Dr Karen Harrison Dening is Head of Research & Publications at Dementia UK, home of Admiral Nursing. She has years of expertise in palliative and end-of-life care, advance care planning and case management in dementia. Her previous books with Jessica Kingsley Publishers are Evidence-Based Practice in Dementia for Nurses and Nursing Students, and Dementia, Culture and Ethnicity: Issues for All

[This book] deals with culture and ethnicity to further our understanding of the individual experience of dementia and how that impacts on the person, their carers and their families. It is so rewarding and illuminating to drill down to tap the huge resource of personal experience and how extraneous factors can influence the expression and experience of dementia. Each chapter is a standalone treatise on important aspects of dementia. Understanding the effects of our culture, ethnic background, but most importantly the combination of these will further our depth of understanding and empathy that we all know is the cornerstone of good person centred care. In this way we can strive to improve the lived experience of dementia. The editors and contributors are to be congratulated on bringing to life this hitherto relatively neglected but incredibly important aspect of dementia.

• 1. Introduction. Julia Botsford, Research Lead, Dementia UK and Senior Admiral Nurse, Barnet, Enfield and Haringey Mental Health NHS Trust. Section One: Exploring the Issues. 2. Dementia and Ethnic Diversity: Numbers and Trends. Omar Khan, Director, Runnymede Trust. 3. Meanings, Identities and Health. Julia Botsford. 4. Dementia and Ethnicity: Implications for Diagnosis and Medical Care. Professor Ajit Shah, University of Central Lancashire and Dr Sofia Zarate Escudero, Central North West NHS Foundation Trust. 5. Accessing Support and Services. Jo Moriarty, Research Fellow, Social Care Workforce Research Unit, King's College London. Section Two: Engaging and Working with People with Dementia and their Families. 6. Dementia and Care Giving in South Asian Communities in the UK. Dr Karan Jutlla, Senior Lecturer, Association for Dementia Studies, University of Worcester. 7. Assessment and Engagement. Vincent Goodorally, Admiral Nurse. 8. Communication and Working with Interpreters: Cultural Competence in Dementia Research and Practice. Julia Botsford. 9. Working Positively with Culture, Ethnicity and Dementia. Julia Botsford and Karen Harrison Dening, Director of Admiral Nursing, Dementia UK. 10. Dementia, Ethnicity and Care Homes. Dr Alisoun Milne, Professor of Social Gerontology and Social Work, University of Kent and Dr Jan Smith, Research and Development Fellow, Dementia Innovation Hub Canterbury Christ Church University. 11. End of Life, Dementia and Black and Minority Ethnic Groups. Karen Harrison Dening. Section Three: Perspectives of Families Living with Dementia. 12. Telling it like it is: Personal Experiences of Ethnicity and Dementia. Joy Watkins, Development Lead and Shemain Wahab, Project Coordinator, Uniting Carers, Dementia UK. Section Four: The Way Forward. 13. Strategy and Policy. Jill Manthorpe, Professor of Social Work and Director of the Social Care Workforce Research Unit, King's College London. About the Editors. About the Authors. References. Index.

Dr Karen Harrison Dening is Head of Research & Publications at Dementia UK, home of Admiral Nursing. She has years of expertise in palliative and end-of-life care, advance care planning and case management in dementia. Her previous books with Jessica Kingsley Publishers are Evidence-Based Practice in Dementia for Nurses and Nursing Students, and Dementia, Culture and Ethnicity: Issues for All

[This book] deals with culture and ethnicity to further our understanding of the individual experience of dementia and how that impacts on the person, their carers and their families. It is so rewarding and illuminating to drill down to tap the huge resource of personal experience and how extraneous factors can influence the expression and experience of dementia. Each chapter is a standalone treatise on important aspects of dementia. Understanding the effects of our culture, ethnic background, but most importantly the combination of these will further our depth of understanding and empathy that we all know is the cornerstone of good person centred care. In this way we can strive to improve the lived experience of dementia. The editors and contributors are to be congratulated on bringing to life this hitherto relatively neglected but incredibly important aspect of dementia.

