Literature and Medicine – serie

Some of the world’s greatest literature is devoted to expressing the joys and sorrows humans experience as they grow old. New opportunities and challenges appear: retirement, a special closeness with the family, failing health, the recognition of personal mortality, prejudice against the elderly, and grief over the losses of loved ones and places. This collection of more than 60 short stories, poems, and plays addresses these issues primarily through the works of modern American writers, including Bernard Malamud, Eudora Welty, Saul Bellow, Edward Albee, Robert Frost, Denise Levertov, William Carlos Williams, Ernest Hemingway, Alice Walker, Kurt Vonnegut, and others. The selections represent the experience of aging from the perspective of persons of diverse color, ethnicity, and background, and are complemented by illustrator Elizabeth Layton’s wry and perceptive prints.

I approached the study of historical and contemporary nurses with my sleeves rolled up, pencil sharpened, and camera loaded. What draws a person to those who are ill and keeps us at the bedside? Every question I asked the nurses, I asked myself. Heart first, I plunged into stories about historical nurses whose names I had never heard. Somehow, they chose me as the vehicle for retelling their remarkable story. As I conducted interview after interview, I found threads of sameness in the the lives of my nurses. In childhood, illness and often death was a member of their family. They had strong female role models in their homes. They were independent thinkers and firm decision makers who were not afraid of change and saying the truth about mistakes in their lives. They had spiritual convictions about a well-lived life and made no-never-mind to passing from this world to the next. I listened carefully."Tenderly Lift Me barely scratches the surface of who they are and what they have done for humanity."—Jeanne BrynerThose who teach the literature of medicine have questioned why there is a lack of rich materials that connects nursing and the humanities. Author and poet Jeanne Bryner has gathered biographical sketches of remarkable nurses, each accompanied by poetry and photographs, and has created the multigenre presentation that is the compassionate and complex Tenderly Lift Me.This is the first book in the Literature and Medicine Series that concentrates on nurses' voices and their experiences with providing health care. It enhances and extends perspectives on how health care is understood and delivered by recognizing nurses as the primary care givers.

Plunging into one of Jay Baruch's stories is like finding yourself in a busy Emergency Room at two in the morning—here you will meet characters whose lives are urgent and not always what they seem on the surface. Like his characters, Baruch's writing is vibrant and intense, and his vision is prismatic. He speaks in many voices, among them doctor, patient, family member, medical student, and even ER janitor, and so examines the world of health and illness from many points of view. I appreciate the way Baruch acknowledges the complexity of life, and then dissects it for us into so many planes of action and consequence."- Cortney Davis, author of The Heart's Truth: Essays on the Art of Nursing (Kent State University Press, 2009)An emergency physician and faculty member at Brown Medical School, Jay Baruch has long been fascinated by how illness can make people strangers to their own bodies, how we all struggle to maintain control as the body decays and life slowly becomes unrecognizable, and how health professionals discover and struggle with the limits of their own competence and compassion. In Fourteen Stories, Baruch doesn't present a series of clinically based essays but a rich collection of short fiction that gives voice to a variety of people who, faced with difficult moral choices, find themselves making disturbing self-discoveries.Baruch's unique voice is a welcome addition to the genre of medical narratives—fiction and non-fiction alike—that is becoming increasingly important to medical and nursing schools' and university curricula.

A collection of women's illness narratives Stories of Illness and Healing is the first collection to place the voices of women experiencing illness alongside analytical writing from prominent scholars in the field of narrative medicine. The collection includes a variety of women's illness narratives—poetry, essays, short fiction, short drama, analyses, and transcribed oral testimonies—as well as traditional analytic essays about themes and issues raised by the narratives. Stories of Illness and Healing bridges the artificial divide between women's lives and scholarship in gender, health, and medicine.The authors of these narratives are diverse in age, ethnicity, family situation, sexual orientation, and economic status. They are doctors, patients, spouses, mothers, daughters, activists, writers, educators, and performers. The narratives serve to acknowledge that women's illness experiences are more than their diseases, that they encompass their entire lives. The pages of this book echo with personal accounts of illness, diagnosis, and treatment. They reflect the social constructions of women's bodies, their experiences of sexuality and reproduction, and their roles as professional and family caregivers. Finally, and perhaps most importantly, Stories of Illness and Healing draws the connection between women's suffering and advocacy for women's lives.

