Educating Children with Life-Limiting Conditions

Dr Alison Ekins is Course Director of the National Award for SEN Coordination at Canterbury Christ Church University, UK.Dr Sally Robinson is Principal Lecturer in Health Promotion and Public Health at Canterbury Christ Church University, UK.Ian Durrant is Senior Lecturer at Canterbury Christ Church University, UK.Kathryn Summers is Principal Lecturer in Children's Nursing at Canterbury Christ Church University, UK.

‘With the increasing number of pupils in both special and mainstream schools who have complex medical needs, this is a must have book for every staff-room. The easy to read format gives opportunity for reflection and very practical and informative advice and support for all school practitioners. Written by education and health professionals, you get a real sense of a multi-disciplinary approach to meeting the needs of our most vulnerable pupils. A very difficult subject dealt with in a caring, compassionate and very helpful way.’ - Lorraine Petersen OBE, Educational Consultant and Former CEO of NASEN.‘This is a book on a vital but neglected, and for some teachers rather frightening, subject, that is reassuring, practical and inspirational. It sets out the key principles, knowledge and skills that are needed for implementing effective strategies for working with children with life limiting conditions in mainstream schools, outlining the elements of good practice, using a joined up, whole school multi-professional approach to which teachers will relate easily. It is grounded by the reflective activities which engage the reader from the outset and ensure that the valuable learning can be applied in real life school and classroom situations. I learned a good deal from reading this.’ - Katherine Weare, Emeritus Professor, Southampton Education School, University of Southampton.

• Section 1- Policy and PracticeChapter 1: Introduction Chapter 2: Policy context Chapter 3: The Teaching for Life ProjectSection 2- Knowledge and Skills Chapter 4: Understanding Life Limiting and Life Threatening Conditions Chapter 5: Medical care Chapter 6: Working CollaborativelyChapter 7: Communication skills Chapter 8: Supporting other children within the school Chapter 9: Teaching and learning approachesChapter 10: Handling emotional and behavioural changes Section 3- A Whole School Approach to SupportChapter 11: Establishing a positive whole school culture Chapter 12: Whole school policies Section 4- Practical resourcesChapter 13: Directory of useful contacts and agencies Chapter 14: Glossary of medical and educational terms explained Chapter 15: Photocopiable ResourcesSection 5- ConclusionsChapter 16: Learning from each other- implications for practice