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    1. Samhälle och politik
    2. Samhälle och kultur

    Research Agenda for Lived Experience and Disability Policy

    AvJennifer Smith-Merry,Damian Mellifont

    Inbunden, Engelska, 2026

    Del i serien Elgar Research Agendas

    1 633 kr

    Beställningsvara. Skickas inom 5-8 vardagar. Fri frakt över 249 kr.

    Beskrivning

    Elgar Research Agendas outline the future of research in each area. Leading scholars are given the space to explore their subject in provocative ways and map out the potential directions of travel. They are relevant but also visionary.This highly informative Research Agenda examines how lived experiences are understood and incorporated in disability policy. It explores various policymaking contexts, highlighting the opportunities and challenges that derive from centering lived experience. Expert authors pair case studies from across Asia, Australia and North America with theoretical grounding to reorient policy thinking towards voices that have been traditionally excluded. Evaluating topics such as rural contexts, times of conflict and transport and health policy, chapters highlight how the voices of Indigenous populations, in particular, have been marginalised in policymaking. The authors powerfully demonstrate that lived expertise is a unique form of knowledge which should be valued and integral to all disability policy making and research.This is a valuable resource for students and scholars of disability studies, sociology, and policy studies. Its insights into lived experience also make it prime readership for professionals and practitioners in the areas of social policy and social work.

    Produktinformation

    • Utgivningsdatum:2026-04-24
    • Mått:156 x 234 x undefined mm
    • Format:Inbunden
    • Språk:Engelska
    • Serie:Elgar Research Agendas
    • Förlag:Edward Elgar Publishing Ltd
    • ISBN:9781035332397

    Utforska kategorier

    • Samhälle och kultur inom Samhälle och politik
    • Sociala och etiska frågor inom Samhälle och politik
    • Socialt arbete och välfärd inom Samhälle och politik

    Mer om författaren

    Edited by Jennifer Smith-Merry, Professor of Health and Social Policy, Australian Research Council Industry Laureate Fellow, and Damian Mellifont, Lecturer, Centre for Disability Research and Policy, The University of Sydney, Australia

    Recensioner i media

    ‘This compelling Research Agenda provides a much needed guide to lived experience – a crucial yet poorly understood precondition for transformative disability policy. Featuring authoritative, lucid and imaginative contributions from a diverse range of researchers, practitioners and leaders globally, it lays out the agenda for lived experience, disability and policy for years to come.’

    Innehållsförteckning

    • Contents1 Introduction: Lived experience and policy making 1Jennifer Smith-Merry and Damian Mellifont2 Centring disabled voices: Inclusion of lived experiences inpolicy 8Sze Hwee Jace Tay and Kuansong Victor Zhuang3 Re-imagining policymaking with rural people with disabilityin Australia 18Claire Quilliam, Luke Wakely and Jodie Bailie4 Navigating disability in times of conflict: The case ofdisability policies in Pakistan 32Farman Ali, Zia Ullah Akhunzada and Mandy Lau5 The multi-layered, multi-faceted importance of the livedexperience in disability health policy 44Dinesh Palipana and Gisselle Gallego6 The role of lived experience and the right to participatein the CRPD: The case of disability policymaking intechnocratic Singapore 56Daryl W. J. Yang7 Indonesia’s digital disability inclusion: From regulation topolicymaking and practice 69Muhammad Novsyaroni Umar, Galuh Fitri Amalia Susilo andMuhammad Karim Amrullah8 From experience to policy: The influence of livedexperience on disability transport policy in Sydney,Australia 87Miguel Loyola and Jennifer Kent9 What is the problem with private supported boardinghouses? Resident perspectives on the QueenslandParliamentary Inquiry 100Elroy Dearn, Neil Turton-Lane and Matilda Alexander10 The research agenda for assisted dying policy forpsychiatric disability 117Sam Sam and Jennifer Smith-Merry11 Decolonising the Indigenous disability sciences in Australiaand New Zealand 126Jemma Chao, Alix Beckett, Sarah Veli-Gold and John Gilroy12 The good, the bad and the ugly: Accommodations forIndigenous Canadian civil servants with disabilities 145John T. Ward, Kevin P. Morgan, Lexi (Giizhigokwe)Nahwegiizhic and Annie Smith St-Georges13 Radical disability disclosure: How to encourage an invisiblecommunity to engage in disability policymaking 166Téa Rundback14 Co-producing knowledge to inform policy: A disabledperson’s reflections on processes, learnings, strengths, andchallenges 175Susan Wadsworth and Rachelle A. Martin