Janna C. Merrick - Böcker

Written by experts, this first encyclopedia about U.S. biomedical policy since the 1970s covers a broad array of key issues and developments in human genetics, reproduction, neonatal intensive care, organ transplantation, intervention in the brain, and medical interventions at the end of life. This easily accessible reference describes court cases, legislation, public policies, technologies, issues, key government agencies, and private organizations dealing with the complex economic, cultural, social, and political context for biomedical decisionmaking today. A chronology, directory of major organizations, carefully selected sources for further reading, and index further enrich this interdisciplinary guide designed for students; teachers; policymakers; public administrators in college, university, and institutional libraries; and general readers in public libraries.This easily accessible reference describes court cases, legislation, public policies, technologies, issues, key government agencies, and private organizations dealing with the complex economic, cultural, social, and political context for biomedical decisionmaking today. A chronology, directory of major organizations, carefully selected sources for further reading, extensive cross references and index further enrich this interdisciplinary guide designed for students; teachers; policymakers; public administrators in college, university, and institutional libraries; and general readers in public libraries.

How much control do-or should-the courts and public policy have over the treatment of critically ill and disabled newborns? The Baby Doe incident of 1982 spurred the federal government to create a public policy making failure to treat severely disabled newborns a form of child neglect. Compelled Compassion focuses on public policy aspects of withholding treatment from critically ill, disabled infants, and especially dealing with why this policy was enacted and how it affects health care workers, the infants, and their families. Several contributors to this timely, controversial volume spearheaded the early debates on withholding treatment; others were active participants in the policymaking process itself. Compelled Compassion makes a valuable contribution to our awareness of the complex, difficult process of decision making for these infants: a process laden with emotional, legal, and clinical ramifications, and strives to help clarify how the various factors can be applied in reaching a compassionate, but logical, decision for everyone involved in reaching it.

In April 1982, an infant boy was born in Bloomington, Indiana, with Down syndrome and a defective, but surgically correctable, esophagus. His parents refused to consent to surgery or intravenous feeding. The hospital unsuccessfully sought a court order to force treatment, and appeals to higher courts also failed. The child, identified as Baby Doe by the news media, subsequently died. The events in Bloomington became the catalyst for action by the Reagan administration, the courts, and Congress that culminated in a federal policy that makes failure to treat newborns with disabilities a form of child neglect. This book centers on the public policy aspects of withholding treatment from critically ill newborns who are disabled. Specifically, it deals with why the policy was enacted and what impact it has had on health care workers, families, and infants. Some of the contributors to this book spearheaded the early debate on withholding treatment. Anthony Shaw's New York Times Magazine article in 1972 was the first to address these issues in the popular press. The following year, he published a related article in the New England Journal of Medicine. Also appearing in this same issue of NEJM, was the pathbreaking study, coauthored by A. G. M. Campbell, on withholding treatment in the special care nursery at Yale-New Haven Hospital. Each of these articles promoted much public and professional discussion.

Here is a comprehensive overview and analysis of issues concerning the maternal-fetal relationship, from abortion to surrogate motherhood. Unlike many books which cover reproductive issues in general, this book focuses in-depth on one aspect of reproduction--the maternal-fetal relationship--to give readers a detailed study of the many issues involved. The Politics of Pregnancy discusses public policy dimensions of this relationship and posits new, critical political dilemmas. Many chapters in this unique book also provide significant clinical information as well as conceptual analysis.The Politics of Pregnancy offers great diversity in terms of the disciplinary backgrounds of the authors and their ideological perspectives. Authors come from many fields, including sociology, political science, pediatrics, ethics, and psychiatry, and provide diverse, sometimes opposing, analytical positions. Some of the topics they debate include:maternal substance use during pregnancy prenatal technology pregnancy and workplace hazards court-ordered obstetrical intervention fetal experimentationReaders interested in public and health care policy, nursing, feminism, pediatrics, or ethics, will find The Politics of Pregnancy to be a stimulating and thought-provoking book. This volume also makes an excellent discussion tool for graduate courses in these areas.