Intellectual Disabilities: Health and Social Care Across the Lifespan

Dr Fintan Sheerin, PhD MA BSc PgDipEd RNID RGN RNT FEANS FNI MRSB, is Associate Professor in Intellectual Disability Nursing and Head of the School of Nursing and Midwifery at Trinity College Dublin, where he has taught for 16 years. He worked for more than 20 years across a variety of health and social care settings, as well as with refugees and rural communities in several countries. His research has been informed by these experiences and largely focusses on engagement, rights, mental health and well-being, seeking to address the issues which impact these. His current work is primarily related to supporting the mental health of older people with intellectual disability and is linked to his role as mental health lead for the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA). He has published widely, spoken at many international conferences, and is co-author of one book, Leadership for Intellectual Disability Service: Motivating Change and Improvement (2019) and contributed to several others. He is a Fellow of the European Academy of Nursing Science and of NANDA International.  Dr Carmel Doyle, PhD MSc BSc PgDip CHSE RNT RNID RCN, is an Assistant Professor in Nursing and currently Head of Intellectual Disability Nursing at Trinity College. Her research and teaching reflects her interest in the areas of intellectual disabilities and children’s nursing. She has clinical experience in both areas and has been in higher education for 18 years. Her specific area of experience is in the care of children with severe and profound intellectual disabilities and complex care needs. She has completed several funded research projects in the field adopting a variety of research methods. She has collaborated with key stakeholders and has developed a strong network with national disability service providers. She has several publications and has also received funding nationally and internationally. She has completed a PhD in the field of ‘giving medicines’ to children with intellectual disability. Her research-based commitments include supervision of students undertaking research to PhD level. She is co- chair of a health service provider research ethics committee, has completed external examiner roles at other Universities and is also an educational consultant for Special Olympics Ireland. She has published internationally and is a co-author of the book Intellectual Disability Nursing: An Oral History Project, Emerald Publishing (2020). As Head of intellectual disability nursing, she leads on developments in the discipline and sector from both education, policy development and research perspectives.

• Introduction.- Section 1. Introduction to Key Concepts.- 1. Foundations of Intellectual Disability.- 2. Communication as a Basis for Person-Centred Support.- 3. Care in a Multi/Interdisciplinary Context.- 4. Attachment, Cognitive Dissonance and Reciprocation in Intellectual Disability Care Provision.- Section 2. From Birth to Adolescence.- 5. The Nature of Intellectual Disability.- 6. Children and Adolescents with Intellectual Disability.- 7. Intellectual and Developmental Disabilities and Rare Diseases.- 8. Other Neurodevelopmental Conditions.- Section 3. From Adulthood to Older Age.- 9. Chronic Health Among Those with Intellectual Disability.- 10. Ageing and Intellectual Disability.- 11. Intellectual Disability, Mental Health and Mental Disorders.- Section 4. Integrating Health and Social Perspectives.- 12. The Social Contract of Care for People with an Intellectual Disability.- 13. Enabling Families to Support Adults with an Intellectual Disability to Live a Life of their Choosing.-14. Social Integration and Inclusion.- 15. Supporting Transitions.- 16. Sexuality, Gender Identity and Relationships.