Pediatric Palliative Care

Dr. Lindsay Ragsdale is an Associate Professor in Pediatrics and the Division Chief of Pediatric Palliative Care at Kentucky Children's Hospital at the University of Kentucky . She completed her residency and chief resident training at the University of Kentucky and completed her Pediatric Hospice & Palliative Medicine fellowship at the Children's Hospital of Philadelphia. She is a fellow in the American Academy of Pediatrics and American Academy of Hospice and Palliative Medicine. She has been an active physician leader at the University of Kentucky since 2013 and has been active in improving access to palliative care by helping to establish the Kentucky Pediatric Palliative Care Coalition. She is a leader in Pediatric Palliative Medicine at the national level and has served as the Pediatric Special Interest Group Chair & Communities Committee Chair for the American Academy of Hospice and Palliative Medicine. Dr. Elissa Miller is a Clinical Associate Professor in Pediatrics at Thomas Jefferson University in Philadelphia, PA, and Chief of the Division of Palliative Medicine at Nemours/Alfred I duPont Hospital for Children in Wilmington, DE. She completed her residency training at the Children's Hospital of Philadelphia in Philadelphia, PA, and went on to complete a fellowship in Pediatric Hospice and Palliative Medicine also at the Children's Hospital for Philadelphia. She is a fellow in the American academy of Pediatrics and American Academy of Hospice and Palliative Medicine. Dr. Miller has been an active physician leader at Nemours since 2011. She developed the hospital's first pediatric palliative care program and quicklyhelped establish a fellowship training program for physicians interested in joining the field of hospice and palliative medicine. She is the president elect of the medical staff at AI duPont Hospital for Children and working to actively improve the quality of care provided to all children in the state of Delaware. Dr. Miller is a leader in Pediatric Palliative Care nationally, as well. She was elected to serve as a member of the American Academy of Pediatrics Section on Hospice and Palliative Medicine executive committee. She has published articles and chapters about the practice of Pediatric Palliative Care and pediatric palliative care program development. She is passionate about the comprehensive care of children with serious illness and their families and advocates for improved quality of life and goal concordant care.

If you work in pediatric palliative care, this book will allow you to reflect on how you might go about some of the problems they pose. For anyone training in pediatric palliative care, and their teachers, it's a must.

• 1. Whose Decision Is This? 2. Why is everyone giving up on our son? 3. Will My Baby Learn to Walk? 4. We are so glad she saw the beach 5. Can you go change the family's mind? 6. In the eye of the beholder 7. You Can't Tell Him That! 8. "You can't stop the machines!" 9. "I won't let you!" 10. Time to stop 11. "Is she dying?" 12. Stuck on Life Support 13. How do we go back to work now? 14. Always putting my needs last 15. My Stomach Hurts 16. No access and still in pain 17. My skin feels like it is on fire 18. The Withdrawn Child 19. She Won't Stop Vomiting 20. Can't catch my breath 21. Why isn't she looking at me? 22. The Lack of Movement 23. Teenage "Bleh" 24. A Sad Side Effect of Cancer 25. My patient is twitching, could it be itching? 26. Is my baby feeling hungry? 27. Saying hello and goodbye 28. I feel my baby moving, how is she incompatible with life? 29. A moment becomes a memory 30. Tiny fingers, tiny toes 31. A case of refusing to agree 32. I just want to feel normal! 33. I need a refill. 34. "They're taking away her health insurance!" 35. The Unexpected Question 36. A winding path 37. Why is She So Distressed? 38. Maximizing the time left