Community-Based Participatory Research for Health

Nina Wallerstein, DrPH, MPH, is a professor of public health in the College of Population Health and the Director of the Center for Participatory Research at the University of New Mexico.Bonnie Duran, DrPH, is a Professor in the School of Social Work at the University of Washington, and is also Director of the Center for Indigenous Health Research at the Indigenous Wellness Research Institute. John G. Oetzel, PhD, is a Professor in the Department of Management Communication in the Waikato Management School at the University of Waikato in Hamilton, New Zealand. Meredith Minkler, DrPH, is Professor Emerita of Health and Social Behavior in the School of Public Health, University of California, Berkeley.

• The Editors xiiiThe Contributors xvPreface xxxiiiCamara Phyllis JonesAcknowledgments xxxviiPART ONE: INTRODUCTION: HISTORY AND PRINCIPLESONE: ON COMMUNITY-BASED PARTICIPATORY RESEARCH 3Nina Wallerstein, Bonnie Duran, John G. Oetzel, and Meredith MinklerTWO: THEORETICAL, HISTORICAL, AND PRACTICE ROOTS OF CBPR 17Nina Wallerstein and Bonnie DuranTHREE: CRITICAL ISSUES IN DEVELOPING AND FOLLOWING CBPR PRINCIPLES 31Barbara A. Israel, Amy J. Schulz, Edith A. Parker, Adam B. Becker, Alex J. Allen, III, J. Ricardo Guzman, and Richard LichtensteinPART TWO: POWER, TRUST, AND DIALOGUE: WORKING WITH DIVERSE COMMUNITIESFOUR: UNDERSTANDING CONTEMPORARY RACISM, POWER, AND PRIVILEGE AND THEIR IMPACTS ON CBPR 47Michael Muhammad, Catalina Garzón, Angela Reyes, and The West Oakland Environmental Indicators ProjectFIVE: TRUST DEVELOPMENT IN CBPR PARTNERSHIPS 61Julie E. Lucero, Kathrine E. Wright, and Abigail ReesePART THREE: CBPR CONCEPTUAL MODEL: CONTEXT AND PROMISING RELATIONSHIP PRACTICESSIX: SOCIO-ECOLOGIC FRAMEWORK FOR CBPR: DEVELOPMENT AND TESTING OF A MODEL 77Sarah L. Kastelic, Nina Wallerstein, Bonnie Duran, and John G. OetzelSEVEN: YOUTH-LED PARTICIPATORY ACTION RESEARCH (YPAR): PRINCIPLES APPLIED TO THE US AND DIVERSE GLOBAL SETTINGS 95Emily J. Ozer and Amber Akemi PiattEIGHT:PARTNERSHIP, TRANSPARENCY, AND ACCOUNTABILITY: CHANGING SYSTEMS TO ENHANCE RACIAL EQUITY IN CANCER CARE AND OUTCOMES 107Eugenia Eng, Jennifer Schaal, Stephanie Baker, Kristin Black, Samuel Cykert, Nora Jones, Alexandra Lightfoot, Linda Robertson, Cleo Samuel, Beth Smith, and Kari ThatcherNINE:SOUTH VALLEY PARTNERS FOR ENVIRONMENTAL JUSTICE: A STORY OF ALIGNMENT AND MISALIGNMENT 123Magdalena Avila, Shannon Sanchez-Youngman, Michael Muhammad, Lauro Silva, and Paula Domingo de GarciaPART FOUR: PROMISING PRACTICES: INTERVENTION DEVELOPMENT AND RESEARCH DESIGNTEN: CBPR IN HEALTH CARE SETTINGS 141Margarita Alegría, Chau Trinh-Shevrin, Bowen Chung, Andrea Ault, Alisa Lincoln, and Kenneth B. WellsELEVEN: NATIONAL CENTER FOR DEAF HEALTH RESEARCH: CBPR WITH DEAF COMMUNITIES 157Steven Barnett, Jessica Cuculick, Lori Dewindt, Kelly Matthews, and Erika SutterTWELVE: CBPR IN ASIAN AMERICAN COMMUNITIES 175Nadia Islam, Charlotte Yu-Ting Chang, Pam Tau Lee, and Chau Trinh-ShevrinTHIRTEEN: ENGAGED FOR CHANGE: AN INNOVATIVE CBPR STRATEGY TO INTERVENTION DEVELOPMENT 189Scott D. Rhodes, Lilli Mann, Florence M. Simán, Jorge Alonzo, Aaron T. Vissman, Jennifer Nall, and Amanda E. TannerPART FIVE: PROMISING PRACTICES: ETHICAL ISSUESFOURTEEN:CBPR PRINCIPLES AND RESEARCH ETHICS IN INDIAN COUNTRY 207Myra ParkerFIFTEEN: DEMOCRATIZING ETHICAL OVERSIGHT OF RESEARCH THROUGH CBPR 215Rachel Morello-Frosch, Phil Brown, and Julia Green BrodySIXTEEN: