A Field Manual for Palliative Care in Humanitarian Crises

Elisha Waldman, MD, FAAHPM, spent a significant portion of his career practicing both pediatric oncology and palliative care in Jerusalem, and has worked with refugee populations in the Middle East and elsewhere. Dr Waldman is active in the American Academy of Hospice and Palliative Medicine, where he sits on a number of committees. He is currently the Chief of the Division of Palliative Care at Lurie Children's Hospital in Chicago, where he lives with his wife and children. He has published in a number of medical journals as well as national media outlets. He is the author of the nonfiction book This Narrow Space about his experiences working in the Middle East. His writing has appeared in the Hill, the New York Times, the Washington Post, Time and elsewhere. Marcia Glass, MD, earned her medical degree at Georgetown University and completed her residency training at Tulane University. She has worked extensively abroad, including stints with Doctors without Borders,Partners in Health, the Liberian government, UCSF, and Columbia University. She received a Yale Johnson and Johnson fellowship and a Fulbright. She is currently program director for the palliative-care fellowship at Tulane. Dr. Glass has published in several medical journals and online publications, including the Washington Post, The Journal of Hospital Medicine, and The Lancet.

The manual should serve as a reference document for policymakers seeking to promote the provision of palliative care in humanitarian crises, and project managers and health care practitioners seeking to improve the quality and holistic nature of care.

• 1. Introduction: Why Palliative Care?Elisha Waldman and Marcia Glass 2. Palliative Care Needs of People Affected by Natural Hazards, Political or Ethnic Conflict, Epidemics of Life-Threatening Infections, and Other Humanitarian CrisesEric L. Krakauer, Bethany-Rose Daubman, Tammam Aloudat, Nahid Bhadelia, Lynn Black, Sanja Janjanin, and Farzana Khan 3. Practical Tips on Integrating Palliative CareBrett Sutton and Joan Marston 4. Pain ManagementElisha Waldman and Stefan J. Friedrichsdorf 5. DyspneaMeaghann S. Weaver 6. Gastrointestinal Symptom Management Gary Hsin 7. Delirium and Acute AnxietyKevin Bezanson and Stephanie Rogers 8. Skin Conditions in Crisis AreasMarcia Glass, Carrie Kovarik, Mara Haseltine, Sandra L. Freiwald, and Susan Barbour 9. Care of the Dying PatientMegan Doherty and Joshua Hauser 10. Noncommunicable Diseases in Crisis RegionsSujatha Sankaran, Sriram Shamasunder, Marcia Glass, and Mhoira E.F. Leng 11. Palliative Care Emergencies in Humanitarian CrisesDavid M. Williscroft 12. Pediatric Palliative Care in the Context of Humanitarian CrisesElisha Waldman and Justin N. Baker 13. Essential MedicinesCatherine Habashy, Sarah L. Comolli, and Justin N. Baker 14. Communicating Bad NewsMeaghann S. Weaver and Michaela Ibach 15. Law and Ethics of End-of-Life Care in Humanitarian CrisesNatasha Yacoub, Lisa Schwartz, and Kevin Bezanson 16. Cultural, Psychological, and Spiritual Dimensions of Palliative Care in Humanitarian CrisesDenah M. Joseph, Peter Yuichi Clark, and Jessi Humphreys 17. A Trauma-Informed Response to Working in Humanitarian Crises: Focus on ProvidersDenah M. Joseph and Jessi Humphreys