Participatory Qualitative Research Methodologies in Health

Gina Higginbottom holds a Tier II Canada Research Chair in Ethnicity and Health and is Professor in the Faculty of Nursing, at the University of Alberta. Gina′s research portfolio focuses on ethnic minority populations and immigrant health using participatory models of research and ethnography. She has a particular focus on the broad issue of social exclusion and equity in health care, lay understandings of health and illness. A second theme in her research portfolio has focused on maternal health and well being including parenting issues, early parenthood and postnatal depression in different ethnic minority groups. Gina has been Principal Investigator on 17 nationally and internationally funded qualitative research studies, currently she holds three Canadian Institute for Health grants. Gina is Assistant Editor of Ethnicity and Health journal and co-chair of the IIQM′s 2013 Thinking Qualitative Conference 2013 and an Affiliate Scholar of IIQM as well as an advisory board member of IIQM. Gina is an experienced educator with a professional teaching qualification who has facilitated many undergraduate, graduate and doctoral programs in the UK and Canada. Pranee is a medical anthropologist whose research focuses on the health and well-being of women, children, immigrants, refugees, the elderly, ethnic minorities, and transgender individuals. Her work is particularly dedicated to maternal and neonatal health, sexual and reproductive health, gender and sexual well-being, psychological health, and chronic illnesses influenced by climate change. Her recent studies have examined gender and sexual health concerns among Asian women, refugee and immigrant women, youth, and transgender women from ethnic minority backgrounds. In Vietnam, she has investigated the effects of air pollution on maternal and neonatal health. Additionally, her research explores the health and overall well-being of ethnic minority women. As a leading social science researcher, Pranee has authored numerous books on qualitative research methodologies and various social and health-related topics. These works are widely recognized and used in both Australia and internationally. At VinUniversity, she has contributed to both medical and nursing degree programs. She has also mentored numerous undergraduate students, guiding them through research projects as part of their studies and career development. Currently, Pranee serves as Professor of Social Science in the College of Arts and Sciences and as the Leader of the Living Lab pillar at the Center for Environmental Intelligence.

With this delightful collection, Higginbottom and Liamputtong advance the art and science of collaborative community based action research. The wisdom in these pages derives from a deeply ethical commitment to social justice grounded in solidly informed and creative methodological technique.

• Chapter 1: What is Participatory Research? Why do it? - Gina Higginbottom and Pranee LiamputtongChapter 2: Addressing Ethical Issues in PR: The Primacy of Relationship - Wendy Austin Chapter 3: Designing Participatory Research Projects - Helen Vallianatos, Emina Hadziabdic and Gina HigginbottomChapter 4: Data Management, Analysis and Interpretation - Gina HigginbottomChapter 5: Drawing Conclusions from Your Research - Gina Higginbottom and Sophie YohaniChapter 6: Engaging Older People in Participatory Research - Pranee Liamputtong and Gina HigginbottomChapter 7: Involving Children and Youth in Participatory Research - Diane Conrad, Bryan Hogeveen, Joanne Minaker, Mildred Masimira and Daena Crosby Chapter 8: Conceptualising Inclusive Research - A Participatory Research Approach with People with Intellectual Disability: Paradigm or Method? - Christine Bigby and Patsie FrawleyChapter 9: Diverse Ethno-cultural Groups and the Use of Participatory Research - Gina Higginbottom and Pranee LiamputtongChapter 10: The Relationship Between Engaged Scholarship, Knowledge Translation, and Participatory Research - Sarah Bowen Chapter 11: Community-University Partnerships: A Case Study - Sherry Ann ChapmanChapter 12: Information and Communications Technologies and the Potentials for Participatory Research - Chris Atchison