Rana Limbo - Böcker

[This] is a story of love, hope, and healing. There are 18 chaptersÖcovering intimate aspects of a young life ending and how those who remain behind can grieve in such a way that they can go on living. ÖThis book is a collection of clinical wisdom, theoretical knowledge, and models of care that can continue to tell the story and change cultures of care. As a palliative care nurse I am honored to write this Foreword and to be included in these pages with the authors who are truly pioneers in perinatal and pediatric bereavement."óBetty Ferrell, PhD, MA, RN, FAAN, FPCN, CHPNFrom the ForewordThis is a definitive, state-of-the-art resource on the vital pieces of perinatal and pediatric palliative care. Culling the most important new evidence-based research and findings from scholars and practitioners worldwide, it links theoretical knowledge and clinical practice to fill a gap in current information. The text is distinguished by its provision of different and even competing perspectives that address the complexities of the tragic human experience of perinatal, neonatal, and pediatric death and its focus on the nurses and other health care providers who provide care to those involved.Contributors disseminate new theoretical approaches and reexamine current concepts in light of new research. They discuss the theoretical underpinnings of perinatal and pediatric bereavement, examine current thought on the dimensions of loss, deliver evidence-based clinical interventions, and offer the perspective of grieving families regarding their experiences and needs. The book provides both novice and experienced scholars of perinatal and pediatric bereavement with a strong foundation of current knowledge. With clinical interventions derived from research, the book enhances the expertise of clinicians caring for bereaved women and their families. It includes case studies, interview excerpts, graphics, and review questions to illustrate key points, and summaries demonstrating how theory is translated to clinical practice and informs research. Chapters provide objectives, references, and suggestions for additional study. The book is also a valuable study aid for studentspreparing for the Pediatric Loss Certification (NBCHPN) exam.KEY FEATURES: Provides high-level but accessible information from renowned scholars in perinatal and pediatric lossDisseminates the newest theoretical frameworks that can be used to create interventions and develop research.Includes case studies demonstrating how theory is applicable to research and practiceFacilitates critical thinking with different and sometimes competing perspectivesServes as a valuable resource for Pediatric Loss Certification (NBCHPN) preparation

The first resource of its kind, this authoritative handbook holistically addresses the multidimensional aspects of perinatal and neonatal palliative care. Written by an interprofessional team of renowned specialists, it is both a text and an evidencebased reference for all members of the palliative care team. This book helps individual team members forge interdisciplinary approaches to care, assess current programs, improve the quality of care, and tailor new models of care.Encompassing the perspectives of numerous multidisciplinary healthcare providers, the book underscores the unique aspects of perinatal and neonatal palliative care, with a focus on improving quality of life, as well as comfort at the end of life. It describes healthcare for neonates and pregnant mothers, care and support of the family, planning and decision-making, and effective support for grief and bereavement, addressing all palliative and neonatal care settings.Other chapters focus on the prenatal period after diagnosis of the expected baby's life-threatening condition. These include such topics as care of the mother, delivering devastating news, and advance care planning. Each chapter contains photos, figures, and/or tables and case studies with clinical implications and critical thinking questions. Also included is an extensive listing of relevant palliative care organizations. Paintings and poetry provide an artistic backdrop to the authors' inspiring words.Key Features:Addresses a growing need for specific provider resources in neonatal palliative careCovers the clinical and emotional aspects of palliative care for babies and their familiesAbundant resources for effective and compassionate family-centered careCase studies with critical thinking questionsAccompanying video clips of healthcare and family interactionsSupplemental image bank included