• 1. Introduction. Julia Botsford, Research Lead, Dementia UK and Senior Admiral Nurse, Barnet, Enfield and Haringey Mental Health NHS Trust. Section One: Exploring the Issues. 2. Dementia and Ethnic Diversity: Numbers and Trends. Omar Khan, Director, Runnymede Trust. 3. Meanings, Identities and Health. Julia Botsford. 4. Dementia and Ethnicity: Implications for Diagnosis and Medical Care. Professor Ajit Shah, University of Central Lancashire and Dr Sofia Zarate Escudero, Central North West NHS Foundation Trust. 5. Accessing Support and Services. Jo Moriarty, Research Fellow, Social Care Workforce Research Unit, King's College London. Section Two: Engaging and Working with People with Dementia and their Families. 6. Dementia and Care Giving in South Asian Communities in the UK. Dr Karan Jutlla, Senior Lecturer, Association for Dementia Studies, University of Worcester. 7. Assessment and Engagement. Vincent Goodorally, Admiral Nurse. 8. Communication and Working with Interpreters: Cultural Competence in Dementia Research and Practice. Julia Botsford. 9. Working Positively with Culture, Ethnicity and Dementia. Julia Botsford and Karen Harrison Dening, Director of Admiral Nursing, Dementia UK. 10. Dementia, Ethnicity and Care Homes. Dr Alisoun Milne, Professor of Social Gerontology and Social Work, University of Kent and Dr Jan Smith, Research and Development Fellow, Dementia Innovation Hub Canterbury Christ Church University. 11. End of Life, Dementia and Black and Minority Ethnic Groups. Karen Harrison Dening. Section Three: Perspectives of Families Living with Dementia. 12. Telling it like it is: Personal Experiences of Ethnicity and Dementia. Joy Watkins, Development Lead and Shemain Wahab, Project Coordinator, Uniting Carers, Dementia UK. Section Four: The Way Forward. 13. Strategy and Policy. Jill Manthorpe, Professor of Social Work and Director of the Social Care Workforce Research Unit, King's College London. About the Editors. About the Authors. References. Index.

Dr Karen Harrison Dening is Head of Research & Publications at Dementia UK, home of Admiral Nursing. She has years of expertise in palliative and end-of-life care, advance care planning and case management in dementia. Her previous books with Jessica Kingsley Publishers are Evidence-Based Practice in Dementia for Nurses and Nursing Students, and Dementia, Culture and Ethnicity: Issues for All

[This book] deals with culture and ethnicity to further our understanding of the individual experience of dementia and how that impacts on the person, their carers and their families. It is so rewarding and illuminating to drill down to tap the huge resource of personal experience and how extraneous factors can influence the expression and experience of dementia. Each chapter is a standalone treatise on important aspects of dementia. Understanding the effects of our culture, ethnic background, but most importantly the combination of these will further our depth of understanding and empathy that we all know is the cornerstone of good person centred care. In this way we can strive to improve the lived experience of dementia. The editors and contributors are to be congratulated on bringing to life this hitherto relatively neglected but incredibly important aspect of dementia.

• 1. Introduction. Julia Botsford, Research Lead, Dementia UK and Senior Admiral Nurse, Barnet, Enfield and Haringey Mental Health NHS Trust. Section One: Exploring the Issues. 2. Dementia and Ethnic Diversity: Numbers and Trends. Omar Khan, Director, Runnymede Trust. 3. Meanings, Identities and Health. Julia Botsford. 4. Dementia and Ethnicity: Implications for Diagnosis and Medical Care. Professor Ajit Shah, University of Central Lancashire and Dr Sofia Zarate Escudero, Central North West NHS Foundation Trust. 5. Accessing Support and Services. Jo Moriarty, Research Fellow, Social Care Workforce Research Unit, King's College London. Section Two: Engaging and Working with People with Dementia and their Families. 6. Dementia and Care Giving in South Asian Communities in the UK. Dr Karan Jutlla, Senior Lecturer, Association for Dementia Studies, University of Worcester. 7. Assessment and Engagement. Vincent Goodorally, Admiral Nurse. 8. Communication and Working with Interpreters: Cultural Competence in Dementia Research and Practice. Julia Botsford. 9. Working Positively with Culture, Ethnicity and Dementia. Julia Botsford and Karen Harrison Dening, Director of Admiral Nursing, Dementia UK. 10. Dementia, Ethnicity and Care Homes. Dr Alisoun Milne, Professor of Social Gerontology and Social Work, University of Kent and Dr Jan Smith, Research and Development Fellow, Dementia Innovation Hub Canterbury Christ Church University. 11. End of Life, Dementia and Black and Minority Ethnic Groups. Karen Harrison Dening. Section Three: Perspectives of Families Living with Dementia. 12. Telling it like it is: Personal Experiences of Ethnicity and Dementia. Joy Watkins, Development Lead and Shemain Wahab, Project Coordinator, Uniting Carers, Dementia UK. Section Four: The Way Forward. 13. Strategy and Policy. Jill Manthorpe, Professor of Social Work and Director of the Social Care Workforce Research Unit, King's College London. About the Editors. About the Authors. References. Index.