Tom Batiuk spent several years as a middle school art teacher before creating the comic strip Funky Winkerbean in 1972. Originally a ""gag-a-day"" comic strip that portrayed life in high school, Funky has evolved into a mature series of real-life stories examining such social issues as teen dating abuse, teen pregnancy, teen suicide, violence in schools, the war in the Middle East, alcoholism, divorce, and cancer. In 1999, Lisa Moore, one of Funky's friends and a main character, discovered she had breast cancer. Batiuk, unsure about dealing with such a serious subject on the funny pages, decided to go ahead with the story line. He approached the topic with the idea that mixing humor with serious and real themes heightens the reader's interest. Lisa and husband Les faced the same physical, psychological, and social issues as anyone else dealing with the disease. After a mastectomy and chemotherapy, Lisa was cancer free. She finished her law degree, opened a practice, and had a baby daughter, Summer. Then, in the spring of 2006, the cancer returned and metastasized. ""Lisa's Story: The Other Shoe"" is a collection of both the 1999 comic strips on Lisa's initial battle with cancer and the current series examining her struggle with the disease and its outcome. Additionally, it contains resource material on breast cancer, including early detection, information sources, support systems, and health care.

This is a literary collection that illumines the darkness of Alzheimer's disease. Alzheimer's disease is now estimated to affect one in two persons over the age of eighty and is being diagnosed in people as young as fifty. For the many people now trying to cope with a loved one suffering from this tragic disease, this collection will provide solace and valuable insight for family members as well as for those in the medical community who work with anyone afflicted with Alzheimer's disease. ""Beyond Forgetting"" is a unique collection of poetry and short prose about Alzheimer's disease written by 100 contemporary writers - doctors, nurses, social workers, hospice workers, daughters, sons, wives, and husbands - whose lives have been touched by the disease. Through the transformative power of poetry, their words enable the reader to move 'beyond forgetting', beyond the stereotypical portrayal of Alzheimer's disease to honor and affirm the dignity of those afflicted. With a moving foreword by poet Tess Gallagher, this anthology forms a richly textured literary portrait encompassing the full range of the experience of caring for someone with Alzheimer's disease. Because the writers share their personal stories as well as their poems and prose, this collection will be a valuable companion to anyone embarking on this difficult journey. In their honest, deeply moving, and compassionate portrayals, the voices collected here help illumine the darkness of this passage and help us see, as one of the contributors put it, 'the unlikely light shining deep within it'.

An anthology that addresses the changing nature of rural medicine in the United States “These authors courageously document the emotional and literally physical vulnerabilities they experience while delivering care in rural communities. … This book exquisitely illustrates the complexity of ‘dual relationships’ and boundary issues in rural practice.”—Family MedicineOver the past thirty years, rural health care in the United States has changed dramatically. The stereotypical white-haired doctor with his black bag of instruments and his predominantly white, small-town clientele has imploded: the global age has reached rural America. Independently owned clinics have given way to a massive system of hospitals; new technology now brings specialists right to the patient’s bedside; and an increasingly diverse clientele has sparked the need for doctors and nurses with an equally diverse assortment of skills.The Country Doctor Revisited is a fascinating collection of essays, poems, and short stories written by rural health care professionals on the experiences of doctors and nurses practicing medicine in rural environments, such as farms, reservations, and migrant camps. The pieces explore the benefits and burdens of new technology, the dilemmas in making ethically sound decisions, and the trials of caring for patients in a broken system. Alternately compelling, thought provoking, and moving, they speak of the diversity of rural health care providers, the range of patients served in rural communities, the variety of settings that comprise the rural United States, and the resources and challenges health care providers and patients face today.

