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Beskrivning
This book is a collection of stories that represent the journeys of the many families who have children with long-term or complex conditions. It is useful for anyone working for children with chronic and complex conditions, including nurses and health professionals, as well as psychology students.
"This book describes the raw emotions of children, families, and providers caring for children with chronic conditions… Books often focus on one family narrative. This book provides a unique view of diverse family experiences. The royalties from book sales are donate to a healthcare system where many of these children/families may have received care." –Anne Turner-Henson, PhD, RN, FAAN(University of Alabama at Birmingham), Doody’s Book Review Service
Innehållsförteckning
1. How to Use This Book 2. Patient Journeys 3. Themes for Discussion 4. Reflections on Learning through Patient Journeys 5. Getting in Touch: Reflections on Clinical Attentiveness 6. Reflections of a Parent