Chloe Macaulay, Polly Powell, Caroline Fertleman

"This book describes the raw emotions of children, families, and providers caring for children with chronic conditions… Books often focus on one family narrative. This book provides a unique view of diverse family experiences. The royalties from book sales are donate to a healthcare system where many of these children/families may have received care." –Anne Turner-Henson, PhD, RN, FAAN(University of Alabama at Birmingham), Doody’s Book Review Service

• 1. How to Use This Book 2. Patient Journeys 3. Themes for Discussion 4. Reflections on Learning through Patient Journeys 5. Getting in Touch: Reflections on Clinical Attentiveness 6. Reflections of a Parent