In the summer of 2013, Cortney Davis, a nurse practitioner and author who often writes about her interactions with patients, underwent routine one-day surgery. A surgical mishap led to a series of life-altering and life-threatening complications, resulting in two prolonged hospital stays and a lengthy recovery. During twenty-six days in the hospital, Davis experienced how suddenly a caregiver can become a care receiver and what it’s like to be “on the other side of the sickbed.” As a nurse, she was accustomed to suffering and to the empathy such witnessing can evoke, but as a patient she learned new and transforming lessons in pain, fear, loneliness, abandonment, and dependency; in the fragility of health and life; in the necessity of family support; and, ultimately, in the importance of gratitude.Once at home, Davis wanted to respond to her illness creatively through her writing, but the details seemed too intense, too raw for words. As her recovery progressed, she found release in painting, discovering an immediate connection between heart and hand, between memory and canvas. In a series of twelve paintings, she re-envisioned episodes of her illness, moments that remained and replayed in her consciousness, ultimately providing an education in health care more resonant and more authentic than what she had found in nursing textbooks. Before, serving as a nurse in intensive care, oncology, and women’s health, Davis believed that she understood what hospitalized patients might be experiencing and how they might be coping. Her own illness taught her how little she truly knew and how important it is that all caregivers—professionals and family members alike—become aware of the physical and the inner emotional needs of their seriously ill patients.After the twelve paintings were completed, Davis wrote brief commentaries for each image. She used her remembrances to clarify and expand on her artwork, thereby making her personal story accessible to others.While every patient’s journey and every caregiver’s challenges are unique, these intimate and revealing paintings and reflections offer a glimpse into the universal aspects of illness and recovery.

2015 INDIEFAB Book of the Year Bronze Award for Short FictionShort stories about the complex maze of health careConventional medical narratives often fail to capture the incoherent, surreal, and logic-twisting reality of the contemporary healthcare experience, where mystery, absurdity, and even cruelty are disguised as logic, reason, and compassion. In this new collection of stories by physician and writer Jay Baruch, characters struggle in their quest for meaning and a more hopeful tomorrow in a strange landscape where motivations are complex and convoluted and what is considered good and just operates as a perpetually shifting proposition.Readers are invited to eavesdrop on the conversations and thoughts of those negotiating the healthcare landscape while attempting to maintain their sanity. Each glimpse into the minds of patients, doctors, and family members reveals the stark reality that reason and compassion are not always the lifeblood of a system devoted to healing. From a weary night shift doctor dealing with a chronic patient to a physician figuring out how to tell the next of kin about a relative's death, each of Baruch's characters exposes the multitude of emotions lurking behind the strained and sickly faces in the hospital waiting room.With imagination and an eye for detail, Baruch takes readers on an unsparing ride through the hidden, ignored, or misunderstood challenges facing healers and the ill. It is a world where communities shoulder unrelenting burdens, optimism is held with caution, and people ration their dreams. Baruch's vivid storytelling guides his readers through the incoherent and emotionally fraught reality he has faced during his twenty years as an emergency physician. The stories in What's Left Out ask readers to take risks, to make leaps into unfamiliar territory, and, like the larger healthcare enterprise, to develop comfort and trust in the untraditional and unexpected.

Since its debut in 1987, Crankshaft has engendered reader loyalty and affection with its wry wit, engaging storylines, and identifiable characters. Created by Tom Batiuk and drawn by Chuck Ayers, the strip offers plenty of humour but also tackles serious issues like adult literacy, school violence, and the challenges of aging.Roses in December is a touching collection of two Crankshaft storylines of characters who find themselves dealing with the incurable condition of Alzheimer’s disease. First, Ed Crankshaft’s best friend Ralph is confronted with the trauma of his wife Helen’s worsening Alzheimer’s. He never knows if the love of his life will recognize him on those days that he visits her at Sunny Days Nursing Home. Ralph and Helen’s love story unfolds with humour and heartbreak.In the second story arc, Crankshaft’s neighbour Lucy McKenzie also exhibits symptoms of Alzheimer’s and eventually is moved to Sunny Days Nursing Home by her sister Lillian. The fourteen year struggles of Lucy, Helen, and their loved ones are elegantly told, preserving their dignity and reminding us that sometimes a sense of humour can be our greatest possession during life’s trials.Through the deceptively simple medium of the daily comic strip, Tom Batiuk and Chuck Ayers address the profound effects of Alzheimer’s disease in a thoughtful and occasionally humorous way. Roses in December includes a resource guide for caregivers, patients, and practitioners.

