D/C: Dis/color – serie

Disabled Futures makes an important intervention in disability studies by taking an intersectional approach to race, gender, and disability. Milo Obourn reads disability studies, gender and sexuality studies, and critical race studies to develop a framework for addressing inequity. They theorize the concept of “racialized disgender”-to describe the ways in which racialization and gendering are social processes with disabling effects-thereby offering a new avenue for understanding race, gender, and disability as mutually constitutive.  Obourn uses readings of literature and popular culture from Lost and Avatar to Octavia Butler’s Xenogenesis trilogy to explore and unpack specific ways that race and gender construct-and are constructed by-historical notions of ability and disability, sickness and health, and successful recovery versus damaged lives. What emerges is not only a more complex and deeper understanding of the intersections between ableism, racism, and (cis)sexism, but also possibilities for imagining alternate and more radically inclusive futures in which all of our identities, experiences, freedoms, and oppressions are understood as interdependent and intertwined.

Disabled Futures makes an important intervention in disability studies by taking an intersectional approach to race, gender, and disability. Milo Obourn reads disability studies, gender and sexuality studies, and critical race studies to develop a framework for addressing inequity. They theorize the concept of “racialized disgender”-to describe the ways in which racialization and gendering are social processes with disabling effects-thereby offering a new avenue for understanding race, gender, and disability as mutually constitutive.  Obourn uses readings of literature and popular culture from Lost and Avatar to Octavia Butler’s Xenogenesis trilogy to explore and unpack specific ways that race and gender construct-and are constructed by-historical notions of ability and disability, sickness and health, and successful recovery versus damaged lives. What emerges is not only a more complex and deeper understanding of the intersections between ableism, racism, and (cis)sexism, but also possibilities for imagining alternate and more radically inclusive futures in which all of our identities, experiences, freedoms, and oppressions are understood as interdependent and intertwined.

Just Care is Akemi Nishida’s thoughtful examination of care injustice and social justice enabled through care. The current neoliberal political economy has turned care into a business opportunity for the healthcare industrial complex and a mechanism of social oppression and control. Nishida analyzes the challenges people negotiate whether they are situated as caregivers, receivers, or both. Also illuminated is how people with disabilities come together to assemble community care collectives and bed activism (resistance and visions emerging from the space of bed) to reimagine care as a key element for social change. The structure of care, Nishida writes, is deeply embedded in and embodies the cruel social order-based on disability, race, gender, migration status, and wealth-that determines who survives or deteriorates. Simultaneously, many marginalized communities treat care as the foundation of activism. Using interviews, focus groups, and participant observation with care workers and people with disabilities, Just Care looks into lives unfolding in the assemblage of Medicaid long-term care programs, community-based care collectives, and bed activism. Just Care identifies what care does, and asks: How can we activate care justice or just care where people feel cared affirmatively and care being used for the wellbeing of community and for just world making?

Just Care is Akemi Nishida’s thoughtful examination of care injustice and social justice enabled through care. The current neoliberal political economy has turned care into a business opportunity for the healthcare industrial complex and a mechanism of social oppression and control. Nishida analyzes the challenges people negotiate whether they are situated as caregivers, receivers, or both. Also illuminated is how people with disabilities come together to assemble community care collectives and bed activism (resistance and visions emerging from the space of bed) to reimagine care as a key element for social change. The structure of care, Nishida writes, is deeply embedded in and embodies the cruel social order-based on disability, race, gender, migration status, and wealth-that determines who survives or deteriorates. Simultaneously, many marginalized communities treat care as the foundation of activism. Using interviews, focus groups, and participant observation with care workers and people with disabilities, Just Care looks into lives unfolding in the assemblage of Medicaid long-term care programs, community-based care collectives, and bed activism. Just Care identifies what care does, and asks: How can we activate care justice or just care where people feel cared affirmatively and care being used for the wellbeing of community and for just world making?

