. Although this crisis of waiting is culturally and historically specific, Covid-19 made visible broader questions about the relationship between waiting, time, and care, and the fate of welfare infrastructures. Who waits for (and on) whom? If all care entails forms of elongated time, what waiting do we want to eliminate, and what waiting needs to be noticed, supported, and preserved as an offer and practice of care? This book takes the UK National Health Service (NHS) as a particular site of collective waiting and caring. The authors argue that care is not straightforwardly aligned with the time of production, progress, or growth, but is bound instead to the chronicity of practices that sustain interdependence: pausing to assess what is needed, staying alongside suffering, and returning to sites of vulnerability. Cutting across the marketization, provision rationalization, ideas of crisis, and the linear models of time that can dominate health and welfare policies, this book reckons with care’s essential ‘untimeliness’. By moving away from the idea that waiting is merely a form of service failure or abandonment, the authors trace out a more complex understanding of how ‘timely’ care might be offered, made, and sustained. The ebook editions of this book are available open access under a CC BY-NC-ND 4.0 licence on bloomsburycollections.com. Open access was funded by The Wellcome Trust.