Inbunden, Engelska, 2027

Patient and Public Involvement in Clinical Research

Implementation and Practice

Av Kristin Marie Bivens, Amélie J.A.A. Guyon, David Schwappach, Eva Segelov

3084 kr

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Beskrivning

Involving patients and the public is an area of increasing importance in the field of clinical, patient-centred research for achieving better informed, patient-engaged clinical care. This text provides meaningful definitions and overviews of the current state of patient and public involvement (PPI) globally. Ranging from theory to practice, it disentangles and defines PPI aspects and outcomes when holistically applied before, during, and after clinical research activities commence. Written for medical students, clinicians, and members of clinical research teams, this text amplifies promoting strong partnerships between clinicians, researchers, and PPI contributors in clinical research.Key Features:Discusses what defines the role of a PPI contributorDemarcates the boundaries between PPI contributors with lived experience and professional patient expertsAddresses challenges of implementing PPI in various domains of clinical research, including some not previously discussed, such as PPI in BiobanksPresents concrete examples of successful and unsuccessful PPI and articulates specific limitations of PPIIncludes PPI guidance for special populations, such as adolescents

Produktinformation

Utgivningsdatum: 2027-03-31
Mått: 156 x 234 x undefined mm
Format: Inbunden
Språk: Engelska
Antal sidor: 208
Förlag: Taylor & Francis Ltd
ISBN: 9781032912868

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Kristin Marie Bivens is an Associate Professor of Rhetoric and Writing Studies and the Director of Core Writing at the University of Nevada, Reno, USA. Formerly, she was the Head of Education and the Patient and Public Involvement Program at the University of Bern, Switzerland. She is a scholar of the rhetoric of health and medicine and studies the circulation of information from experts to non-experts in critical care contexts.Amélie J.A.A Guyon leads the PPI Program in the Department of Clinical Research, Faculty of Medicine, University of Bern, Switzerland. With a background in psychology, specializing in human body-brain interactions, she now focuses on developing partnerships between research teams and PPI contributors to advance meaningful, patient-centered clinical research.David Schwappach is associate professor of patient safety at the Institute of Social and Preventive Medicine at the University of Bern, Switzerland. His research addresses quality and safety in patient care, with particular focus on hazard identification and systems design. He has led several national patient safety programs, including patient-public partnerships.Eva Segelov is Professor and Director of Clinical Research, Faculty of Medicine, University of Bern, Switzerland. An Australian-trained Medical Oncologist with a 40-year clinical research career, she has extensive experience co-producing research with patients, families, patient representatives, support groups and the public, key stakeholders often overlooked in publicly funded research.

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