The pressures Asian Americans feel to be socially and economically exceptional include an unspoken mandate to always be healthy. Nowhere is this more evident than in the expectation for Asian Americans to enter the field of medicine, principally as providers of care rather than those who require care. Pedagogies of Woundedness explores what happens when those considered model minorities critically engage with illness and medicine whether as patients or physicians. James Kyung-Jin Lee considers how popular culture often positions Asian Americans as medical authorities and what that racial characterization means. Addressing the recent trend of writing about sickness, disability, and death, Lee shows how this investment in Asian American health via the model minority is itself a response to older racial forms that characterize Asian American bodies as diseased. Moreover, he pays attention to what happens when academics get sick and how illness becomes both methodology and an archive for scholars. Pedagogies of Woundedness also explores the limits of biomedical “care,” the rise of physician chaplaincy, and the impact of COVID. Throughout his book and these case studies, Lee shows the social, ethical, and political consequences of these common (mis)conceptions that often define Asian Americans in regard to health and illness.

The pressures Asian Americans feel to be socially and economically exceptional include an unspoken mandate to always be healthy. Nowhere is this more evident than in the expectation for Asian Americans to enter the field of medicine, principally as providers of care rather than those who require care. Pedagogies of Woundedness explores what happens when those considered model minorities critically engage with illness and medicine whether as patients or physicians. James Kyung-Jin Lee considers how popular culture often positions Asian Americans as medical authorities and what that racial characterization means. Addressing the recent trend of writing about sickness, disability, and death, Lee shows how this investment in Asian American health via the model minority is itself a response to older racial forms that characterize Asian American bodies as diseased. Moreover, he pays attention to what happens when academics get sick and how illness becomes both methodology and an archive for scholars. Pedagogies of Woundedness also explores the limits of biomedical “care,” the rise of physician chaplaincy, and the impact of COVID. Throughout his book and these case studies, Lee shows the social, ethical, and political consequences of these common (mis)conceptions that often define Asian Americans in regard to health and illness.

How do we learn to defetishize disability in our everyday lives? In Disabling Relations, Sona Kazemi probes this and other questions that consider how processes and relations of patriarchy, imperialism, and religious fundamentalism, as well as class and ideology, rework the dialectics of disability in transnational contexts. Kazemi focuses on the disabled dissidents who were incarcerated and tortured by the Islamic regime in the aftermath of the 1979 revolution in Iran, the disabled veterans and civilians wounded during and after the Iran–Iraq War, the disabled survivors of state-sanctioned punitive limb amputation, and the disabled women survivors of acid attacks as a form of gender-based violence. Disabling Relations explains how disabled bodyminds are produced and sustained through the violence of patriarchal, capitalist-imperialist, nationalist, and theocratic social relations. Kazemi uses the theoretical concept of “wounding” as a historical process of becoming and remaining disabled mediated by unequal power relations and “disability consciousness” to show how these survivors come to terms with their disability.Thinking about critical disability theory in a new way, Kazemi investigates how disability is produced transnationally and the impact that this new theorization can make globally.In the series Dis/color

How do we learn to defetishize disability in our everyday lives? In Disabling Relations, Sona Kazemi probes this and other questions that consider how processes and relations of patriarchy, imperialism, and religious fundamentalism, as well as class and ideology, rework the dialectics of disability in transnational contexts. Kazemi focuses on the disabled dissidents who were incarcerated and tortured by the Islamic regime in the aftermath of the 1979 revolution in Iran, the disabled veterans and civilians wounded during and after the Iran–Iraq War, the disabled survivors of state-sanctioned punitive limb amputation, and the disabled women survivors of acid attacks as a form of gender-based violence. Disabling Relations explains how disabled bodyminds are produced and sustained through the violence of patriarchal, capitalist-imperialist, nationalist, and theocratic social relations. Kazemi uses the theoretical concept of “wounding” as a historical process of becoming and remaining disabled mediated by unequal power relations and “disability consciousness” to show how these survivors come to terms with their disability.Thinking about critical disability theory in a new way, Kazemi investigates how disability is produced transnationally and the impact that this new theorization can make globally.In the series Dis/color