Nathaniel Hawthorne and Edgar Allan Poe were masters of mystery and fantasy, but they also engaged real controversies surrounding individual health, health care practice, and biomedical research in nineteenth-century America. During this volatile era, when mesmerists, phrenologists, and other pseudoscientists reigned and “regular” physicians were just beginning to consolidate power, Hawthorne and Poe provided important critiques of experimental and often haphazard systems of care, as well as insights into the evolving understanding of mental and physical pathologies. As writers, they responded to the social, historical, and medical forces of their own time, yet they also addressed themes of bioethics, humanism, and patient-centered care that remain relevant in the twenty-first century. Mysterious Medicine is the first anthology to bring together Hawthorne’s and Poe’s doctor-scientist tales along with thoughtprovoking introductions and discussion questions that make the anthology suitable for classrooms, book clubs, and individual readers. Every reader will discover new dimensions to classic tales like Hawthorne’s “Rappaccini’s Daughter” or Poe’s “The Fall of the House of Usher” while also exploring lesser-known works like Hawthorne’s “Dr. Bullivant” and Poe’s “The Facts in the Case of M. Valdemar.” As one would expect of America’s dark romantics, the tales feature gothic elements such as crumbing mansions, chaotic madhouses, and pathological killers. They also include medical horrors like premature burial, plague, and poisonings at the hands of quacks, conveying the anxiety Americans felt about unethical experimentation, misunderstood diseases, and the rise of body snatching for anatomical study. Complementary text by L. Kerr Dunn helps situate each tale within the context of nineteenth-century medicine and draws parallels to health-related issues with which we struggle today. The doctor-scientist stories collected in Mysterious Medicine provide evidence that the arts and humanities offer unique ways to explore the social, cultural, political, and personal forces that affect the way we suffer and heal.

Curriculum committees at health professional schools are determined that faculty engage students in reflection. Reflective practice invites students to inquire into their own thoughts, biases, assumptions, feelings, and behaviors and to reconnect with their own sense of purpose and commitment to their work. In Keeping Reflection Fresh, practitioners, educators, and students in medical humanities, bioethics, nursing, emergency medicine, geriatrics, psychiatry, family medicine, surgery, medical education, and other fields join artists, musicians, poets, and writers to present an illuminating and innovative collection of provocative essays. The contributors—including Louise Aronson, Jay Baruch, Alan Bleakley, Rita Charon, Jack Coulehan, Sayantani DasGupta, Therese Jones, and Delese Wear, among many others—offer insights, guidance, and strategies designed to inspire new concepts, connections, and conversations, enrich practices, and stimulate scholarly inquiry.Keeping Reflection Fresh demonstrates the care and commitment of internationally recognized educators who are working toward reimagining health education and re-inspiring health care. It will be welcomed by a broad readership of educators, students, practitioners, and lifelong learners across the healing professions, social sciences, humanities, and artistic disciplines.

Using Camus's classic novel as a touchstone for health humanities educationCamus's The Plague, first published in 1947, is widely regarded as a classic of 20th-century fiction and as an interesting point of reference for the field of health humanities. Woods Nash's edited collection of essays by diverse hands explores how The Plague illuminates important themes, ideas, dilemmas, and roles in modern healthcare, helping readers—and particularly medical students and professionals—understand issues related to their training and practice in a dramatic and stimulating context.The essays here represent various disciplinary and personal perspectives. Nash's compilation is intended as a companion text for undergraduate and graduate courses such as Narrative Medicine, Human Suffering, and Pathographies of Epidemics, as well as traditional courses like the History of Medicine, Bioethics, Medical Ethics, and Literature and Medicine, which are offered increasingly in schools of medicine, public health, nursing, and dentistry.A wide-ranging collection, this book will be useful for students and scholars in literature, philosophy, and cultural studies, as well as to all those in the healthcare field.

