Monica Konrad - Böcker

This book explores the way changes in technology have altered the relationship between ethics and medicine. For some inherited diseases, new genetic testing technologies may provide much more accurate diagnostic and predictive information which raises important questions about consent, confidentiality and use of the information by family members and other third parties. What are the implications of this knowledge for individuals and their families? And for society more widely? How should this new information be used? How do people deal with the choices that new knowledge and technologies offer? Drawing on extensive ethnographic research with families affected by Huntington's Disease, and using perspectives from medical and cultural anthropology, the author explores the huge disparity between the experience of living with the results of genetic testing and the knowledge and expertise which are drawn on to develop policy and clinical services.

This book explores the way changes in technology have altered the relationship between ethics and medicine. For some inherited diseases, new genetic testing technologies may provide much more accurate diagnostic and predictive information which raises important questions about consent, confidentiality and use of the information by family members and other third parties. What are the implications of this knowledge for individuals and their families? And for society more widely? How should this new information be used? How do people deal with the choices that new knowledge and technologies offer? Drawing on extensive ethnographic research with families affected by Huntington's Disease, and using perspectives from medical and cultural anthropology, the author explores the huge disparity between the experience of living with the results of genetic testing and the knowledge and expertise which are drawn on to develop policy and clinical services.

As bio-capital in the form of medical knowledge, skills, and investments moves with greater frequency from its origin in First World industrialized settings to resource-poor communities with weak or little infrastructure, countries with emerging economies are starting to expand new indigenous science bases of their own. The case studies here, from the UK, West Africa, Sri Lanka, Papua New Guinea, Latin America and elsewhere, investigate the forms of collaborative knowledge relations needed and the effects of ethics review and legal systems on local communities, and also demonstrate how anthropologically-informed insights may hope to influence key policy debates. Questions of governance in science and technology, as well as ethical issues related to bio-innovation, are increasingly being featured as topics of complex resourcing and international debate, and this volume is a much-needed resource for interdisciplinary practitioners and specialists in medical anthropology, social theory, corporate ethics, science and technology studies.

Based on the author's fieldwork at assisted conception clinics in England in the mid-1990s, this is the first ethnographic study of the new procreative practices of anonymous ova and embryo donation. Giving voice to both groups of women participating in the demanding donation experience – the donors on the one side and the ever-hopeful IVF recipients on the other – Konrad shows how one dimension of the new reproductive technologies involves an unfamiliar relatedness between nameless and untraceable procreative strangers. Offsetting informants’ local narratives against traditional Western folk models of the ‘sexed’ reproductive body, the book challenges some of the basic assumptions underlying conventional biomedical discourse of altruistic donation that clinicians and others promote as “gifts of life.” It brings together a wide variety of literatures from social anthropology, social theory, cultural studies of science and technology, and feminist bioethics to discuss the relationship between recent developments in biotechnology and changing conceptions of personal origins, genealogy, kinship, biological ownership and notions of bodily integrity.