Metamorphosis

Who We Become After Facial Paralysis

AvFaye Linda Wachs

Häftad, Engelska, 2023

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Beskrivning

Losing her smile to synkinesis after unresolved Bell’s palsy changed how Faye Linda Wachs was seen by others and her internal experience of self. In Metamorphosis, interviewing over one hundred people with acquired facial difference challenged her presumptions about identity, disability, and lived experience. Participants described microaggressions, internalizations, and minimalizations and their impact on identity. Heartbreakingly, synkinesis disrupts the ability to have shared moments. When one experiences spontaneous emotion, wrong nerves trigger misfeel and misperception by others. One is misread by others and receives confusing internal information. Communication of and to the self is irrevocably damaged. Wachs describes the experience as a social disability. People found a host of creative ways to reinvigorate their sense of self and self-expression. Like so many she interviewed, Wachs experiences a process of change and growth as she is challenged to think more deeply about ableism, identity, and who she wants to be.

Produktinformation

Utgivningsdatum:2023-09-15
Mått:152 x 229 x 15 mm
Vikt:313 g
Format:Häftad
Språk:Engelska
Antal sidor:226
Förlag:Rutgers University Press
ISBN:9781978805316

Utforska kategorier

Sociala och etiska frågor inom Samhälle och politik
Biografier inom Biografier
Fysiskafunktionsvariationer inom Hälsa och familj

Mer om författaren

FAYE LINDA WACHS is a professor of sociology at Cal Poly Pomona. She is the co-author, with Shari L. Dworkin, of the award-winning book Body Panic: Gender, Health and the Selling of Fitness.

Recensioner i media

“Metamorphosis is a groundbreaking, nuanced study of the experience of facial paralysis (FP) and synkinesis. This is the first academic book on synkinesis or facial paralysis, and Wachs is the perfect person to write it.” - Kathleen Bogart (director of the Disability and Social Interaction Lab at Oregon State University) “Metamorphosis is an important contribution to sociology of the body, critical disability, and sociology of emotion scholarship, as well as being of interest and use to anyone interested in understanding more about the nuts and bolts of face-to-face communication; Wachs is a gifted writer.” - Travers (author of The Trans Generation: How Trans Kids (and Their Parents) are Creating a Gender Revolution)

Innehållsförteckning

1 When Life Gives You Lemons…. Interview Lots of Other People Also With Lemons2 Theorizing Change: Culture, Identity, and the Face3 Microaggressions, Internalizations, and Contested Ideological Terrain4 It's My Face-Why That Matters5 Disrupted Selves6 Someone I Would Rather Be7 Walking Away: The Challenge of ChangeAcknowledgmentsAppendix AAppendix BAppendix CNotesReferencesIndex