Patients and physicians are adrift in this era of rapidly changing medical paradigms. Perhaps it has always been so, though it seems that lately the dissatisfaction on both sides has intensified. Doctors today are struggling: debt, divorce, substance abuse, burnout, suicide. They succeed or fail on professional treadmills; patient encounters measured out with coffee spoons. The doctor-patient relationship is crumbling. Bureaucratic and corporate masters make their never-ending arguments of insidious intent. The overwhelming questions: Now where to turn? How do physicians — and their patients — avoid being crushed by the demands of science, of perfection, of expectations? How do we recover the awe we once felt in this world in which we expend our life force every day? How can we find joy once more? Human Voices Wake Us is a plea, a prayer, a path for caregivers and patients, for all of us who struggle in difficult circumstances for understanding, enlightenment, and healing. is book is a treatise on the importance of self-reflection, attentiveness to our own inner voice and needs, as well as to those who are struggling with illness, age, infirmity, and loss. It is a call to nurture our idealism: that solid foundation grounding empathic responsiveness and our own humanity.

What is it like to be a student nurse? What are the joys, the stresses, the transcendent moments, the fall-off-your-bedlaughing moments, and the terrors that have to be faced and stared down? And how might nurses, looking back, relate these experiences in ways that bring these memories to life again and provide historical context for how nursing education has changed and yet remained the same?In brave, revealing, and often humorous poetry and prose, Learning to Heal explores these questions with contributions by nurses from a variety of social, ethnic, and geographical backgrounds. Readers meet a black nursing student who is surrounded by white teachers and patients in 1940, a mother who rises every morning at 5 a.m. to help her family ready for their day before she herself heads to anatomy class, and an itinerant Jewish teenager who is asked, “What will you become?” These individuals, and many other women and men, share personal stories of finding their way to nursing school, where they begin a long, often wonderful, and sometimes daunting, journey. Many of the nurse-authors are experienced, wellpublished writers; others are academics, widely known in their fields; but each offers a unique perspective on nursing education. Notably, an essay by Minnie Brown Carter and an interview with Helen L. Albert provide valuable ethnographies of underrepresented voices.Through strong, moving essays and poems that explore various aspects of student nursing and provide historical perspective on nursing and nursing education, all have stories to tell. Learning to Heal tells them in ways that will appeal to many readers, both in and out of the nursing and medical professions, and to educators in the medical humanities.

Learning how to behave and engage professionally can be one of the most challenging parts of embarking on a career in the medical field. But using the 'power of stories' can teach, heal, and enlighten, encourage the development of empathy, and help healthcare providers appreciate who their patients are, not just what disease they have. The humanities offer knowledge and skills that may move students toward becoming better physicians. The incorporation of the humanities into the traditional medical education curriculum can truly make a difference.In this expansive anthology, Susan Stagno and Michael Blackie assemble an insightful group of contributors to discuss the ways in which medical professionals can powerfully engage with their students through a variety of literary texts. Examples as diverse as Charles Bukowski, Leo Tolstoy, William Carlos Williams, Sherwood Anderson, Mary Shelley, Stephen King, the comic strip Pearls Before Swine, and the sayings of Buddha will provide both teachers and students a rich cache of stories for discussion and inspiration.

"English," wrote Virginia Woolf, "which can express the thoughts of Hamlet and the tragedy of Lear, has no words for the shiver and the headache. . . . let a sufferer try to describe a pain in his head to a doctor and language at once runs dry."Despite Woolf's astute observation and the apparent dearth of writings on such subjects, editor Kathleen O'Shea has managed to gather a wide selection of helpful excerpts, chapters, poetry, and even a short play in this anthology—all with a view toward increasing our understanding and ending the stigma attached to migraines and migraine sufferers. Unlike clinical materials, this anthology addresses the feelings and symptoms that the writers have experienced, sometimes daily. These pieces speak freely about the loneliness and helplessness one feels when a migraine comes on. The sufferer faces nausea, pain, sensitivity to light, and having the veracity of all these symptoms doubted by others. O'Shea, a professor of literature and a migraine sufferer herself, also includes an original essay of her own reflections.Offered as an alternative not only to medical writing but also to self-help books and internet blogs, So Much More Than a Headache addresses a real omission in the available works on migraine, provides a resource for those who may have underestimated the depth and range of writing on this subject, and challenges the cultural bias that dismisses migraine as "just a headache."