EVERYDAY CHALLENGES IN THE LIFE CYCLE OF CBPR: BROADENING OUR BANDWIDTH ON ETHICS 227Sarah Flicker, Adrian Guta, and Robb TraversPART SIX: PROMISING PRACTICES TO OUTCOMES: CBPR CAPACITY AND HEALTHSEVENTEEN: EVALUATION OF CBPR PARTNERSHIPS AND OUTCOMES: LESSONS AND TOOLS FROM THE RESEARCH FOR IMPROVED HEALTH STUDY 237John G. Oetzel, Bonnie Duran, Andrew Sussman, Cynthia Pearson, Maya Magarati, Dmitry Khodyakov, and Nina WallersteinEIGHTEEN:PARTICIPATORY EVALUATION AS A PROCESS OF EMPOWERMENT: EXPERIENCES WITH COMMUNITY HEALTH WORKERS IN THE UNITED STATES AND LATIN AMERICA 251Noelle Wiggins, Laura Chanchien Parajón, Chris M. Coombe, Aileen Alfonso Duldulao, Leticia Rodriguez Garcia, and Pei-Ru WangNINETEEN: ACADEMIC POSITIONS FOR FACULTY OF COLOR: COMBINING LIFE CALLING, COMMUNITY SERVICE, AND RESEARCH 265Lorenda Belone, Derek M. Griffith, and Barbara BaqueroPART SEVEN: PROMISING PRACTICES TO OUTCOMES: HEALTHY PUBLIC POLICYTWENTY: COMMUNITY-BASED PARTICIPATORY RESEARCH FOR HEALTH EQUITY POLICY MAKING 277Lisa Cacari-Stone, Meredith Minkler, Nicholas Freudenberg, and Makani N. ThembaTWENTY ONE: IMPROVING FOOD SECURITY AND TOBACCO CONTROL THROUGH POLICY-FOCUSED CBPR: A CASE STUDY OF HEALTHY RETAIL IN SAN FRANCISCO 293Meredith Minkler, Jennifer Falbe, Susana Hennessey Lavery, Jessica Estrada, and Ryan ThayerTWENTY TWO: CRIMINAL JUSTICE REFORM THROUGH PARTICIPATORY ACTION RESEARCH 305Saneta deVuono-Powell, Meredith Minkler, Evan Bissell, Tamisha Walker, LaVern Vaughn, Eli Moore, and The Morris Justice ProjectTWENTY THREE: GLOBAL HEALTH POLICY: SLUM SETTLEMENT MAPPING IN NAIROBI AND RIO DE JANEIRO 321Jason Corburn, Ives Rocha, Alexei Dunaway, and Jack MakauAPPENDIX 1: CHALLENGING OURSELVES: CRITICAL SELF-REFLECTION ON POWER AND PRIVILEGE 337Cheryl HydeAPPENDIX 2: GUIDING CBPR PRINCIPLES: FOSTERING EQUITABLE HEALTH CARE FOR LGBTQ+ PEOPLE 345Miria Kano, Kelley P. Sawyer, and Cathleen E. WillgingAPPENDIX 3: QUALITY CRITERIA OF THE INTERNATIONAL COLLABORATION FOR PARTICIPATORY HEALTH RESEARCH (ICPHR) 351Michael T. WrightAPPENDIX 4: CULTURAL HUMILITY: REFLECTIONS AND RELEVANCE FOR CBPR 357Vivian ChávezAPPENDIX 5: FUNDING IN CBPR IN US GOVERNMENT AND PHILANTHROPY 363Laura C. Leviton and Lawrence W. GreenAPPENDIX 6: REALIST EVALUATION AND REVIEW FOR COMMUNITY-BASED PARTICIPATORY RESEARCH: WHAT WORKS, FOR WHOM, UNDER WHAT CIRCUMSTANCES, AND HOW? 369Justin JagoshAPPENDIX 7: PARTNERSHIP RIVER OF LIFE: CREATING A HISTORICAL TIME LINE 375Shannon Sanchez-Youngman and Nina WallersteinAPPENDIX 8: PURPOSING A COMMUNITY-GROUNDED RESEARCH ETHICS TRAINING INITIATIVE 379Cynthia Pearson and Victoria SánchezAPPENDIX 9: PARTNERSHIP AGREEMENTS: A PRACTICAL GUIDE TO DEVELOPING DATA SHARING, OWNERSHIP, AND PUBLISHING AGREEMENTS 385Patricia Rodríguez Espinosa and Al RichmondAPPENDIX 10: INSTRUMENTS AND MEASURES FOR EVALUATING COMMUNITY ENGAGEMENT AND PARTNERSHIPS 393Nina WallersteinAPPENDIX 11: PARTICIPATORY MONITORING AND EVALUATION OF COMMUNITY HEALTH INITIATIVES USING THE COMMUNITY CHECK BOX EVALUATION SYSTEM 399Stephen Fawcett, Jerry Schultz, Vicki Collie-Akers, Christina Holt, Jomella Watson-Thompson, and Vincent FranciscoAPPENDIX 12: POWER MAPPING: A USEFUL TOOL FOR UNDERSTANDING THE POLICY ENVIRONMENT AND ITS APPLICATION TO A LOCAL SODA TAX INITIATIVE 405Jennifer Falbe, Meredith Minkler, Robin Dean, and Jana CordeieroAPPENDIX 13: CBPR INTERACTIVE ROLE-PLAYS: THREE SCENARIOS 411Michele Polacsek and Gail Dana-SaccoAFTERWORD 417Budd Hall and Rajesh TandonINDEX 419