Patients, Caregivers and Doctors

Laurence Corroy is a professor at CREM, France. Her work focuses on media and health education.Christelle Chauzal-Larguier is a lecturer in Management Sciences at Université Clermont Auvergne, France, in the Communication and Societies laboratory. Her work focuses on corporate communication and CSR.

• Preface xiLaurence CORROY and Christelle CHAUZAL-LARGUIERAuthor Biographies xxvPart 1 Stakes and Opportunities of Digital and Playful Devices for Patients, Caregivers and Care Providers 1Chapter 1 The Use of Games as an Innovative Prevention Method for Discussing Work with Hospital Healthcare Staff 3Julie PAVILLET and Aurélia DUMAS1.1 Introduction 31.2 Methodology of the research 51.2.1. Collaborative research and participatory methodology .. 51.2.2 Exploratory survey in the USLD: some elements of the organizational context 71.3 The use of games as a method of occupational health prevention 91.4 Results of the exploration and experimentation stage 111.4.1 Contributions of the game: gaps and displacements 111.4.2 The game to approach the relational and affective dynamics within the construction of the caregiver and the work group 131.5 Conclusion and perspectives 171.6 References 18Chapter 2 The Digital Space as a Resource for Accessing an Alternative Discourse of Caregivers on Caregiving 21Nathalie GARRIC and Frédéric PUGNIÈRE-SAAVEDRA2.1 Introduction 212.2 The caregiver: a suffering social figure whose status has recently been recognized 232.3 A digital field constructed in correlation with a reference corpus of caregivers’ words 252.4 Theoretical framework 272.5 Some results 292.5.1 The caregiver: an actor who receives little attention in the media and political arena 292.5.2 A strong singularity of the digital corpus in a positive dimension 322.6 Division and/or continuity of the caregiver status constructed by blogs 382.7 Conclusion 432.8 References 44Chapter 3 Co-design with Patients with Chronic Diseases for Information and Training Materials Related to Connected Implants 47Ambre DAVAT and Fabienne MARTIN-JUCHAT3.1 Introduction 473.2 Co-design based on affect stories 493.3 Application to the RealWorld4Clinic project 513.3.1 Constitution of the group 513.3.2 Course of the sessions 523.3.3 Identification of issues through affect stories 523.3.4 Main questions and development of hypotheses 533.3.5 Development of the method 543.3.6 Review of the study’s progress 543.4 Assessment of the first phase of the study 563.4.1 Sample 563.4.2. Patient profile/temporality in the adaptation to the disease 573.4.3 Acceptance/rejection of implants 593.4.4 Sources of anxiety related to implantation 603.4.5 Impact of telemonitoring on the care pathway 603.5 Conclusion: co-design, one of the conditions for an ethics of innovation in health? 613.6 Acknowledgments 623.7 References 63Chapter 4 Institutional Communication in Healthcare Organizations as a Marker of Patient Orientation: The Case of Institutional Websites 65Corinne ROCHETTE and Emna CHERIF4.1 Introduction 654.2 Patient orientation, between culture and behavior 674.3 Methodology and research proposals 704.4 Main results 724.5 Discussion and conclusion 754.6 Appendix: Terminology reminders 774.7 References 78Chapter 5 Digital Communication and Merchandising for Caregivers: The Case of Thermal Baths 81Christelle CHAUZAL-LARGUIER and Alexis MEYER5.1 Introduction 815.2 The question of adapting the spa offer to a specific audience 865.2.1 The caregiver: a legitimate target for the spa industry 865.2.2 Short-term thermal care for caregivers in search of differentiating content 895.3 The seduction strategy of caregivers in question 925.3.1. The informational approach to communication is preferred .. 925.3.2 Good referencing of the websites of thermal establishments is poorly exploited 955.4 Conclusion 985.5 References 100Part 2 Narrative Medicine and Patient and Caregiver Hermeneutics 103Chapter 6 When the Doctor Becomes a Patient: The Relationship Between the Caregiver and the Breast Cancer Patient in Demain nous appartient 105Laurence CORROY and Emilie ROCHE6.1 Introduction 1056.2 Narrative of the disease 1076.3 Emotional journey of the patient physician 1096.4 The role of caregivers 1156.5 Conclusion 1236.6 References 124Chapter 7. Taming Cancer. Affected Bodies, Mirrored Emotions and Challenges for Patients and Their Loved Ones 127Anne VEGA and Ibtissem BEN DRIDI7.1 Introduction – a limited recognition of the role of relatives? 1277.2 The invisible work of family caregivers in the care trajectory of the patient 1297.2.1 Memorizing and/or translating and coordinating consultations 1307.2.2 Accompanying: trying to reduce anxiety, restoring image and dignity 1317.2.3 (Re)building or unraveling relationships: limits to commitments 1337.3 The centrality and vitality of caregivers 1357.3.1. To have ties and networks of medical inter-knowledge 1357.3.2 Having administrative and financial assistance 1367.3.3 Behind the duty to support: helping keep morale up, social utility and trying to survive 1377.4 Conclusion – helping to maintain dignity and morale: another form of empowerment to be recognized 1417.5 References 142Chapter 8 About Long Illnesses Family Caregivers: Actors and Producers of Care and Health The Case of Algeria 145Aicha BENABED8.1 Introduction 1458.2 Family help in the Algerian context 1488.3. Family help and secular care: an alternative to medical work .. 1508.4 The motivations for taking care of the sick relative 1568.5 The impact of care on the health of the patient’s relative 1578.6 Conclusion 1598.7 References 159Chapter 9 Affective Dynamics of Caregivers to Those with Alzheimer’s and Resilience Self-(re)Construction through Two Devices: A Digital Platform and a Biographical Interview 161Abdelhadi BELLACHHAB, Olga GALATANU and Valérie ROCHAIX9.1 Introduction 1629.2 The biographical interview versus the discussion forum: two distinct devices of self-construction 1639.3 Spaces of expression 1659.3.1 The forum, constrained freedom and conventional authenticity? 1659.3.2 The interview, a “position of social gaze” 1679.4 Theoretical and epistemological framework 1689.4.1 Definitions of concepts: affects, emotions and feelings 1709.4.2 Classes of emotions 1719.5 The emotional experience of caregivers through two communication devices 1739.5.1 Tool-based approach to the corpus 1739.5.2 The emotional experience reconstructed lexically in the forum 1779.5.3 The emotional experience reconstructed lexically in the interviews 1819.6 Conclusion 1849.7 References 185Chapter 10 Co-constructing a Territory that Provides Assistance 189André SIMONNET, Julia GUDEFIN and Maya CHABANE10.1 Introduction 18910.2 For a territory that helps caregivers: Escale des aidants 19310.3 A reflective approach in the sociology of action 19610.3.1. Workshops by and for caregivers as a research field .. 19610.3.2 Between tools and first results, what are the challenges of aid at the local level? 19810.4 Conclusion: what place for caregivers in the health and social systems? 20310.5 References 206List of Authors 207Index 211