Oxford Textbook of Shared Decision Making in Healthcare

Glyn Elwyn is a clinician and researcher. He is a tenured professor at The Dartmouth Institute for Health Policy and Clinical Practice in the USA, and has visiting chairs at Radboud University Nijmegen, University College London, UK, and the University of Lausanne in Switzerland. He studies coproduction and shared decision making in the context of learning health care systems, and the application of machine learning to digital recordings of clinical encounters. His website can be found at: www.glynelwyn.com .Natalie Joseph-Williams is a Reader in Improving Patient Care at Cardiff University, UK. She is also a Board member and Scientific Lead for the International Shared Decision Making Society. Her specific research interests include implementation of person centred approaches in routine healthcare systems, patient and public involvement and engagement in health research, and shared decision making training for health and care professionals.Adrian Edwards is Professor of General Practice at Cardiff University, UK. He is also a part-time general practitioner in Cwmbran, Gwent, South Wales, and has a visiting professorship at Aarhus University, Denmark. His research interests have been in shared decision making and the development of decision aids, health literacy and self-management support.

• Part 1: Introduction 1: Glyn Elwyn, Natalie Joseph-Williams, Karina Prévost, Adrian Edwards, and Christopher R. Jacobs: Enabling shared decision making in practice Part 2: The theory of shared decision making 2: Glyn Elwyn, Amy Price, Juan V.A. Franco, and Pål Gulbrandsen: The limits of shared decision making 3: Paul B. Batalden, E. Chandlee Bryan, Anna Edwards, and Eugene C. Nelson: Coproduction and learning health systems 4: Anne M. Stiggelbout, Willem-Jan Bos, Lowri Smith, and Sally Lewis: Value-based health care and shared decision making 5: Tim Lahey, Angie Burke, and Glyn Elwyn: Patient capacity and shared decision making 6: Paulina Bravo, Eman Abukmail, Yuko Goto, Irma Vargas, Lyndal Trevena, and Martin Härter: Cultural adaptation of shared decision making and patient-centred care models 7: Paul K.J. Han, Laura Zwaan, Désirée Hairwassers, and Glyn Elwyn: Is shared decision making appropriate for diagnostic decisions? 8: Zackary Berger and Angela Williams: The individual and social ethics of shared decision making: Critiques and responses Part 3: Methods in SDM research 9: Isabelle Scholl, Denitza Williams, Otmar Kodalle, and Marleen Kunneman: Measurement of shared decision making 10: K.D. Valentine, Rachel C. Forcino, E. Chandlee Bryan, and Karen Sepucha: Patient-reported measurement in shared decision making 11: Anik Giguere, Marleen Kunneman, and Karina Prévost: Observational measurement of shared decision making 12: Marleen Kunneman, Matthijs Graner, and Isabelle Scholl: Innovation in shared decision making assessment Part 4: Approaches to teaching and training 13: Tammy C. Hoffmann, Mina Bakhit, and Anna Waters: Shared decision making teaching frameworks 14: Melanie Fritz, Amy Zelenski, Margaret Schwarze, and Kathy Kastner: Best case/worst case: A framework to improve medical communication and decision making in high risk and uncertainty situations 15: Pål Gulbrandsen, Arwen H. Pieterse, and Arne Lein: Innovations in shared decision making teaching Part 5: Implementation 16: Natalie Joseph-Williams, Adrian Edwards, Julie Kenealy, and Glyn Elwyn: Where are we now? An overview of international progress in shared decision making implementation 17: Rachel C. Forcino, Danielle Schubbe, and Myrtle Mitchell: Overview of shared decision making implementation 18: Robert J. Volk, Krystina B. Lewis, Maureen Smith, and Dawn Stacey: The International Patient Decision Aid Standards (IPDAS) collaboration: Evolution and current status 19: Dawn Stacey, Krystina B. Lewis, Maureen Smith, and Robert J. Volk: Patient decision aids: Characteristics and evidence of effectiveness 20: Anja Fog Heen, Roger Bertozzi, and Thomas Agoritsas: Patient decision aids: Access and sustainability of up-to-date tools 21: Pola Hahlweg, Anja Lindig, Cordula Mühr, Kai-Uwe Parsons-Galka, Fülöp Scheibler: Large-scale implementation of shared decision making in Germany: Three case studies 22: Dan D. Matlock, Chris Knoepke, Mayuko Ito Fukunaga, and Susan Strong: Implementation of shared decision making in the USA: Case studies 23: Karina Olling, Marlene Würgler, Karina Dahl Steffensen, and Jan Faldt Bentsen: Implementation of shared decision making in Denmark: A case study 24: Arwen H. Pieterse, Haske van Veenendaal, Dominique Sprengers, and Trudy van der Weijden: Implementation of shared decision making in the Netherlands: A case study 25: Alf Collins, Helen Bulbeck, and Paul Grundy: How to improve shared decision making in your practice: Using improvement methods to drive change Part 6: The view from the clinical specialities 26: Leigh Sanyaolu, France Legare, Adrian Edwards, and Susannah Fraser: Shared decision making from the perspective of primary care 27: Yumi Aoki, Lilisbeth Perestelo Pérez, Yaara Zisman-Ilani, and Hidetoshi Matsuura: Shared