Rebecca Monteleone – författare

Disability in Africa has received significant attention as a dimension of global development and humanitarian initiatives. Little international attention is given, however, to the ways in which disability is discussed and addressed in specific countries in Africa. Little is known also about the ways in which persons with disabilities have advocated for themselves over the past one hundred years and how their needs were or were not met in locations across the continent. Kenya has been on the forefront of disability activism and disability rights since the middle of the twentieth century. The country was among the first African states to create a legal framework addressing the rights of persons with disabilities, namely the Persons with Disabilities Act of 2003. Kenya, however, has a much longer history of institutions and organizations that are dedicated to addressing the specific needs of persons with disabilities, and substantial developments have occurred since the introduction of the legal framework in 2003.Disability and Social Justice in Kenya: Scholars, Policymakers, and Activists in Conversation is the first interdisciplinary and multivocal study of its kind to review achievements and challenges related to the situation of persons with disabilities in Kenya today, in light of the country’s longer history of disability and the wide range of local practices and institutions. It brings together scholars, activists, and policymakers who comment on topics including education, the role of activism, the legal framework, culture, the impact of the media, and the importance of families and the community.

Disability in Africa has received significant attention as a dimension of global development and humanitarian initiatives. Little international attention is given, however, to the ways in which disability is discussed and addressed in specific countries in Africa. Little is known also about the ways in which persons with disabilities have advocated for themselves over the past one hundred years and how their needs were or were not met in locations across the continent. Kenya has been on the forefront of disability activism and disability rights since the middle of the twentieth century. The country was among the first African states to create a legal framework addressing the rights of persons with disabilities, namely the Persons with Disabilities Act of 2003. Kenya, however, has a much longer history of institutions and organizations that are dedicated to addressing the specific needs of persons with disabilities, and substantial developments have occurred since the introduction of the legal framework in 2003.Disability and Social Justice in Kenya: Scholars, Policymakers, and Activists in Conversation is the first interdisciplinary and multivocal study of its kind to review achievements and challenges related to the situation of persons with disabilities in Kenya today, in light of the country’s longer history of disability and the wide range of local practices and institutions. It brings together scholars, activists, and policymakers who comment on topics including education, the role of activism, the legal framework, culture, the impact of the media, and the importance of families and the community.

Exposing the ableism underlying medical innovation   As medical advancements continue to shape the detection, diagnosis, and treatment of disability and illness, technology is often presented as a pathway to autonomy. Challenging this assumption, Rebecca Monteleone shows how medical technologies contribute to a cruel double bind, forcing disabled people to be accountable for adapting to a world built by and for nondisabled people while dismissing their lived experiences in favor of medical expertise. Far more complex than simple progress, these technologies are more oppressive than liberating when they place the burden of care on individuals and perpetuate societal ableism that demands that bodies look, move, and function in certain ways.   The Double Bind of Disability examines the complex relationship between medical technologies and their users, highlighting tensions between personal responsibility and medical authority. Sharing the perspectives and experiences of users of three medical technologies (prenatal genetic screening, deep brain stimulation, and do-it-yourself artificial pancreas systems), Monteleone analyzes how users navigate the constraints of these systems and also imagine a new, more liberatory approach to healthcare.   Asserting a bold vision, Monteleone describes a future where medical interventions take seriously the lived expertise of disabled people to address ableist infrastructures rather than require the modification of nonnormative bodyminds. She calls for a radical reimagining of medical technology that moves beyond individualistic frameworks to embrace collective experience and embodied knowing.     Retail e-book files for this title are screen-reader friendly.