Chronic Illnesses, Syndromes, and Rare Disorders

Marlene Targ Brill, a former special educator, is an award-winning author of more than 70 books by various publishers including Children’s Press and Barron’s. Many of her titles have been for teens and young adults, including books about diabetes, asthma, and Tourette syndrome (Bank Street College Best Children’s Book). She is the author of Speech and Language Challenges: The Ultimate Teen Guide (R&L, September 2014).

Gr 8 Up-Teens living with a syndrome, chronic illness, or disease too often lack an understanding regarding the challenges they face on a daily basis. This latest addition to the series sheds light on various ailments and dispels common misconceptions. The book covers nine conditions (celiac disease, Crohn's disease, Down syndrome, hemophilia, melanoma, multiple sclerosis, phenylketonuria, sickle cell disease, and Tourette's syndrome). Each chapter begins with an explanation and describes symptoms and how common each one is. When necessary, context is provided; for example, the chapter on Crohn's disease comes with an explanation of the digestive system, while the section on hemophilia discusses clotting factors and how they work. Numerous text boxes highlight first-hand accounts and observations by teens. A brief chronology of the disease throughout history is included when applicable. Tips on managing the condition a are offered, and the final chapter, in addition to covering topics such as bullying, stress relief, and  sibling relationships, provides general resources (organizations that help with financial assistance and insurance, medical-related transportation, and housing options during treatment).... [I]t is informative, the writing is accessible, and the content will be truly helpful for teens dealing with the conditions themselves or for those who have a family member or friend affected.