Translating Chronic Illness Research into Practice

Debbie Kralik is General Manager, Strategy and Research at the Royal District Nursing Service in South Australia and Associate Professor, University of South Australia and Adelaide University. Barbara Paterson is Professor of Nursing and Tier 1 Canada Research Chair in the Faculty of Nursing, University of New Brunswick, Canada. Vivien Coates is Professor of Nursing Research, School of Nursing, University of Ulster & Assistant Director of Nursing, Western Health & Social Care Trust. (Joint appointment).

• List of Contributors viiPreface ix1. Globalisation of Chronic Illness Research 1Sally WellardIntroduction 1What is in a name? 2Global crisis in chronic illness 3Impact of chronic illness in developing nations 4Trends in chronic illness research in developed nations 6Policy drivers: taking action 8Global initiatives for future chronic illness management 10Conclusion 12References 122. Transitional Processes and Chronic Illness 17Debbie Kralik and Antonia van LoonIntroduction 17The search 18Defining transition 19An emerging understanding of transition 19Describing transition 21Transition and identity 22Transition and transformative learning 24Transitional processes 25A transition framework for practice 26Conclusion 32References 333. Translating Chronic Illness Research Across the Lifespan 37Marit KirkevoldIntroduction 37Human development across the lifespan 39Key assumptions of the lifespan developmental perspective 40Human development in old age 42Applications of lifespan developmental perspectives in chronic illnessresearch 46Supporting age-appropriate development without jeopardising the safemanagement of serious chronic disease: the case of cystic fibrosis 47Chronic illness in old age: providing developmentally appropriateintegrity-promoting care to persons suffering from dementia 50Conclusions and implications 52References 534. Assisting People with Chronic Illness to Manage Co-Morbid Conditions 57Allison WilliamsIntroduction 57Conceptualising co-morbidity 58Social determinants of co-morbidities 60The medical paradigm 61Health-care systems 65Co-morbidity management 68Models of chronic illness management 69Conclusion 74References 755. Conceptualisation of Self-Management 85Malcolm Battersby, Sharon Lawn and Rene PolsIntroduction 85Background to the use of the term self-management 86Historical developments in self-management 88Associated concepts or models that overlap with or informself-management 92Alternative definitions of self-management 101Conclusions: the future for chronic condition self-management 105References 1056. The Relevance of Self-Management Programmes for People with Chronic Disease at Risk for Disease-Related Complications 111Barbara Paterson and Max HopwoodIntroduction 111Background 112Theoretical framework 114Overview of relevant research 115Sample 115Participation 118Attrition 118Discussion 120Conclusion 125References 1377. The Potential of Technology for Providing Social Support to People and Families 143David B. NicholasIntroduction 143Background 143The Internet as a health resource 144Impact of advanced technology in fostering therapeutic gain:overview of relevant research 146Social support delivery: considerations in selecting advancedtechnology methods 156Into the virtual future... 157References 1588. Chronic Illness Research: Translating What We Know into What We Do 163Renee F. Lyons, Lynn McIntyre, Grace Warner, Celeste Alvaro,Alastair Buchan, Ian Reckless and Alison KitsonIntroduction 163The task ahead 164The dose–response problem 166The promise of research 168Knowledge translation: emerging from na¨ıvete 170 ´Embedding KT within research agencies and grants 173Web-based KT innovations 174What chronic illness research gets taken up? 174Policy containers and the future of chronic illness 179The future of chronic illness: systems change using stroke examples 181Conclusion 189References 1919. Future Directions 199Debbie KralikGlobal perspective 199Facilitating the will of the people 200The evidence base 201Technology and health promotion 201Transition 202Self-management and self-care 203Health in the community 203References 204Index 205