Care of Adults with Chronic Childhood Conditions

Alice Kuo is Professor and Chief of Medicine-Pediatrics and Preventive Medicine at the David Geffen School of Medicine at UCLA and Professor of Health Policy and Management in the UCLA Fielding School of Public Health. Her research interests include access to and delivery of developmental services, cognitive and language development in young minority children, and services for children and adults with autism and other neurodevelopmental disabilities. She has published over 80 peer-reviewed articles and 15 book chapters and edited two books on these topics.Since 2020, Dr. Kuo has been the Principal Investigator of the Autism Intervention Research Network on Physical Health (AIR-P, www.airpnetwork.ucla.edu). In addition to her research, Dr. Kuo has been involved in educational programs at several levels, including the Maternal and Child Health Bureau (MCHB)-funded University of California Leadership Education in Neurodevelopmental Disabilities (UC-LEND) program (www.uc-lend.med.ucla.edu) and the UCLA Maternal and Child Health Center of Excellence (www.mch.ucla.edu). At the post-graduate level, Dr. Kuo was the founding Director of the UCLA Combined Internal Medicine and Pediatrics Residency Program and led the program for 19 years, and she continues to be Director of the combined Internal Medicine/Preventive Medicine residency program at UCLA. At the national level, she was the chair of the Health Care Transition Committee for the Medicine-Pediatrics Program Directors Association for 10 years from 2012 to 2022.Clinically, Dr. Kuo sees primary care patients of all ages and is board certified in pediatrics, internal medicine and preventive medicine. Dr. Kuo received a B.A. in biology from Harvard University, her M.D. from UCLA, her Ph.D. in educational psychology with a focus on early childhood and special education from UCLA and her M.B.A. in Healthcare Administration from the University of Massachusetts Isenberg School of Management. She completed her medicine-pediatrics residency at Cedars-Sinai Medical Center in Los Angeles and her preventive medicine training at the Centers for Disease Control and Prevention in Atlanta.Mariecel Pilapil, MD, MPH is Associate Professor of Medicine and Pediatrics at the Zucker School of Medicine at Hofstra/Northwell. She is a primary care physician in the Divisions of General Internal Medicine and General Pediatrics and cares for patients with chronic childhood conditions across the life spectrum. She is also a Co-Director of the Complex Care Clinic in General Pediatrics at Cohen Children’s Medical Center, which is a program that cares for children with medical complexity.            David DeLaet, M.D., M.P.H., is Associate Professor in the Department of Medicine, Division of General Internal Medicine at the University of Cincinnati College of Medicine in Cincinnati, Ohio.  He also is Adjunct Associate Professor of Clinical Medicine at the Icahn School of Medicine in New York.  Additionally, he is Associate Professor in the College of Arts and Sciences and Medical Director for the Physician Associate Studies Program at Miami University in Oxford, Ohio.  He is a Fellow of the American College of Physicians and Fellow of the American Academy of Pediatrics.  Cynthia Peacock, M.D. is Associate Professor of Medicine and Pediatrics at Baylor College of Medicine in Houston, Texas. Dr. Peacock is the founder of the Texas Children’s Hospital-Baylor College of Medicine Transition Medicine Clinic and currently one of its Medical Directors.  She is also Section Chief of Adult Developmental Medicine in the Medicine Department at Baylor College of Medicine.  In addition, Dr. Peacock is Director of Adult Transition Medicine Program for Texas Children’s Hospital. Her expertise is on the care of adults with chronic conditions of childhood and the use of the medical home model to deliver transition health care needs. Niraj Sharma, MD, MPH is an Assistant Professor of Internal Medicine and Pediatrics at Harvard Medical School.  He is the Director of the Medicine-Pediatrics Unit in the Brigham and Women’s Hospital (BWH) Department of Internal Medicine, Division of General Medicine.  He is also Co-Director of the BWH Transition Care Team and is the Associate Director of the Bridges Adult Transition Program at Boston Children’s Hospital (BCH).  He is also the Director Emeritus of the Internal Medicine-Pediatrics Residency Training Program at BWH/BCH.  He is a national leader in the field of transition medicine with numerous peer reviewed publications, presentations, and grants in the field.  He has built clinical programs to improve the transition process at BWH, BCH, and Mass General Brigham Health Care.  He has also held a number of national positions, including former Co-Site Directorand Cabinet Member of the Got Transition National Learning Collaborative and Director of the Medicine-Pediatrics Program Directors Association Transition Committee.

• Defining Transition.- The overall landscape of transition.- Existing models of transition.- Telemedicine as tool to optimize transition care.- US Training Competencies related to transition.- Payment for  transition services in US.- Emerging Adulthood as a Developmental Stage.- Health Care of Emerging Adults.- Addressing Emerging Adulthood During a Visit.- Using the HEADSS Assessment.- A Paradigm Shift for the Preventive Visit.- Well Care of the Emerging and Young Adult.- Care Management Skills.- USPSTF Recommendations.- Immunizations.- Telehealth.- Considerations for Emerging and Young Adults with Chronic Childhood Conditions.- PCMH and Billing.- Chronic Care Model.- Steps for caring for adults with COCC.- Sexual and Reproductive health.- Gender Identity and Related Health Considerations.- Sexual Abuse in Individuals with Intellectual Disability.- Care of Sexual and Gender Minority Patients.- Medical Care for Transgender and Gender-Diverse People.- Special Considerations of Emergency Preparedness.- Addressing structural racism.- Integrating Neurodiversity and Disability Rights into Primary Care Practices.- Managing Stress as an Emerging Adult.- Adverse Childhood Events and Trauma-Informed Care.- Transitions for Young Adults with Psychosis and Mania.- Emerging Adulthood and Depression: An Overview of Chronic Illness and Treatment.- Managing OCD and Anxiety as Emerging Adults.- Substance Use Disorders.- College Mental Health Chronic pain.- Eating disorders.- Attention Deficit/Hyperactivity Disorder.- Autism.- Cerebral Palsy.- Childhood and Adolescent Cancer Survivors.- Congenital Heart Disease.- Cystic Fibrosis.- Transitioning Adolescents and Young Adults with Type 1 Diabetes to Adulthood.- Down Syndrome.- Human Immunodeficiency Virus.- Inflammatory Bowel Disease.- Intellectual Disability.- Juvenile Idiopathic Arthritis.- Muscular Dystrophy.- Sickle Cell Disease.- Solid Organ Transplantation.- Spina Bifida.- Inherited Metabolic Disorders.- Endocrine Disorders.- Respiratory Care of Adults with Chronic Pulmonary Disease and Assisted Ventilation.- Nutritional Support.- Technology Dependence of the Nervous System.- Mobility Impairment.- Palliative Care and Hospice.- Health Care Procedures.- Preoperative clearance.- Patient Safety for Hospitalized Young Adults and Adults with Chronic Childhood Conditions.- Institutional Considerations for Transitions of Care.- Inpatient Care of Adults with Conditions of Childhood.- Contact with Primary Care Providers.- Care in the Emergency Department.- In-Hospital Rapid Response and Clinical Emergencies.- Considerations for Hospitalized Adults with Chronic Childhood Conditions.- Assessing and Enhancing Psychosocial Functioning.- Adherence and Self-Management.- Education.- Employment.- Independent living.- Decision-making and Guardianship.- Access to Health Insurance.