Newborn screening samples are used to test more than 4 million infants each year for life-threatening diseases that are treatable if found at birth. These specimens also represent a potentially invaluable resource for public health and biomedical research. The IOM held a workshop to examine issues surrounding the use of residual specimens for translational research.
1 Front Matter; 2 1 Introduction; 3 2 Newborn Screening as a Public Health Program; 4 3 Uses of Residual Newborn Screening Samples in Research; 5 4 Concerns About the Use of Residual Newborn Screening Samples; 6 5 Review and Consent in the Use of Residual Newborn Screening Samples; 7 6 Parental and Public Education; 8 7 Workshop Overview and Wrap-Up; 9 References; 10 Appendix A: Workshop Agenda; 11 Appendix B: Speaker Biographical Sketches
and Medicine National Academies of Sciences, Engineering, Institute of Medicine, Board on Health Sciences Policy, Forum on Neuroscience and Nervous System Disorders, Clare Stroud, Sheena Posey Norris, Lisa Bain
National Academy of Engineering, National Academy of Sciences, Policy and Global Affairs, Institute of Medicine, and Public Policy Committee on Science, Engineering, Panel on Scientific Communication and National Security
Institute of Medicine, Division of Health Promotion and Disease Prevention, Division of Health Sciences Policy, Committee for Evaluating Medical Technologies in Clinical Use
Center for Medical Technology Policy, Institute of Medicine, Board on Health Sciences Policy, Roundtable on Translating Genomic-Based Research for Health, Steve Olson, Adam C. Berger
Institute of Medicine, Board on Health Sciences Policy, Roundtable on Translating Genomic-Based Research for Health, Steve Olson, Sarah H. Beachy, Samuel G. Johnson, Adam C. Berger
Institute of Medicine, Board on Health Sciences Policy, Roundtable on Translating Genomic-Based Research for Health, Adam C. Berger, Steve Olson, Samuel G. Johnson, Sarah H. Beachy
Institute of Medicine, Board on Health Sciences Policy, Roundtable on Translating Genomic-Based Research for Health, Adam C. Berger, Steve Olson, Samuel G. Johnson, Sarah H. Beachy
Institute of Medicine, Board on Health Sciences Policy, Roundtable on Translating Genomic-Based Research for Health, Adam C. Berger, Steve Olson, Samuel G. Johnson, Sarah H. Beachy
Institute of Medicine, Board on Health Sciences Policy, Roundtable on Translating Genomic-Based Research for Health, Steve Olson, Adam C. Berger, Sarah H. Beachy