Bokus
Catherine Arnott Smith, Alla Keselman - Consumer Health Informatics, Inbunden

Inbunden, Engelska, 2020

Consumer Health Informatics

Enabling Digital Health for Everyone

Av Catherine Arnott Smith, Alla Keselman

Del i serien Chapman & Hall/CRC Healthcare Informatics Series

1865 kr

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Beskrivning
"An engaging introduction to an exciting multidisciplinary field where positive impact depends less on technology than on understanding and responding to human motivations, specific information needs, and life constraints."-- Betsy L. Humphreys, former Deputy Director, National Library of MedicineThis is a book for people who want to design or promote information technology that helps people be more active and informed participants in their healthcare. Topics include patient portals, wearable devices, apps, websites, smart homes, and online communities focused on health.Consumer Healthcare Informatics: Enabling Digital Health for Everyone educates readers in the core concepts of consumer health informatics: participatory healthcare; health and e-health literacy; user-centered design; information retrieval and trusted information resources; and the ethical dimensions of health information and communication technologies. It presents the current state of knowledge and recent developments in the field of consumer health informatics. The discussions address tailoring information to key user groups, including patients, consumers, caregivers, parents, children and young adults, and older adults. For example, apps are considered as not just a rich consumer technology with the promise of empowered personal data management and connectedness to community and healthcare providers, but also a domain rife with concerns for effectiveness, privacy, and security, requiring both designer and user to engage in critical thinking around their choices.This book’s unique contribution to the field is its focus on the consumer and patient in the context of their everyday life outside the clinical setting. Discussion of tools and technologies is grounded in this perspective and in a context of real-world use and its implications for design. There is an emphasis on empowerment through participatory and people-centered care.
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Catherine Arnott Smith, PhD, is a Professor in the Information School and a Discovery Fellow, Virtual Environments Group, Wisconsin Institutes for Discovery, University of Wisconsin-Madison. She is a former medical librarian who moved into biomedical informatics for her PhD through the Center (now Department) of Biomedical Informatics at the University of Pittsburgh (2002), where she was a National Library of Medicine medical informatics predoctoral trainee. Her research centers on consumer interactions with clinical information systems, mediated through text, in settings that range from patient portals to public libraries to disabilities support centers.Alla Keselman, PhD, is a Senior Social Science Analyst in the Office of Engagement and Training, National Library of Medicine, Bethesda, MD. She holds a PhD in human cognition and learning and an MA in biomedical informatics from Columbia University. Dr. Keselman coordinates NLM efforts in evaluating the impact of its health information outreach and community engagement programs. Her research interests include lay understanding of complex health concepts, scientific literacy, and the provision of health information outside clinical settings. She has done work on bringing health and environment-related topics to the science classroom and conducted research into the role of libraries in providing health information to the public.

Recensioner i media

“An engaging introduction to an exciting multidisciplinary field where positive impact depends less on technology than on understanding and responding to human motivations, specific information needs, and life constraints”-- Betsy L. Humphreys, former Deputy Director, National Library of MedicineMatthew H Tepper, BS(Rocky Vista University College of Osteopathic Medicine)**Description**This book explains how consumers of healthcare can use health informatics anddigital health to take a more active role in their medical care. The first partexplains that healthcare is changing, allowing patients to take on moreresponsibility for their health, and describes common problems consumersencounter when looking for information and how consumers can best search forinformation online. The second part goes into specifics about the differentdigital health tools consumers can use to take a more active role in their healthcare.**Purpose**The purpose is to discuss the core concepts of consumer health informatics,including a comprehensive summary of current knowledge and recent developmentsin the field. The authors encourage consumers to use informatics to take a moreactive role in their healthcare outside of the clinical setting. These areworthy objectives considering medicine is shifting away from medicalpaternalism and towards patient empowerment; at the same time, digital healthis becoming more accessible and user friendly. These objectives are thoroughlymet in this book.**Audience**The authors broadly state this book is for people who want to design or promoteinformation technology that helps people be more active and informedparticipants in their healthcare. Additionally, this book may be of interest toinformed patients or to medical providers looking to help their patients take amore active role in their healthcare. Both authors have a background in health informatics.**Features**The six chapters in the first part focus on the foundations of consumer healthinformatics. This part establishes that there has been a shift to participatoryhealthcare and goes on to explain how consumer health informatics can supportthis shift. This section goes into detail about the best ways to search fortrustworthy and accurate medical information for all types of healthcareconsumers. Each of the five chapters in the second part focuses on a differenttool consumers can use to support their healthcare. These tools includepersonal health records and patient portals, apps, smart medical homes, andonline patient communities. Each chapter explains the current state of thetechnology and how to effectively use it in different scenarios. The bookconcludes with a chapter on ethics focusing on direct-to-consumer geneticsproducts, like 23andMe.**Assessment**This quality book provides a thorough, detailed overview of consumer healthinformatics and an introduction to growing digital health technologiesavailable to consumers. While the common theme is to encourage consumers totake a more active role in their healthcare, the two parts of this book feelslike separate topics: consumer health informatics and digital health products.Nevertheless, this book would be a great resource for someone interested ineither of these topics. It provides additional value by using many examples ofresources and technologies that have been vetted by the authors. Overall, thisbook has many aspects that make it worth reading by anyone interested infacilitating patient empowerment or using digital health tools.-----------------------------------------------------------Weighted Numerical Score: 89 - 3 Stars

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