decision making in mental health care 28: Douglas J. Opel, Naomi Laventhal, Nancy Kuemin, and Seema Shah: Shared decision making in paediatrics and child health care 29: Johanna (Annemijn) W.M. Aarts, Laura Spinnewijn, Tina C. Foster, and Jolanda Wellen: Shared decision making in obstetrics and gynaecology 30: Karina Dahl Steffensen, Dawn Stacey, Liesbeth Boersma, and Mona Muusmann Petersen: Shared decision making in cancer care 31: Naykky Singh Ospina, Victor M. Montori, Rene Rodriguez-Gutierrez, and Ruth McCullars: Shared decision making in endocrinology 32: Alessandro Brunelli and Janette Rawlinson: Shared decision making in thoracic surgery 33: Srinivas Joga Ivatury, Helene Juul Würtz, Alexander T. Hawkins, and Craig Creelman: Shared decision making in colon and rectal surgery 34: Bianca Buurman, Ruth Pel, Gérard Hendriks, and Wim Roelofs: Shared decision making in care for older adults with multiple chronic conditions 35: Joshua B. Rager, Tod Papageorge, and Erica S. Spatz: Shared decision making in cardiovascular care 36: Tessalyn Morrison, Erin Foster, and Rita Pipes: Shared decision making in dermatology 37: Elisabeth Smith, Daniel C. Norvell, Dirk T. Ubbink, Michael Mcloughlin, and David C. Bosanquet: Shared decision making in vascular surgery 38: Adele Ketley, Sam Brunsden, Lynda Wyld, and Jenna Morgan: Shared decision making in breast cancer surgery 39: Giulia M. Ippolito, Roshan Paudel, Marty Chakoian, Jerry Thomas, and Danil V. Makarov: Shared decision making in urology 40: Elizabeth A. Kroll, Adina Harri, Robert Schlegel, and Vincent D. Pellegrini: Shared decision making in orthopaedic surgery 41: Rachel C. Forcino, Robert M. Kaplan, Helen Leonard, and Christian von Plessen: Shared decision making in public health: Balancing individual choice with the common good 42: Jolyn Hersch, Rikke Nicoline Stokholm, Janice Tufte, and Carissa Bonner: Shared decision making for screening 43: Rashmi G. Mathew, Hannah M. Timlin, Olawale A. Akinrogunde, and Carrie J. MacEwen: Shared decision making in ophthalmology 44: Elaine C. Thompson, Hannah Leavitt, Paul Hong, and Emily F. Boss: Shared decision making in otolaryngology 45: Saam Dilmaghani, Johannah Ruddy, Ian Hargraves, and Jean Fox: Shared decision making in gastroenterology and hepatology 46: Constanze Stolz-Klingenberg, Michaela Prigge, Walter Maetzler, and Christoph Heesen: Shared decision making in neurology 47: Fernanda Bellolio, Kasey Boehmer, and Erik Hess: Shared decision making in emergency medicine 48: Hilary L. Bekker, Jeanette Finderup, Andrew Mooney, Henning Søndergaard, and Anna E. Winterbottom: Shared decision making interventions for kidney failure treatment and management 49: Paulus A.F. Geerts, Thomas W. LeBlanc, and Wiebe Cnossen: Shared decision making in haematology 50: Rakhshan Kamran, Kenny Ardouin, Liam J. Peck, and Jeremy N. Rodrigues: Shared decision making in plastic surgery 51: Meredith MacMartin, Pola Hahlweg, Joan Collison, and Simon Noble: Shared decision making in palliative and supportive care 52: Mark D. Neuman, Mary C. Politi, May Hua, and Hugo Campos: Shared decision making in intensive care and anaesthetics 53: Yaara Zisman-Ilani, Wiebke Frerichs, Scout Silverstein, and Martin Härter: Shared decision making in psychosomatic conditions 54: Namrata Singh, Eileen Davidson, Cheryl Crow, and Jennifer L. Barton: Shared decision making in rheumatology Part 7: The view from allied disciplines 55: Deirdre Daly, Valerie Smith, Marianne Nieuwenhuijze, and Ellen McEvoy: Shared decision making in midwifery 56: Rob Letchford, Elaine Taylor, Martin Dando, and Zoe Silsbury: Shared decision making in physiotherapy 57: Kirsten Lomborg, Jeanette Finderup, Sally Thorne, and Henning Søndergaard: Shared decision making in nursing and advanced practice nursing 58: Jonathan Underhill, Steven D. Williams, Carole Pitkeathley, and Neal Maskrey: Shared decision making in pharmacy 59: Anwen Cope, Ivor G. Chestnutt, and Jennifer Wilson: Shared decision making in dentistry 60: Darren Flynn, Katherine Baker, Gemma Bradley, Craig Craggs and Jason Scott: Shared decision making for people living with multimorbidity: Perspectives from psychology, physiotherapy, occupational therapy and lived experience Part 8: The way forward 61: Samira Abbasgholizadeh Rahimi, Dan Poenaru, Glyn Elwyn, and Karina Prevost: Technological innovations: Use of artificial intelligence in shared decision making 62: Sara Riggare, Amy Price, Dawn P. Richards, Valerie C. Cates, and Glen Hazlewood: Shared decision making: A patient perspective 63: Mary C. Politi, Carrie C. Coughlin, Lindsay Kuroki, and Jessica Miller: The importance of cost conversations as part of shared decision making 64: Marie-Anne Durand, Julie Ayre, Catherine H. Saunders, Christine M. Marx, and Kirsten McCaffery: Increasing equity in shared decision making 65: Thaddeus Mason Pope, Valerie Gutmann Koch, and Nadine Montgomery Allam: The law and shared decision making: Recent developments 66: Natalie Joseph-Williams, Glyn Elwyn, Libby Humphris, and Adrian Edwards: Where do we go from here? International priorities for shared decision making practice and research