Protecting Genetic Privacy in Biobanking through Data Protection Law

Dara Hallinan is a Senior Researcher working at FIZ Karlsruhe. His specific focus is on the interaction law, new technologies - particularly ICT and biotech - and society. He studied law in the UK and Germany, completed a Master's in Human Rights and Democracy in Italy and Estonia and wrote his PhD at the Vrije Universiteit Brussel in Belgium on data protection law, genetic privacy and research biobanking.

• 1: Introduction 2: Genetic Data, Genome Understanding, and Socially Relevant Information 3: The Context and State of the Art in European Biobanking 4: Genetic Privacy and Other Interests in Biobanking: Conflict and confluence 5: The Protection of Genetic Privacy in Biobanking at International Level: Establishing a base-line standard for genetic privacy protection in biobanking 6: Do we Need Data Protection at All? Evaluating protection for genetic privacy in biobanking in Europe excluding data protection 7: Testing the GDPR in Relation to Biobanking: When does the GDPR apply to biobanking? 8: Testing the GDPR in Relation to Biobanking: How does the GDPR classify the biobanking process? 9: Testing the GDPR in Relation to Biobanking: How do the GDPR's substantive provisions apply to biobanking? 10: A Critical Analysis of the Efficacy of the GDPR as a Framework for the Protection of Genetic Privacy in Biobanking 11: Conclusion