Roger J. Stancliffe – författare

This book examines choice and preference in the lives of people with disability, focusing on people with intellectual and developmental disabilities. It provides an overview of choice and examines foundational concepts related to choice and preference, including self-determination and supported decision making. Chapters examine a range of critical service and policy issues, such as guardianship, individualized funding, the health care system, and the situation regarding choices for people with disability in international contexts. In addition, chapters explore issues ranging from the development of preference and choice in childhood to choices in older age and end of life matters. It provides in-depth analysis of particular choices faced at different points across the lifespan. The book concludes with implications for policy and practice. 

Topics featured in this book include:

Choice, Preference, and Disability is an essential resource for researchers, professors, clinicians, therapists, and other professionals as well as graduate students in the fields of developmental and positive psychology, rehabilitation, social work, special education, occupational, speech and language therapy, public health, and healthcare policy.

This book on end of life examines how to include people with intellectual and developmental disability in the inevitability of dying and death. Comprising 17 chapters, it addresses challenging and under-researched topics including suicide, do-not-resuscitate, advance care planning, death doulas and accessible funerals. Topics reflect everyday community, palliative care, hospice and disability services.

The book proposes that the rights of people with disabilities should be supported up to and after their death. Going beyond problem identification, the chapters offer positive, evidence-supported responses that translate research to practice, together with practice examples and resources grounded in lived experience. The book is applicable to readers from the disability field, and mainstream health professionals who assist people with disability in emergency care, palliative care or end-of-life planning