Research Ethics in Context

Professor Julie Scott Jones is a professor of sociology and the former Head of the Department of Sociology at Manchester Metropolitan University.  Julie has had a career long interest in social science research methods, editing seven books on the subject, including volumes on applied ethics.   She was the founder and original Director of the Manchester Metropolitan University Q-Step Centre, which received £1.15 million in funding from the Nuffield Foundation-ESRC-HEFCE.  Q-Step was an ambitious programme to change the training of quantitative methods and data literacy in social science students. She has co-authored several journal articles on the pedagogy of quantitative methods teaching, based on her current research in this field.  In 2022 her co-authored textbook Exploratory and Descriptive Statistics (2022) was published by SAGE.  Julie currently teaches quantitative data analysis and data management to final year undergraduate students.

• VOLUME ONE: HISTORICAL CONTEXTMedical Ethics: Principles, Persons, and Perspectives: From Controversy to Conversation - K. BoydHuman Experimentation in Historical and Ethical Perspectives - Norman Howard-JonesEthics and Clinical Research - Henry BeecherExploitation and Enrichment: The Paradox of Medical Experimentation - M. BrazierEthical Aspects of Experimentation with Human Subjects - Henry BeecherHuman Experimentation: Historical Perspective of Breaches of Ethics in US Health Care - Elizabeth LaymansProtection of Human Subjects of Research: Recent Developments and Future Prospects for the Social Sciences - Eleanor Singer and Felice LevineLearning from Tuskegee: From Moral Outrage to Integrative Ethics - Ann GallagherThe Nuremberg CodeThe Belmont Report - The National Commission for the Protection of Human Subjects of Biomedical and Behavioral ResearchUniversal Declaration on Bioethics and Human Rights - UNESCOWMA International Code of Medical Ethics - World Medical AssociationWMA Declaration of Helsinki – Ethical Principles for Medical Research Involving Human Subjects - World Medical AssociationEthics and Standards in Medicine – Much More Than Abortion and Euthanasia - Bryan VernonLaying Ethical Foundations for Clinical Research - Jon Harkness, Susan Lederer and Daniel WiklerOn Ethical Principles for Social Research - Martyn HammersleyBetween the Accountable and the Auditable: Ethics and Ethical Governance in the Social Sciences - Nathan EmmerichCreeping Ethical Regulation and the Strangling of Research - Martyn HammersleyThe Ethical Case against Ethical Regulation in Humanities and Social Science Research - Robert DingwallAdjudicating Entitlements: The Emerging Discourses of Research Ethics Boards - Elvi WhittakerIRB Reformation: Is Unfettered Access the Answer? - Kristine Florczak and Nancy LockieProtecting Vulnerable Research Participants: A Foucault-Inspired Analysis of Ethics Committees - Truls Juritzen, Harald Grimen and Kristin HeggenAn Alternative Ethics? Justice and Care as Guiding Principles for Qualitative Research - Martyn Hammersley and Anna TraianouVOLUME TWO: CLASSIC CASES REDUXA Historical Interpretation of Deceptive Experiments in American Psychology - C. HerreraBehavioral Study of Obedience - Stanley MilgramSome Thoughts on Ethics of Research: After Reading Milgram’s “Behavioral Study of Obedience” - Diana BaumrindIssues in the Study of Obedience: A Reply to Baumrind - Stanley MilgramOn the Ethics of Intervention in Human Psychological Research: With Special Reference to the Stanford Prison Experiment - Philip ZimbardoControversial Psychological Research Methods and Their Influence on the Development of Formal Ethical Guidelines - Katie Youngpeter“Torture at Yale”: Experimental Subjects, Laboratory Torment and the “Rehabilitation” of Milgram’s “Obedience to Authority” - Ian NicholsonWhat Can Milgram and Zimbardo Teach Ethics Committees and Qualitative Researchers about Minimizing Harm? - Martin TolichEthical Issues and Guidelines for Conducting Data Analysis in Psychological Research - Rachel WassermanOn Being Sane in Insane Places - D. RosenhanLaud Humphreys and Research Ethics - Earl BabbieControversies Surrounding Laud Humphreys’ Tearoom Trade: An Unsettling Example of Politics and Power in Methodological Critiques - Michael LenzaWhose Side Are We On? - Howard BeckerProtecting Research Subjects and Unintended Consequences: The Effect of Guarantees of Confidentiality - F.G. ReamerThe Myth of Informed Consent: In Daily Practice and in Clinical Trials - William SilvermanThe Ethics of Open Methods - Roger HomanSubject, Project or Self – Thoughts in Ethical Dilemmas for Social and Medical Researchers - Jane Batchelor and Catherine BriggsThe Ethics of Ethnography - Elizabeth Murphy and Robert DingwallResearching Researchers: Lessons for Research Ethics - Rose Wiles, Vikki Charles, Graham Crow and Sue HeathVOLUME THREE: CORE CONCEPTSEthics and the Practice of Qualitative Research - Ian ShawEmpty Ethics: The Problem with Informed Consent - Oonagh CorriganInformed Consent in International Research - Patricia MarshallExploring the Meaning of Consent: Participation in Research and Beliefs about Risks and Benefits - Eleanor SingerWhat Do Prospective Research Participants Want to Know? What Do They Assume They Know Already? - James Walkup and Elinor Bock Ethics at Home: Informed Consent in Your Own Backyard - Susan MaloneImproving Consent with Minority Participant from Researcher and Community Surveys - Sandra Crouse Quinn et al.Research Ethics and Data Quality: The Implications of Informed Consent - Graham Crow, Rose Wiles, Sue Heath and Vikki CharlesInformed Consent, Gatekeepers and Go-Betweens: Negotiating Consent in Child- and Youth-Centred Institutions - Sue Heath, Vikki Charles, Graham Crow and Rose WilesAn Experiment with a Confidentiality Reminder in a Telephone Survey - J. FreyConfidentiality for Whom? - Ian RobinsonConfidentiality and Autonomy: The Challenge(s) of Offering Research Participants a Choice of Disclosing Their Identity - James Giordano et al.Against Confidentiality? Privacy, Safety and the Public Good in Professional Communications - Chris ClarkTalking about Suicide: Confidentiality and Anonymity in Qualitative Research - Susanne Gibson, Outi Benson and Sarah BrandDilemmas in Doing Insider Research in Professional Education - Caroline HumphreyWhose Data Are They Anyway? Practical, Legal and Ethical Issues in Archiving Qualitative Research Data - Odette Parry and Natasha MauthnerSome Ethical and Methodological Issues in Research with People with Learning Difficulties - Kirsten StalkerResearch with Children: The Same or Different from Research with Adults? - Samantha PunchThe Ethical and Methodological Complexities of Doing Research with ‘Vulnerable’ Young People - Gill Valentine, Ruth Butler and Tracey SkeltonThe Ethical Maze: Finding an Inclusive Path towards Gaining Children’s Agreement to Research Participation - Alison CocksOld Methods and New Technologies: Social Media and Shifts in Power in Qualitative Research - Jennifer ReichAnonymisation and Visual Images: Issues of Respect, ‘Voice’ and ‘Protection’ - Rose Wiles et al.